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Centre for Disease Control (CDC) in the U.S.A Adds Cerebral Palsy To Autism Tracking Effort
by Michelle Diament at Disability Scoop For the first time in over a decade, the Centers for Disease Control and Prevention network that tracks the prevalence of autism is expanding to include another developmental disability. The agency said that five of its Autism and Developmental Disabilities Monitoring Network sites…
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Exclusive Pineapple Dance Studios Event!
Let’s dance! The world-famous Pineapple Dance
Studios is hosting a very special event for UP, and legendary Pineapple founder
and CEO Debbie Moore OBE will be joining us for it. Dance can be inaccessible for
people with CP, which was the case for Leo. However, during Covid, Leo joined
Pineapple online and found somewhere…
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Upset by neighbours
Hi all, I live alone and have CP which affects my left side. I lost my Motability car in 2018 after losing my PIP appeal. I eventually got it back in 2021 (full care/mobility rates). After Covid I tried to get another Motability car but was told there was an 18 month waiting list due to the worldwide microchip shortage. My…
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Cerebral palsy and ableism: A peer-led research project
This research project supported by Cerebral Palsy Support Network (CPSN), Scope and Deakin University, seeks participants with lived experience of cerebral palsy in Australia and the U.K. Are you an adult with cerebral palsy? Have you experienced ableism? Ableism is a form of discrimination, like racism and sexism. It is…
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I've Realised It's Okay to be Different #WorldCPDay
“I spent a lot of years trying to identify myself as not being any different because I wanted to fit in.” This #WorldCPDay, Jorden shares how negative attitudes, and trying to get into work, led him to create his brand and music career. Jorden ‘Akes’ James is a 30-year-old independent musician with cerebral palsy from…
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Happy World CP Day 2023!
Happy World Cerebral Palsy Day! There are over 17 million people with cerebral palsy around the world, and every single one of those people is a reason to strive for change. So thank you for your support of World CP Day over the years. It has helped to raise awareness about the issues our community faces and to drive…
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Tea with Two Sugars Premiere
The Being Heard Music Group from Cerebral Palsy Midlands has produced a musical film called "A Tea with Two Sugars" with the help of Musical Director and tutor Richard Ganner and Craig Keogh. The film is a celebration of diversity & inclusion, and it tells the stories of the group members' unique experiences living with…
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OCTOBER NEWS FROM CEREBRAL PALSY MIDLANDS
OCTOBER NEWS FROM CEREBRAL PALSY MIDLANDS Will you wearing Green tomorrow to raise awareness for 'World CP Day'? Find our more World CP Day Speaker at CPM Friday 6th October 2023 1pm - Ruslan Vasyutin will be a guest speaker in the afternoon talking about the challenges he and his family faced having a daughter with CP and…
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Poems for World Cerebral Palsy Day
Poems for World Cerebral Palsy Day World cerebral palsy day is the day that we celebrate the great achievements and accomplishments our people with cerebral palsy have made. I commend all the work that people with cerebral palsy the wonderful work that are doing together. Our voices will be heard as one and remembering we…
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Gaming
Hi my partner has Cerebral Palsy down left side of body and is struggling to hold and use PS5 controller due to it being on bigger side. He can use his left hand to use left analog stick on controller but can’t play for long as hurts his hand. He’s tried a one handed ps5 controller from evil controllers but that didn’t…
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Going Green 2023 World CP Day
Friday 6th October is World CP Day. This year we have arranged for the following iconic/public buildings to be illuminated in Green to raise awareness of the 17 Million people in the world living with CP. We have really struggled to get places to support our campaign this year, despite having been working hard on it since…
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Ideas to inspire you this World CP Day
People with cerebral palsy are natural problem solvers. So we need your expertise. This World CP Day we are calling on the community to share ideas of a new product or service to improve the lives of people with cerebral palsy. Submit an idea A holographic communication device to help people with CP communicate with…
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Disability Action Plan and Cerebral Palsy
There is no specific mention of Cerebral Palsy (CP) in the Government's Disability Action Plan. There are 130,000 to 135,000 adults living with CP in the U.K. Numbers comparable to those living with MS and Parkinsons. Yet there are very few specific services for the CP community. CP is a life-long condition! Have your say:…
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UP- Adult CP Movement
Hello! I thought I would post a link to the Adult CP Movement- I apologise if it has been posted and website before. The site has loads of information about daily living as well as information about campaigning for specialists adult CP services across the UK: https://upmovement.org.uk/ I hope this is helpful for some of…
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my name is JonnyT! Can anyone help with a question re; CP suitable residential settings for son?
I'm the father of three boys, one of whom has cerebral palsy and is profoundly deaf (he has a twin who's able-bodied and severely deaf). The twins were very premature; 24-weekers in fact. But that was 21 years ago and they're now adults, which is what brings me here, I guess. I share care of my son with my ex-wife. As…
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Tea with Two Sugars
[Advert for the film "Tea With Two Sugars" Pictured top row (From left to right): Joe O'Neil, Samantha Boswell and Vicky Lilly. Second row: Gary Ironmonger, Leanne Hodgson, Emma Millar, Ian Bridgewater. Third row: Gary Clifton, Nathan Tamangi and Kerrie Taylor.} Here is the NEW Trailer to "A Tea and Two Sugars" film…
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Potential CP diagnosis
Hi all, I am new around here. My apologies for the long post but there's a lot I want to get off my chest if you'll oblige! I have a wonderful, smiley, happy 7 month old baby boy who we were told this week may have CP. We were only told this was a possibility at the start of this week and it has come as a bit of a shock -…
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Research study Cerebral palsy and stigma
Do
people with cerebral palsy experience stigma and discrimination? Are there
misconceptions about cerebral palsy? How does that impact people with cerebral
palsy? To answer these
questions, we are inviting adults with cerebral palsy aged 18 or older from the
UK and Ireland to fill in an online survey about their…
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Mammogram
I went for a mammogram last and the nurse that did it asked me if I would get over my illness I had already told her I have cerebral palsy. I was quite surprised at this comment from a nurse
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I desperately want a girlfriend - but falling in love could cost me my benefits
Why should I have to ask somebody I love to be financially responsible for me? (Picture: Joe Hardy)© Provided by MetroI have never had a romantic partner. In my entire 28-year lifespan, the idea of forming a romantic relationship has failed to progress beyond the stage of me merely imagining what that might look or feel…
