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Join our special online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in their…
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Do have a child that has Cerebral Palsy?
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Do You Have Difficulty Having Sex Due to Tight Muscles?
No subject is off-limits for Sam at Inclusfit! This subject was brought up by a few of my PT clients. Those with spastic cerebral palsy have high spasticity in their muscles. This means we get tight muscles very quickly and this can also mean we get a lot of pain. This also limits our movement & what we can do. Those with…
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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at to attend this event. I recently interviewed Jan where we discussed her…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Should I start maybe thinking of finding a boyfriend online through another community?
Hi currently I'm limbo or rather feel as i am, I've been trying wirh the idea for ages now about joining another online disabled community, but I'm feeling like I can't because I'm too scared of what my family will think and tell me to get off it! Or do I don't for me and **** the consequences. @pooleemily29
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Interested in More Touch and Affection in Your Life? 💛
Are you disabled? Are you non-disabled? Either way—you’re invited to join us in creating something special.We’re building inclusive, welcoming workshops for: People with physical disabilities Neurodivergent people Their friends, allies & curious peers All focused on affectionate touch, consent, and connection.Join Us for…
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Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,…
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Experience of Tizanidine vs Baclofen
Background: When i was a child i used to take delicious sugary like raspberry but no raspberries in it bacolfen. Transitioned to boring tablets and then off everything but recently increasing stiffness. Did a brief search and obviously increasing physical activity is a must (got appointment next week), but does any have…
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CP Multi level Surgery
HI my son is 10 and will be having multilevel surgery later this year and I wondered if anyone has any advise/information/tips they could share. As a family we are all pretty nervous about it but are hopefully doing the best thing for him. He currently uses a walking frame and sometimes a wheelchair but he is being more…
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Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
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Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin Fairy®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achieves…
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Best Invention/ part of CP for people in poem form
I'll start - Glory be to the blue badge, indeed, my help anytime or at least 3 hours mine. With cerebral palsy, walking's tough,But parking close is needed enough.Those double yellows, A stress removed, a welcome start to journey success. Lets get out, no need to dread,Leaving boring parkers instead.
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Given increasing evidence of a genetic component to some cerebral palsy cases would you test?
https://www.medicine.net/news/Pediatrics/Study-supports-genetic-testing-for-people-with-cerebral-palsy.html
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Creating Awareness
hey ya, I’m fairly new to all of this and have CP myself but desperately wanting to advocate and already more awareness etc. does anyone know of any events or anything going on- I’m based in the midlands but willing to travel. I think I want to educate and spread the message of hope, I know that CP for sure has its scary…
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Leaders/colleagues view on disabilities
Hi, My son has cerebral palsy with spasticity and dystonia and is a manual wheelchair user and works full time. He loves and enjoys his job. He works in Customer Service and does a lot of pushing in his wheelchair to support customers resulting to getting calisis on his hands and tired. His leader says to the team “keep on…
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British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Webinar: See me, not cerebral palsy
This webinar was hosted by My CP Guide and presented by Madison Heady, disability advocate, athlete, and Young West Australian of the Year 2023. Madison Heady is a vibrant young woman navigating life after high school while living with a disability. Born with cerebral palsy, Madison exemplifies the significance of…
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New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Paralympian's recovery inspired frame running club
A Paralympic swimmer has set up a frame running club to help disabled people after crediting the sport with helping her recover from a career-threatening injury. Tully Kearney said she was left unable to swim after she suffered complex concussion syndrome in 2023 when her head was accidentally hit by a closing car boot.…
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Hi, my name is jang!
My sister has mildish cerebral palsy but as she us now well into 50s is experiencing decreased mobility issues.Does anyone know if there are specialist followup facilities in the NHS for people with CP?
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Yeovil Man to Run the London Marathon
Connor Hyde who has epilepsy and cerebral palsy ran the London Marathon 2025. BBC News
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Any advice Improving Balance
Should probably go to the GP but recently by balance has decreased significantly. I used to be ok walking short distances unassisted but now even slight inclines of the real world (which sadly isnt flat, make me tense up unable to move) To return to my old baseline I have been doing my classic throw myself on the floor and…
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Wrexham Cerebral Palsy Get Together-CP Network and CP Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
