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sport
I did sport in para-swimming in 2008 until 2012 I was part of a national para-swimming team in MontrealI participated in several competitionsI was classified s7 sb8 sm7 because of my cerebral palsyI won 12 medals I really like it because I allow my whole body and my heart to work I gave up para-swimming because I injured…
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spastic diplegia
I have been followed by an orthopedist since the age of 2I had surgery at the age of 9 on my right footHe pulled my achile tendon so I could put my foot on the floor But, he couldn't do much to my left arm which is bent 15 degrees and it is shorter than my right arm.He checks my posture and my walkingHe looked at my legs,…
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PVL
Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!
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CP Sport Hosting a Free Race Runner Have a Go Day!
It is on the 28th of April at Paula Radcliffe Stadium, Loughborough University. There are two time slots available 11 am-1 pm and 2 pm-4 pm. And it is Free! Please find the sign-up link here:
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Scots woman with cerebral palsy aims to make history at London Marathon
Dr Julie McElroy, from Glasgow, is aiming to make history at the marathon by becoming the first female frame runner. [Dr Julie McElroy in her race runner with her coach on a blue athletic race track] A Scots woman with cerebral palsy is aiming to make history at the London Marathon by becoming the first female frame…
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Cerebral Palsy Awareness Month 2024
In March 2024, individuals living with cerebral palsy (CP), along with their family members, friends, and dedicated activists, unite to champion the cerebral palsy community. This month-long initiative is a continuous endeavour to raise awareness about cerebral palsy. To commemorate Cerebral Palsy Awareness Month, we are…
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Brilliant CP Awareness Month, on the Scope Social Event for March
I just want to say thank you to Richard Luke and Abdi Gas, from Scope for arranging 3 brilliant speakers for the online Scope Social evening, on Wednesday, to celebrate CP Awareness Month First we heard from Dr Sonali Shah about her research projects, exploring CP and womens sexual health and reproductive health and…
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World Health Day Special: Join Our CP Network Event on April 10th (6pm to 7pm)
Join us for our CP Network session on April 10th, where we'll be celebrating World Health Day! We're excited to announce that Sam, a highly qualified fitness professional with extensive experience as a group exercise trainer, presenter, and instructor, will be joining us. She'll share her insights on the importance of…
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Looking for residential care tips for my 21-year old son with cerebral palsy and learning needs
I'm the father of three boys, one of whom has cerebral palsy and is profoundly deaf (he has a twin who's able-bodied and severely deaf). The twins were very premature; 24-weekers in fact. But that was 21 years ago and they're now adults, which is what brings me here, I guess. I share care of my son with my ex-wife. As…
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feeding tubes - advice
hi i have a feeding tube all my life. my current tube has been in since 2017. what is the lifespan for a tube in an adult body? - in the 4 years i had infection after infection and sometimes it feels like it get stuck inside, get a growth on the site (I can keep going) but before October 2016 I HAD NONE OF THESE…
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Are You a Disabled Job-Seeker?
Are you #disabled? Are you #neurodivergent? Are you looking for work at the moment, or have changed jobs in the last two years? Can you be available on Thursday 28 March from 1000-1130? If you are disabled and/or neurodivergent and have current or recent experience of jobseeking, then Business in the Community (BITC) wants…
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Lower Back Pain and CP with Bobath
We hope you enjoyed our CP Awareness Month Special Adult Meet-Up with Bobath Ambassador Dr Lin Berwick MBE. If you weren’t able to be there, our next Adult Meet Up will be on Friday 26th April at 3pm. We’re returning to our very popular series on pain management with Bobath therapist Rajkumar Rajan and, next month, he’ll…
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Hi, my name is katandy18! I support my brother who has Cerebral Palsy
Hi all, I support my brother who has Cerebral Palsy. He's now in his early 60s and after years of rather robust health, is experiencing some physical deterioration plus other health issues and I feel it would be useful to touch base with people who might be having similar experiences.
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BLACK COUNTRY BGT STAR UNVEILS HER AUTOBIOGRAPHY : Eva Abley
[Picture off Eva on stage at Britain's Got Talent. Eva has blonde hair has her arms out-stretched and is wearing grey jeans with a white T-shirt and grey jacket] Eva Abley, the 14-year-old Black Country comedian with cerebral palsy, won the hearts of millions when she stormed into the final of Britain’s Got Talent in 2022.…
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How I'm Becoming Proactively Fearless With Cerebral Palsy
By Lydia Flores For me this year, the focus of Cerebral Palsy Awareness Month is the importance of being “proactively fearless.” I define this as being active and especially fearless in my pursuit of understanding and resources, as well as being proactive and fearless in pain management, in facing my emotions and being…
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Hi, my name is Nsubugaaziida49!son is frustrated as he wishes to communicate but is not understood
Hi Please call me Aziida. Iam happy to join this group. It is a very resourceful group.Iam eager to share and learn alot.
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Hello all! I am a working mum of a 10 year old son with cerebral palsy
I am not sure if this is the right place to ask this and I apologise in advance if it is not.Hopefully, I would get help with sending my question to the appropriate quarters. My family only recently moved to Chatham, Kent, still struggling to settle in and getting used to the UK generally. I want to know if there are…
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Cerebral Palsy. How to Be My Ally. Channel 4 Series
‘Everyone with Cerebral Palsy is completely different’ How to Be My Ally is a three-part series that gives us all the tools and insights to be better allies to people living with disabilities. The series includes discussions on Inflammatory Bowel Disease, Cerebral Palsy and Learning Difficulties. In this episode, Joe,…
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Hi, my name is LauraAD! Son with CP and PMLD is getting more sickness bugs as he gets older.
My 26 year old son has CP along with PMLD and is non verbal so I'm asking questions on his behalf. I'm not sure if this is the right place to ask but I'm interested in how and when CP ages an ibdividual. My son has had far more colds and sickness bugs in the last seven years than he ever had as a child. I'm wondering if…
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International Women's Day 2025 and Cerebral Palsy
International Women's Day (IWD) is a global holidaycelebrated annually on March 8 to commemorate women's cultural, political, and socioeconomic achievements. It is also a focal point in the women's rights movement, bringing attention to issues such as gender equality, reproductive rights, and violence and abuse against…
