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Hi 26 With Cp I want to talk about dating and Sex
Hello, My name is Samantha. I am 26 with mild spastic diplegia. I walk unaided. I am curious to know what it like dating and being in a relationship. I identify as Queer. I really feel this is an important topic for adults with Cp to talk about. Seeing as all the research I've been doing, hasn't really shown a fair…
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Creating a wooden toybox for someone with CP
Hello, I am making a wooden toy box for a boy with CP. The goal of this toy box is to make it as risk-free and easy to use for the mother and possibly the boy in the future. My current concept and ideas to achieve this is to have rounded & sanded edges so that in the case of the boy falling or have CP related symptoms then…
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Hi, I'm Emma. My 4yo daughter has CP and wants to be like her non-disabled friends.
hello all I have two children, my daughter who is 4 and my son who is 3. I had my daughter at 32 weeks because of placenta abruption, from this we found out she has hypoxic brain damage and cerebral palsy which effects both legs and her arms (but mainly her left arm) we are so very lucky that she is so strong and…
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CP Sport create Frame Football resource for new England Football campaign
[Child using a walking frame with a football at their feet] England Football, The Football Association’s new home for participation and the grassroots game, has today launched Football Your Way, a new campaign to help disabled footballers return to the sport and reclaim the moments they have missed, as Covid-19…
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Hi, I'm Sahrash! Opinions wanted about how useful a walking frame is for my son.
Please can someone advise from their past or current experience will a walking frame help overtime? My son is 4 and a half and doesn't move at all in the walking frame which he uses at school only.
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My grandson has Lennox Gastaut and CP. Dr has recommended Corpus Callosum surgery. Anyone had this?
I am Jojos grandma and he has Lennox Gastaut and Cerebral Palsy. He has continuos seizures and we have tried various combinations of meds with no luck. After several VEEG and MRI’s his Epileptologist has recommended a Corpus Callosum surgery. Jordan is non verbal and becoming a teenager this month. I am here to read, learn…
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Hi, my name is katy94! Has anyone else had other diagnoses as well as CP?
Hi there scope, my name is Katy and I have left hemi, I’m 26 and had this all my life. I’ve recently had a baby and since found that my problems seem to have worsened. Has anyone on here had any experience with this? I’ve only just found out about scope and I think it’s amazing that I can find people on here who have…
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Hi, my name is tinathomas! Any ideas how to help our daughter cope with communicating with friends?
Hi I have a daughter with cp she is 28 years old we are having problems with her she has a mobile phone and if some of her friends don’t answer she gets angry and cries and swears a lot it can go on for hours tI’ll the person answers her wondering if any one has any idea to help us
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Is my intuition right?
Hi there, I just had a question regarding aging with CP and if it’s “normal” for your body to become more spastic as time goes on. I’ve recently been having small accidents. I have seen my primary care doctor and my neurologist and they recommend protective underwear. My intuition is telling me that I may be developing…
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Tiredness and Frustration with CP
Hello! I am 21 and have mild CP. (that mainly impacts my left side) I find that at around 6pm, no matter if I have had an active or relaxed day my fatigue becomes so bad that I can barely keep my eyes open. I try and maintain an evening routine, but trouble sleeping due to pain in my legs can prevent it. I have also found…
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I am 19 and I have cerebral palsy
I am 19 and I have cerebral palsy. Throughout lockdown I have really struggled with the lack of socialising and more importantly with my mental health! Recently, my stiffness has got really bad and I am not sleeping very well due to it. Can anyone recommend anything to help ease it as I'm getting really frustrated with it!!
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Hi, my name is olivia_99!
I am 21 and have Cerebral Palsy and Cerebral Visual Impairment and it’s mild. I’m wondering if anyone wants to talk about CP or what your experiences are?
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Hi, my name is LibbyJ!
Hello,. I’m looking for advice. I have a 19 yr old daughter who has an EHCP in place. She is profoundly dyspraxic but every physio she has been under has suggested that she may have mild cerebral palsy. We’ve never investigated this avenue as with her other needs/ diagnosis, she was getting the correct amount of support/…
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Aging with CP... suggestions needed
Hello, Apologies if this is the wrong place to ask. I'm new here. The wealth of information is a bit overwhelming and I can't see the wood for the trees. So it's a bit of an essay but here goes... I'm 42. I used to say I had mild CP, but seriously... the pain, constantly throwing coffee everywhere (spasms), having to…
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Mild cerebral palsy and tummy pain
Hi, I’m looking for some advice. I have a 10yr old son who was diagnosed with mild cp as a toddler. He has a very slight left sided weakness and occasional leg pain, but it’s almost invisible to anyone else. Since he was able to speak, he has complained of a “sore tummy” at bedtime and has difficulty getting to sleep.…
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Research Inquiry
Hello, My name is Nadia (Removed surname) and I have cerebral palsy. I am a masters student at the University of Oxford studying the lives of physically disabled children from 1920 to 1940, specifically examining their identity, representation and agency. I am looking for first-hand accounts of children who may have used…
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Cerebral Palsy Sport launches new Club Finder as the nation returns to play
Cerebral Palsy Sport launches new Club Finder as the nation returns to play As the government eases lockdown restrictions for sport, more people with cerebral palsy will be able to find local sport and activity clubs through a brand-new online club finder. Cerebral Palsy Sport (CP Sport) has launched ‘Club Finder' on its…
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Cerebral palsy study for children aged 10-16
Hello everyone! I'm posting on behalf of our research team in Oxford. We are currently running a research study in Oxford for children aged 10-16 years old with cerebral palsy. The aim of the study is to determine if the combination of a non-invasive brain stimulation technique (called tDCS) and physical therapy can assist…
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Network CP Survey - win £50 for sharing your thoughts.
Network CP is a special interests group for the Cerebral Palsy community and their families in England and Wales which will help Scope shape various strands of its work. We would like to work with you to understand your needs better. This survey will only take 5 minutes of your time and by completing it you influence and…
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Post 16 transitions for young disabled people
Educational Pathways and Work Outcomes of Disabled Young People is a 3-year research project funded by The Leverhulme Trust. We are based in the Department of Sociology at the University of Warwick. Our aim is to explore the factors that lead to disability inequalities in educational and occupational attainment in England.…
