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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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World Suicide Prevention Day: 10 September 2025. Cerebral Palsy
September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…
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Chest health and cerebral palsy
Help improve chest health for children and young people with cerebral palsy. Here is a video that explains more about the research: Participants needed: • People aged 8-25 with cerebral palsy • Parents or carers • Health, social, and education professionals • Researchers Your input will guide crucial measures for research…
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Cardiff CP Network-In Person Event. Cardiff Central Library.
Good afternoon all. I have some news I'd like to share, especially with people living in Cardiff and surrounding areas. On behalf of Scope, I have organised the first Cardiff CP Network meeting. It will be held on Monday 15th September 2025 at Cardiff Central Library. Please see the attached posters for more information…
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Anniversary of Stoke Mandeville Games-Paralympic Movement. Disability Pride 2025
The Paralympic movement at Stoke Mandeville is celebrating its 77th anniversary today. The first Stoke Mandeville Games were held on July 29, 1948. These games, organized by Ludwig Guttman are recognized as the precursor to the modern Paralympic Games. The anniversary will be marked by various events, including…
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Take the CQC's Short Survey to Help Improve health and Social Care
Use this form to tell us about: an experience of care - it can be good or bad a concern about a service you work for Give feedback on care - Care Quality Commission Your feedback helps make care better We use what people tell us to understand the quality of care they get from services like care homes, care agencies,…
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World Wellbeing Week
On the last day of World Wellbeing Week, here is a simple and effective technique to help manage negative thinking. We live in a world filled with uncertainties and it's all too common to be overwhelmed by stress and anxiety. This state of being can often lead to negative views of feeling worthless or unloved. Emotions…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in their…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Do You Have Difficulty Having Sex Due to Tight Muscles?
No subject is off-limits for Sam at Inclusfit! This subject was brought up by a few of my PT clients. Those with spastic cerebral palsy have high spasticity in their muscles. This means we get tight muscles very quickly and this can also mean we get a lot of pain. This also limits our movement & what we can do. Those with…
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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at to attend this event. I recently interviewed Jan where we discussed her…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Research Opportunity: Were You A Premature Baby?
Summary Around 1 in 10 babies worldwide are born preterm, before 37 weeks of pregnancy. Thanks to advances in neonatal medicine, 95% of babies that are born preterm now survive to adulthood. We know a lot about the challenges these babies face early in life, but much less about what life is like when these preterm babies…
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Cerebral Palsy and Stigma Study with the University of Surrey
The study has now been published in an academic paper, and I wanted to again express my thanks for all the support that you gave with the project. You have all been thanked in the acknowledgements for the project, as we couldn't have done it without you. Description of study A University of Surrey researcher and 2 adults…
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Annoyed yet again
Had ongoing constant back for over 4 years told over and over back spasm. Went to orthotics about my gait as left foot intoes and have leg length discrepancy prescribed right foot heel lift and asked for assessment of hips.. hips thankfully fine but have moderate osteoarthritis in L5/S1 in spine and mild in si joints I'm…
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CP - orthotics
Hi there My son who is almost 4, has cerebral palsy. His left leg is mainly impacted. He’s been referred to orthotics for a splint but this is taking a long time. Has anyone got experience of this and whether the splint helped, or whether anyone has gone private and what their experience has been, Many thanks
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Mother Heartbroken Over Parks Poor Accessibility.
A mum says she is "angry, upset and heartbroken" over the opening of a new play park that does not cater for her daughter's disabilities, despite it being described as an "accessible space." Rebecca said there "wasn't anything" her two-year-old daughter Hannah, who has cerebral palsy and is non-mobile, non-verbal and…
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Get involved in a new physiotherapy game!
We have an exciting opportunity! Please see below to get involved! Hello! We're Aaruni and Pranathi. We made Plia Therapy. It's a digital platform for children with neurological conditions like cerebral palsy. We use games and Augmented Reality to make exercises fun. Our AI personalises these exercises for each child. They…
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CP Sport's National Athletics and Activity Day!
With just over a week to go, we are so excited to see you all. We have 102 athletes competing this year! Plus, we have a host of other activities and sporting partners attending the day. If you haven't booked onto the free activities yet, please scan and book below or visit our website. With just over a week to go, we are…
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Hi, my name is carolynwillis! son having botox in wrist for the first time and not sure what expect
My son has cerebral palsy with a left hemiplegia . He is now 20 years old . He is starting a supported internship at his local college . His love in life is cricket playing ,watching and coaching .As his mother often joke that I'm his personal assistant but joking aside I do help with things such as PIP and universal…
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'I'm the voice for Wrexham fans with a disability'
Charlie Buckland Source from BBC News Behind the newfound glitz and glamour of Wrexham AFC, people like Kerry Evans have acted as a pillar throughout the transition. Previously not even a football fan, she now makes sure no-one gets left behind as the club's disability liaison officer, and is also familiar face on the…
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Dad with cerebral palsy shares parenting hacks
From BBC News Vic Minett BBC Radio CWR. Tanya Gupta BBC News, West Midlands A man who is living with cerebral palsy and has become a stay-at-home dad for his 11-month-old son has taken to social media to share "laughs, hacks and life". Danny Berney, 32, a former nursery worker from Leamington Spa, has been posting videos…
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Mounjaro
Suggested by a senior staff nurse I would benefit by going onto Mounjaro due to me being obese and being a diabetic. Clinician I spoke to gave me the impression I would not be able to. If this is the case, do I have any redress?
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Creative Pathways is back for 2025!
Creative Pathways is back!! In association with Scope and The Rosie Jones Foundation. 28 & 29 August @ Here East, London. FREE!!! We’re back with another amazing lineup of creative professionals to move and inspire you!! Including the incredible Rosie Jones! If you’re between 11-19 (secondary & above) and have cerebral…
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Welsh Disability Rights Plan Risks Failure
The Disabled People's Right Plan, aims to give people more rights across a range of areas in Wales. Key parts of the Welsh government's flagship plan to improve disabled people's rights need to be rewritten, according to the equalities watchdog. Read the story here: BBC Wales Disability Rights Plan
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Mild CP
My 2 year old has recently been diagnosed with mild CP. It causes her left arm and leg to be stiff but she can use them both. She has OT assessment tomorrow and physio assessment on Tuesday. She was born at 24 weeks and had 3 surgeries so far, so she’s already been through so much. Can anyone give me a sense of what’s to…
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🌟 Attention Parents of children with cerebral palsy! 🌟
You have asked, and we have provided! Join our session on Education, Health, and Care plans (EHCPs). Connect through our live Zoom session with SEND specialists IPSEA. They will share general advice about EHCPs. 📅 Thursday, 18 September ⏰ 11:30am until 1pm 🚨 Limited spaces available Very limited spaces available - book…
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Is there any dentist that does specialise working with cerebral palsy patients
Hello I got cerebral palsy and I got 2 teeth from each side of the upper jaw missing and I want them replace with them I was wondering what eere my options, I don’t know if bridges would work or dentures work due my disability can you advise me or is my options implants ? Thank you very much Kinds regards
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Accessing botox
Hi! I have mild diplegic cerebral palsy. I had botox injections once as a child (now in my late 20s) but since then I have had no treatment/physio/consults etc so don't really know where to start with accessing support or treatment. I've been reading about Botox again and would like to explore this option and/or physio. I…
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Calling All Adults Living with CP in the Island of Ireland!
The team at the Royal College of Surgeons in Ireland (Dublin) are conducting a research study to deliver and evaluate an online exercise programme designed for adults with cerebral palsy (CP). They are inviting adults with CP to take part in this study. Participants will be randomly assigned to one of two groups. The first…
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Experience of Tizanidine vs Baclofen
Background: When i was a child i used to take delicious sugary like raspberry but no raspberries in it bacolfen. Transitioned to boring tablets and then off everything but recently increasing stiffness. Did a brief search and obviously increasing physical activity is a must (got appointment next week), but does any have…
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UK's first disabled strongman launches mission
From BBC News Alexandra Bassingham BBC News, West of England Claire Carter BBC Radio Somerset The UK's first disabled strongman is fundraising to secure the future of a national event for strongmen and strongwomen. Gary Clarke, 48, from Chard, Somerset, is a key organiser for the British Disabled Strongman Competition,…
