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Hi, I'm Sahrash! Opinions wanted about how useful a walking frame is for my son.
Sahrash
Member Posts: 5 Listener
Please can someone advise from their past or current experience will a walking frame help overtime? My son is 4 and a half and doesn't move at all in the walking frame which he uses at school only.
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Replies
If I could just ask a few questions to help us better offer support, was your son given the walking frame as a result of an assessment by a physiotherapist or similar? And if so, what was their advice about long-term use?
Also, if you don't mind sharing, what condition does your son have that requires this aid?
Take care and I'm looking forward to speaking again soon.
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Yes the Physio and my son's doctor recommended the walking frame. So that he can build on strenghting his legs. Also to encourage my son to try and take steps.
My son was diagnosed when he was just under 2 with Spastic Celebral Palsy. This was confirmed through a MRI scan which showed PVL.
If you require any more information please let me know. Speak soon
Thanks for posting. I have CP too and when I was younger I used many types of walking frames. It is important that your son is helped by the physiotherapist and you to use the frame as you said by helping him to learn how to take steps. This needs to be done daily as part of his physiotherapy regime. so he gains muscle memory.
Specialist Information Officer - Cerebral Palsy
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We will start using the walking frame everyday now as I have brought this equipment home from school. How many hours in the day should he be in a walking frame? Is there anything else we can do to encourage him to stand or weight bear?
My son isn't getting much help from the Physio. They haven't seen him now over a year.
Specialist movement therapy UK, Childrens Physiotherapy (the-movement-centre.co.uk)
and
Holistic therapies to help children with movement disorders (cpotential.org.uk)
Specialist Information Officer - Cerebral Palsy
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Welcome to the community and thank you for joining us. How are you? I have Cerebral Palsy and used a walking frame for a short while when I was younger. Physiotherapy is really important as it helps with muscle memory and it's important to encourage walking in the frame as part of this. It's also important to make it fun and enjoyable though I appreciate at times this may be difficult. Please do ask any questions you may have and I am happy to try to answer. All the best, thank you.
That's perfect, I have had my little boy in the walking frame today. He started moaning after 15 minutes. I will start to use this consistently everyday for at least an hour a day. Thanks for mentioning a couple of organisations. I have just made contact with them.
Thanks for the reply
I'm good thanks and hope you are well too! It's very difficult to look after my little boy as he is getting bigger as time goes on. I will continue using the walking frame. At school he has his standing frame too. I want to start some physio on his legs by either massaging the stiff muscles or applying pressure. Is there anything in particular you would recommend? Thank you
I'm pleased to hear that you are well. I can imagine it must be difficult to adjust as your little boy grows but hopefully professionals will be able to support you with advice and guidance in relation to different challenges as they arise. I know when I was younger, and please can I stress this is personal experience and opinion, my Mum adapted and found ways around different things often through trial and error, finding what worked best for me as an individual and as a family. You know your son best and so with professional advice and your instincts, it's possible they will meet in the middle and you will find things that work for your son and you. Remember, no two people with CP are affected in the same way, we're a fantastically unique group of individuals
How are you and your family? How is your little boy getting on with regards to using his walking frame? Thank you.