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Do You Have Difficulty Having Sex Due to Tight Muscles?
No subject is off-limits for Sam at Inclusfit! This subject was brought up by a few of my PT clients. Those with spastic cerebral palsy have high spasticity in their muscles. This means we get tight muscles very quickly and this can also mean we get a lot of pain. This also limits our movement & what we can do. Those with…
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Meet the Author-Samantha Maxwell. CP Isn't Me and other ventures
Samantha Maxwell-Interview with Sara Edwards-Cerebral Palsy Specialist. Samantha Maxwell from Wrexham is the author of CP Isn’t Me and Disabling Ableism. I caught up with Samantha to discuss the inspiration behind her writing, the impact of her books and what the future holds. Samantha has a mild form of cerebral palsy. In…
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Share your transport experiences in the National Accessible Transport Survey
You are invited to take part in the National Accessible Transport Survey and share your experiences of transport and travel. We will use the findings to tell the Government, the transport industry, the media, and the public about the state of transport accessibility, and why it must improve, so that disabled people can…
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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at to attend this event. I recently interviewed Jan where we discussed her…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Exciting research project. Ulster University. Your Voice on Pain. Take part.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someone’s life. It can lead to feelings of…
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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral Palsy Lucy JamesCerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
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Living Healthy Lives: Exploring the effects of growing older with cerebral palsy
For the last 2 years, Scope has been working with Dr. Sonali Shah and the University of Nottingham to understand the effects of cerebral palsy (CP) as people grow older and understand their needs and access to health services as they age. The project was the first and largest UK study about ageing with CP and healthcare…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Our Next Welcome Café is Monday 14th of April 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
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In case You Missed it. Spasticity Management with Dr Val Stevenson and Bobath Video
Hello from The Bobath Centre, We wanted to take a moment to thank you for being a part of our Adult meetup with Dr Valerie Stevenson about managing spasticity in CP. We are grateful to Dr Stevenson for her time and are pleased that you were able to join us. The feedback we have received has been very positive and we hope…
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronic…
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Struggling with employers
This discussion was created from comments split from: Erection Help & Advice Wanted.
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New member
My daughter has CP is hypotonic, has a learning disability and is on the autistic spectrum. I would like her to be able to join here with her own account. Is this possible. She could do with making some friends outside her very small circle of existing ones.
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Functional Electrical Stimulation (FES)
Hi I have my first appointment for this soon & wondered if anyone with CP Diplegia has tried it & how it works for them? I'm in my late 50s & can't wait to give it a try. I'm hoping for no more scuffing of toes & the ability to walk outdoors with more confidence even if I still have to use my sticks or rollator.
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For people with cerebral palsy, sympathy is slightly strange
From The Business Standard For people fighting cerebral palsy, sympathy may feel like underestimation; even when it stems from goodwill When I was 12, my classmates were assigned a task in geography where they had to colour the globe they drew. But I was excluded. One of my classmates pointed it out: "Why isn't Onira…
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Foundation: Sutton Announce New Cerebral Palsy Team
Sutton United Foundation is very excited to announce that we are extending the Sutton United Disability Section in 2025/26. Our 3 Pan Disability teams will be joined by a Cerebral Palsy football team, with the plan then to enter the CP National League in the first season. Glen May, the new Head of CP Football said “Really…
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Cerebral palsy runner from Southampton to take on London Marathon
From Daily Echo A runner with cerebral palsy from Southampton is set to take on the London Marathon while attempting a new Guinness World Record. Gus McKechnie is a qualified American football referee and will be using some of his own kit for his record, running as the fastest CIH athlete dressed as a referee. Gus, who…
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Sugar Kayne Radio: A Journey of Resilience, Passion and the Power of Music
Sugar Kayne radio. A creation by Matthew Kayne. Since its launch, Sugar Kayne Radio has grown into a favourite for worldwide listeners of RnB, Club Classics, and feel-good hits. Hosted by DJ Sugar Kayne, also known as Matthew Kayne, Sugar Kayne Radio is more than just music- it's a lively community, where listeners connect…
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Next Steps
Hi everyone, This is just a post to learn more about other's experiences and get any advice that this lovely community can provide us with. My brother who is about to turn 19 feels that he has no community or friends. He has CP and fully wheelchair bound. No matter how much support that I can provide, he still needs…
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‘Out Of My Mind’ Director Amber Sealey And Co-Star Luke Kirby Hope Movie Helps Normalize Disability
Article from Yahoo News The Disney+ original movie Out of My Mind, based on the book by Sharon M. Draper, is about a girl with cerebral palsy who cannot speak. In putting Melody Brooks (Phoebe-Rae Taylor) on screen, director Amber Sealey hopes to show viewers they can talk to people with disabilities, even if that…
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Positive Swimming Experience with My (CP)! 😃
Hi Family & Friends, This MONDAY has being My last Adult Swimming Lesson, (using Halliwick Method), before the Easter Holidays! In My 3 Week Easter Holidays, I'll try to visit the Hornsea Hub to practice My new Swimming Lesson Skills, too! For all info on these Lessons please see the Link (below), thanks! 😃 👍 🥰 💖 # Thanks,…
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Reconnection with My College Friend! 🥰
Hi Everybody at Cerebral Palsy Network, I’d really like to reconnect with Claire Dalgety (lives in Goole) because when I was at Beverley College with her, I couldn’t see the Wood for the Trees! 🌳🌳🌳🌳 I wish I’d partied 🎉🥳🎉 more, studied less, I also wish I’d kept in touch & made more Friends at the Beverley College, too!…
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Adaptive Yoga and cerebral palsy
During the pandemic, I wanted to try something different, outside of my comfort zone. I found Adaptive Yoga. Yoga has so many benefits, limited mobility is not a barrier. Give it a try. Balance Isn’t About Pushing Yourself — It’s About Supporting Yourself. Hey there, If you’ve ever felt unsteady standing, or anxious about…
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Ice skating and cerebral palsy
Evie's Ice Skating Journey: Cerebral Palsy Awareness Month As part of Cerebral Palsy Awareness Month, we're delighted to share Evie's ice skating journey! ⛸️ Ice skating has given Evie the opportunity to do a sport which we never thought possible. Evie has gained confidence and the ability to push herself and improve at…
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Teenager with cerebral palsy finds voice through his eyes
From Sky News Jonathan who has cerebral palsy was told he had learning difficulties and wouldn’t learn to read or communicate. His mum helped create a system where he can speak through his eyes and he is now a published author. Watch Jonathan's interview
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Life Reimagined is a free 4-part wellbeing series for parents of children with additional needs
Life Remagined | Almond Tree The Almond Tree Foundation About the Series Life Reimagined is a free 4-part wellbeing series for parents of children with special or additional needs. In this series, we’ll explore what becomes possible when we look beyond the daily demands of parenting and reconnect with the wellbeing,…
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Barriers to accessing education-Free drop session for parents of disabled children. Wales
FREE for Families in Wales Barriers to Accessing Education Is your child struggling to attend, or maintain attendance in school? Join our drop-in session for parents; a relaxed and supportive space where you can seek advice, speak to others, or simply listen. What’s It About? • Guidance and Advice: Get practical tips on…
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Can My 12-Year-Old Nephew with Severe Cerebral Palsy Get Medical Support in the UK?
Hi everyone, I am seeking advice on whether my 12-year-old nephew with severe cerebral palsy can get medical treatment in the UK. He was diagnosed at birth, but unfortunately, he has never received proper medical care. He cannot speak, stand, or walk.
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cp
i have cerebraly palsy i am 56 looking for friends . i sometimes i pain in the right hip wondering if anyone else get this thank you your time
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Research into Quality of Life and Physical Activity in Children and Young People with CP
Research Opportunity This project aims to explore the link between physical activity and quality of life in children and young people with CP (ages 8-17). The study involves a short survey where children and young people with CP provide insights into their physical activity levels and well-being. Parents and guardians are…
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Forty Years Celebrating Disabled Artists Across the UK
Let's keep raising awareness during Cerebral Palsy Awareness Month. An artist who has quadriplegic cerebral palsy is one of many showcasing her creativity at a 40th anniversary festival to celebrate disabled and deaf artists. BBC Celebration of Disabled Artists
