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Cp meet ups
Is there any groups around north Devon like for people with a physical disability ? Thanks
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I don't have CP
I was "assumed" to be suffering from CP by a hospital consultant Just because my mobility is so poor - a urology consultant put me down on my medical notes (dating back 18 months) as suffering from CP. He clearly was not aware that CP can't be developed later in life (I am almost 60) but still has NOT "apologised" for this…
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UCL Study Exploring parental understanding of the diagnosis of Cerebral Palsy
You
are being invited to take part in an MSc research project exploring the
education and understanding of parents caring for a child with a diagnosis of
Cerebral Palsy. Please tell us your experiences and complete the survey
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Bobath June Meet-up Foot care and CP
Our monthly adult meet-up is back with a special guest, Mr Barry Francis. In this session, Mr Barry Francis (podiatrist and podiatric surgeon) will share his knowledge on foot care in CP. Book for FREE here: http://ow.ly/U36k50Okieh
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Scope and Cerebral Palsy (CP) Research Project
Scope is working with Humanly (www.designhumanly.com), a team of researchers and designers, to better understand the views of people with Cerebral Palsy and their families and carers. We want to involve lots of different people, whether or not you have contacted Scope, worked with Scope or used any of Scope's services. We…
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I wasn't expected to survive to adulthood - now I'm competing in the Great North Run
(left to right) Robert Bate and his friend John Gilbert (Image: Irwin Mitchell)A man assaulted so severely as a child doctors did not expect him to survive will take part in one of the most famous runs in the world. Robert Bate, 28, defied the odds to even reach adulthood and will now compete in this year's Great North…
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England Para Lions player Aaron Lucas interviewed as part of Mental Health Awareness Week
As part of Mental Health Awareness Week, we sat down with a number of our Para Lions to discuss how they manage their feelings of anxiety. Each year, Mental Health Awareness Week has a focus area and this year it is anxiety. Feelings of anxiety can appear at any time and whilst it is a normal emotion, sometimes it can get…
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Disabled Virgin Mary in Peterborough Cathedral art exhibition
Image caption,The pictures of the Virgin Mary as a disabled woman are believed to be first of their kindBy Emma Baugh & Pete Cooper A depiction of a Virgin Mary in a wheelchair is among artwork featuring Christian figures with disabilities. "Disability and the Divine" has opened at Peterborough Cathedral in what is…
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CP and pain
Hi I’m knew to the discussions my names Naomi and I’m 34 mum to a 4 year old I was born with mild CP (cerebral palsy) affecting my co-ordination and balance . To a lot of people or those that don’t know me ,do not see any physical disability but I do have my struggles I just wondered if anyone can share any experience with…
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Hemiplegia: Being Half Disabled
Scarlett Murray talks about her experiences of living with hemiplegic CP in her most recent blog post. [A woman with brunette hair sitting with her knees tucked in towards her chest] Hemiplegia: paralysis of one side of the body. “Hemi” – Greek for half. My hemiplegia is a form of cerebral palsy. I have left-sided…
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Hi, my name is Mollie! I’m 26, I have quadriplegic Cerebral Palsy I have 24 hour care
I’m 26, I have quadriplegic Cerebral Palsy I have 24 hour care from carers . I feel isolated and I’m fed by a tube. I don’t know anyone who else is fed by a tube .
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Straight Talking group – my journey with Dundee University
Shared via our friends at CP Scotland. The University of Dundee has a long history of research into Augmentative and Alternative Communication (AAC) – ways to support communication for those who have difficulties using speech. AAC user Alan McGregor writes about he got involved with Dundee University and their Straight…
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The strength, mentally and physically, it takes every day to live a life with CP is immense
Laura Leeson lives with cerebral palsy and talks to The Irish Times about her experiences and thoughts for the future. I read somewhere, “there is no greater disability in society, than the inability to see a person as more”, but what about the inability to see yourself as more than the disability? I have personally…
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My 5 year old needs splints but unsure what they are and if they do any good
I recently went to an appointment with my son jake to see his specialist. He has spastic diplegia but thankfully can walk. He falls a lot because of his tightness. He is 6 next month and currently wears pierdios which he has been wearing for about 3 and a half years. When we seen jakes specialist she examined him and said…
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Online International Cerebral Palsy Research Symposium on Friday 19th May
A flyer detailing an online International Cerebral Palsy
Research Symposium on Friday 19th May between 11-12:45 on MS Teams. Join a FREE online symposium to hear the latest research on physical activity, sleep, mental health, SDR outcomes, transition and adulthood in people with cerebral palsy. Friday 19
May
Online
MS…
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Ataxic Cerebral palsy
Hi all, My name is Brenda and I'm 59. Recently after obtaining my old medical records. I have only very recently discovered that I was diagnosed in 1966 with having mild ataxic cerebral palsy. My parents (both deceased) told me I had mild cerebral ataxia which I now know was not the case. I had my last assessment at the…
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Cerebral palsy
Hi I live in. wales and have a Zimmer frame supplied to me by NHS England, because at the time I was in hospital with a broken leg. NHS Wales do not want to supply rubbers for the Zimmer frame because it has come from England NHS the Zimmer frame has not got a Welsh label on it I have now got rubbers on now but I have had…
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PA shortage leaves disabled people 'stuck at home'
Disabled people are being shut out of society because of a lack of personal assistants, it has been claimed. Disability Wales said many people with disabilities were being left without the support needed to live as independently as possible. Shahd Zorob, who has cerebral palsy, has had problems recruiting PAs and said the…
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Making Work, Work for You
Work: what are the barriers, and how can you overcome them? Work is essential to our sense of well-being and purpose, as well as being a necessity for achieving a better standard of living. Yet the world of work can often be very challenging for people with CP. Richard Luke is Scope’s Programme Lead for Cerebral Palsy. At…
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Feedback on Education Support and Services
Children and young people with cerebral palsy and their families are under-represented in current policy initiatives – both below offer a chance to contribute to the policy dialogues currently happening. Feedback on Education Support and Services: On behalf of the Department for Education, the Council for Disabled…
