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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
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Investigation of the physical and social Impact of living with hemiplegia.
Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…
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Cerebral Palsy Integrated Pathway (CPIP) Project is looking for lived experience
Do you or someone you support have cerebral palsy? We would like people with lived experience of cerebral palsy to join our national network for the Cerebral Palsy Integrated Pathway (CPIP) to advise on this national patient pathway. You can find out more about CPIP at www.cpipuk.org We invite you to get involved in…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral Palsy Lucy JamesCerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
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Maternity Care for women with CP: The RICH Project
We need two more women to join the study. Can you help? RICH Study - The University of Nottingham RIghts and CHoices for women with cerebral palsy: A qualitative studyto understand what works in the provision of their maternity care Purpose of the study: 1. To find out about the reproductive choices and experiencesof women…
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Research study on CP and Mental Health University of Surrey
We are hoping to interview about 15-20 participants with the following criteria: - Be over 18 years old- Be fluent in English- Live with CP- Not currently receiving any form of psychological therapy- Identify as having lived experiences of mental health difficulties related to living with CP- Access to a stable internet…
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Living Healthy Lives: Exploring the effects of growing older with cerebral palsy
For the last 2 years, Scope has been working with Dr. Sonali Shah and the University of Nottingham to understand the effects of cerebral palsy (CP) as people grow older and understand their needs and access to health services as they age. The project was the first and largest UK study about ageing with CP and healthcare…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Scope's Cerebral Palsy Network
The Cerebral Palsy (CP) Network is a group of people with lived experience of CP. The network supports the cerebral palsy community in England and Wales. Who can join? You can join the network if you: * are 18 years or over * have lived experience of CP, or * support someone with CP. Including family, friends, partners or…
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Our Next Welcome Café is Monday 14th of October 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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In case You Missed it. Spasticity Management with Dr Val Stevenson and Bobath Video
Hello from The Bobath Centre, We wanted to take a moment to thank you for being a part of our Adult meetup with Dr Valerie Stevenson about managing spasticity in CP. We are grateful to Dr Stevenson for her time and are pleased that you were able to join us. The feedback we have received has been very positive and we hope…
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronic…
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Inexpensive drug can prevent cerebral palsy in premature babies
A study from the University of Bristol found that giving women at risk of premature birth a magnesium sulphate (drip) can help prevent their babies from developing cerebral palsy. The first major review in 2009 showed this treatment was effective, and new research continues to confirm it. Since 2015, the World Health…
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A future of inclusion for disabled children
Sophie talks about her son who has cerebral palsy and why more needs to be done to improve disability inclusion in schools. "Children and young people are our future. The way we raise our children shapes the world they’ll grow up in. "Our world is made up of people with all sorts of characteristics and personalities. We…
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CP treatment and equipment help for daughter.
Hello, Wondering if i can get some advice as I feel im lost in how I can best support my 3 year old daughter with her treatment and equipment needs for her Left side Hemi Cerebral Palsy. She is currently having NHS physio once ever 6 weeks, sees an Occ Health every 6 months and is on waiting lists for Othotics and surgeon…
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David Cameron opens up on the death of his son aged 6 as he leads push for treatments
From LBC Former Prime Minister Lord Cameron told LBC's Nick Ferrari at Breakfast that his son Ivan, who lived with an extremely rare condition called Ohtahara syndrome, and quadriplegic cerebral palsy, might have lived longer if he had been born today - such are the improvements in medical science.
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The Sunflower Conversations Podcast: cerebral palsy
To mark World CP Day 2024, the Sunflower Conversations Podcast spoke with Richard Luke from Scope and Karen Watson from Cerebral Palsy Adult Advice UK (CPAAUK) about cerebral palsy: The Hidden Disabilities Sunflower is a simple tool for you to voluntarily share that you have a disability or condition that may not be…
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New Boccia Club in Bolton
CP Networker, Carla is starting a new Boccia club in her home town of BOLTON. If you, or anyone you may know, would be interested in going along on a Friday afternoon to play or even to try the game - please click the link and join her new Facebook group, Bolton Boccia
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I want to contribute to society-19 year old young man
This young disabled man dreamed of having a job-The system had other ideas BBC In depth
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Children in England waiting years for autism and cerebral palsy diagnoses – data
Years-long waits for diagnoses and support for autistic young people in England and others with conditions including cerebral palsy is “robbing” them of their childhoods, the Children’s Commissioner has warned. Children with cerebral palsy faced the highest wait of all for diagnosis through community health services, at…
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Hi, my name is jdevine83! son is 6 and has CP. I am exhausted with his screaming for things
HEllo, my son is 6 and has CP. I am exhausted with his screaming for things like mammy to talk on the phone or to brush teeth. I know alot of ppl say look out for triggers, or they might be feeling frustrated. So what is it when my son has slept peacefully all night then wakes up screaming at me pulling his ear indicating…
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Please join us for our Instagram Live with Eva Abley from BGT
Please join us for our Instagram Live with @Eva_Abley this evening at 5 pm on our UK Instagram @sunflowerlanyardscheme ⠀ Eva has cerebral palsy and has just finished her GCSE's and joins us to talk about her experiences so far. She has achieved an awful lot already!⠀ We will put the recording on The Sunflower Conversations…
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Apply now for a funded adult specialist review with CP Scotland
Providing therapy using the Bobath concept is at the heart of what we do at Cerebral Palsy Scotland. We're currently offering funded specialist reviews for adults with cerebral palsy living in Scotland. Why apply for a specialist review? Therapy is the key treatment for cerebral palsy, but many adults don’t have access to…
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World CP Day and Disney+ Collaboration
I don't know if you have seen but Disney+ has adapted the book, "Out of My Mind" for World CP Day 2024. This is huge! WorldCPDay.org says: Our exclusive partnership with Disney+ for World Cerebral Palsy Day has received global recognition. On Friday, October 4 we launched the trailer for Out of My Mind - a new film telling…
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ageing with cerebral palsy
Hi I am 26 years old and I have told that I could arthritis as my blood test has back I have inflammation. I am waiting for next blood test appointment.
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World CP Day on Sunday 6 October 2024
It is World CP Day on Sunday 6 October. Wishing everyone a happy day celebrating all the amazing individuals of this CP online community, and the worldwide CP community!
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I'm a disabled beauty Queen raising Awareness of Cerebral Palsy
“In pageants, beauty queens don’t speak about disabilities or health conditions. But that’s not real. I want to show that this happens, and we can be a part of something.” One of the reasons I had to leave school was because of negative attitudes. Through primary school, I used a lot of different aids and was constantly in…
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Swimming Lessons, very poor self-esteem, very poor body-image & very low confidence
Hi Everyone, As someone who has C.P.: Cerebral Palsy and Swimming – Safety Training Awards, Program helps anyone who has this Condition with their Swimming Lessons. 🏊♀️ 🏊♂️ •Has in-depth knowledge on how Cerebral Palsy affects movement in Swimming Skills. •Overcoming these challenges when Swimming with this Condition.…
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Join us for the next CP Network meeting on Wednesday, 9 October, from 6 to 7 PM
I hope you can join us next Wednesday😀! We’re having an open house because so many people asked for it! It will be a relaxed and friendly meet-up, so come along and bring any topics or questions you want to talk about. Mark your calendars for Wednesday, 9 October 2024, from 6pm to 7pm. Looking forward to seeing you there!…
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Veezu partners with Cerebral Palsy Cymru for October Fundraising
Veezu partners with Cerebral Palsy Cymru Jack Price, Regional Director at Veezu, added: “We’re excited to partner with Cerebral Palsy Cymru and support the incredible work they do for children and families across Wales. Our team is proud to be part of an initiative that will make a real difference in the lives of those…
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Mowgli Street Food Cardiff Raise 75K for Cerebral Palsy Cymru
Mowgli Street Food Fundraisers The Cardiff branch of the popular Indian Street Food Restaurant has raised £75,026 for Cerebral Palsy Cymru to date. @SaraC_Scope
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how hard is it for a disabled person to get a skill worker visa?
Hello I have mild CP i can work and function pay bills and all that? I am lookin at the gov uk website now for a few days. what suggestions do you all have for me? I am open to anything you and everyone say or give me or info given. Cheers