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Virtual Reality Research for people with involuntary movements
The PRIME VR Team are inviting potential participants to join a study to evaluate commercially available virtual reality (VR) systems and hand controllers for a project called PRIME-VR2. The team are looking for people (older than 16 years of age) with hyperkinetic movement disorders (dystonia and other involuntary…
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Activities for CP in winchester Southampton area
Hi everyone So looking to move to Hampshire and need activities for CP In Southampton winchester as will need to meet people can able bodied activities is well open to people with a disability. Molly
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Subsidised Places at AAC International Conference in Leeds
Due to successful grant funding, we still have approximately 30 subsidised places available for AAC Users, their accompanying Personal Assistants, and Parents and Family Members of AAC users to attend the Communication Matters International AAC Conference this September in Leeds. Please email the office at…
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Carpol Tunnel Surgery
I have cp and use crutches to walk and about to have carpol tunnel surgery for the 2nd time in a year . I can't walk without crutches and find recovery hard. I have people to help but take away what little independence I have for a few months . I also have permanent nerve damage in hands from crutches. My cp had always…
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Hi, I'm mimiof4! I'm looking for advice about living with CP and how to deal with worsening pain
I’m looking for some advice about living with cerebral palsy and how to deal with my pain getting worse
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Bobath Monthly Adult Meet-Up Labels, Language and Perceptions
Our monthly adult meet-up is back with a brand new focus on labels, language and perceptions with Ilaria Naef About this event Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at home. Led by our Adult Bobath…
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Potential Barriers to Participation in Sport or Activity
Today we invite you to take part in our biggest survey yet. This project, which has been developed by the University of Nottingham in collaboration with CP Sport, aims to identify potential barriers that play a role in inhibiting sporting participation. Following the research, we hope to fill those gaps to make physical…
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cerebral palsy. Did anyone go to the Medicine and Me conference?
Did anyone go to the Medicine and Me conference for Adults with Cerebral Pasly?
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Medicine & Me Conference at the Royal Society of Medicine
Medicine & Me Conference at the Royal Society of Medicine, London 2pm – 5.30pm, Thursday 7 July We are delighted to invite you to this ground-breaking event at the Royal Society of Medicine in London, which will bring together clinicians, researchers, and members of the community of adults with cerebral palsy, to explore…
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My hip pain with CP seems to be getting worse with age
I stumbled across this site as I was searching hip pain with CP. Seems to be getting worse with age (yay) I thought I'd join as I've never thought of it before! It's a nice idea to have a support network of people who can share experiences!
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CP and bladder control issues in later life?
I am a 55 years old man with Athetoid cerebral palsy (also known as "dyskinetic cerebral palsy") and I use a powered wheelchair to get around. I have always had good bladder control, however is recent years I have had increased problems with the frequency and urgency that I need to pee. My GP has tried several medications…
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Cerebral palsy adrenaline rushes…
I’ve always wondered if it’s normal for most people with cerebral palsy to get an uncontrollable rush in our bodies? Especially during happy or surprising moments. I don’t purposely do this. I’m thinking it’s something with adrenaline?
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Hi, my name is MaryConlan! My son has CP
My son, Damian, has cp. he is now 53 years old. I hope you are all feeling good this evening.
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Hi, my name is Chloe I have CP
Hi I'm Chloe I have Cp which affects all four of my limbs which means i am a wheelchair user and reliant on 24hour care im here to meet other people and learn more about CP as an adult, does anyone ever wonder if weird problems they have are to do with CP? , even though they are told its not by medical professionals. I do…
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Dad to be
Hi I'm new to this forum and was hoping some of you may have advice. My partner and I are expecting our first child in October. I have relatively mild CP which mainly affects my walking and balance. I walk with a limp and have some struggles with balance on uneven surfaces etc. Im generally fine on stairs but struggle if…
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Free Specialist Therapy for people Living with CP
We are asking you to sign a petition that free ongoing specialist therapy for people living with Cerebral Palsy should be provided. Cerebral Palsy is a life-long condition, support is needed throughout a person's life. More info here: bit.ly/freetherapyforCP Please share! #freetherapyforCP
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Project Assemble by Voiceitt
Introducing Project Ensemble by Voiceitt! Voice recognition technology should include everyone. Don't you agree? With Project Ensemble, we are creating a database of non-standard speech to perfect our next-generation app, which will support spontaneous and continuous speech.This is your opportunity to be part of the future…
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Hi, my name is molly
I am 25 and have cerebral palsy on left side I am pleased to be able join this group looking forward to getting now you.
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Cerebral Palsy & Movie Theaters
Hello, I’m 25 and I have mild cerebral palsy.I am a wheelchair user. I’ve been knowing this guy for almost 2 years . We recently started back talking to each other. I really like him. He seems to like me. He invited me to the movies but I declined because of family issues. But mostly I declined because of my startle reflex…
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Cost of Living for adults with CP
I had feed up with people who ask me to give money to parents who have Cp children. I am 56 with Cp. I am not coping well with the price of Gad and Electricity, but there is no help for me. I worked for Scope for 15 years and they retired me 19 years ago.
