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Cerebral Palsy Northamptonshire
Cerebral Palsy Northamptonshire provide subsidised social events for members and their families/carers each year. These range from trips to theatres, fun days, swimming and wheelchair ice skating.Grants are also available to help members purchase special items of equipment and financial assistance towards holidays. All…
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4 Ways that cerebral palsy has affected our lives
As part of Scope's content for World CP Day, one of the members of the Network CP Group has written about her experiences as a parent to an adult living with CP. The fact that Sandra has no speech affected her education because she was a ‘good girl’ and didn’t make a fuss her basic education at school was more or less nil.…
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Laboured breathing in adults with CP
Hi, I wondered if anyone has experienced or aware of any adults having experienced laboured breathing. My 53 year old brother has CP and dysphagia but more recently he has shown to have laboured breathing at times, almost trying to catch his breath. SaLT has assessed him and feels that it will be linked to him getting…
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‘My heart sinks when people say if you can’t get a job, be a carer’
Dr Lin Berwick MBE is a disability campaigner and author. She has cerebral palsy quadriplegia, became totally blind aged 15, has partial hearing loss and is a permanent wheelchair user. She has been looked after by carers for her entire life. Listen Here
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Sudden falls and changes
Hi all, Just looking for some advice. My sons has started randomly falling, crab walking (ie side stepping,) he tells me he's answered questions when he hasnt and is stammering like crazy. Is this "normal" in your opinion for a growth spurt or am I right to be concerned? We aren't talking little changes. It's all quite…
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Muscle strains among older people with CP
Hi I'm 62 and a lifelong hemiplegic who has only recently become aware that the term "cerebral palsy" best describes my condition . I've lived my life in denial so far, knowing that I'm physically handicapped but, unless people specifically ask why I walk with a limp, I like to pretend that they haven't noticed. I've…
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Relaxation and Breathing for Cerebral Palsy
Monthly Adult Meet-Up - Breathing and Relaxation Tuesday, 25 January 2022 at 11:30 Get Free Tickets
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Positive Thinking with Stephen Miller
Positive Thinking with Paralympian, Stephen Miller Sunday 6th February 2022. Online exclusive interactive session! Go into 2022 ready with a positive mind - your most powerful muscle is in your head! REGISTER at www.cpteensuk.org/events. Deadline: Friday 28th Jan 2022, midday. Stephen has Quadriplegic Cerebral Palsy and…
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Hi, my name is ummuabdullrahman! My child is suffering from CP
Hello my child is suffering from CP and my doctor ordered me to give my child a Botox injections so I need to know how there ifectiveness for experience from another who already taken this dose thank you
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Being a cerebral palsy ally
Being a cerebral palsy ally supports the cerebral palsy and disabled communities. Each individual with cerebral palsy is their own person and has their own story. Taking the time to get to know people individually is the first step to take in becoming a cerebral palsy ally. What is a Cerebral Palsy Ally? Cerebral palsy…
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Carers
hii my partner has applied for career allowance for myself and now his Universel credit has stopped what benefit would he be entitled to now or how does Smirnoff work many thanks
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New Member Here
Hi . I am a new member here and I’m hoping to meet new friends who may have something in common with me . I am in my 30s , single and have CP . Since the pandemic, I work during the day at home alone, and I don’t know when I will get back to work in the office. Life has changed a lot in a short time, and so I’m hoping…
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Pregnancy and birth after a Preterm with CP
Hi, My name is Annie and I'm new to all this. My son (now 3) was diagnosed with CP earlier this year and I am 30 weeks pregnant with my second child. Anyone else been in a similar situation and scared out of their wits?
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Would anyone like to be mentored?
Hi my name is stephenrmb and my nephew Tim aged 27 has CP and has trained as a mentor and is looking to help other people with CP. I don't know if this discussion is the best place to start or the right way to go about it. Can anyone advise or would anyone like to be mentored by someone who also has CP? Kind regards to all.
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CBD and CP
Hi, hope you’re all well! I’m still struggling with my legs 😞 I’ve had another MRI scan and nothing has changed; which is good but frustrating as no real answer!! I’m being referred to a neurological rehab consultant to see if they can help; but obviously got to wait. So I’m doing some research and read about CBD oil; has…
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CP and strokes -more information needed! Anyone else had one?
Hi everyone. I had a stroke in August which made my symptoms of cerebral palsy worse. Has anybody else experienced this? I was wondering what the prospects of recovery and rehab are. I did find a research paper which is based on research in Taiwan. It says that people with CP are twice as likely to have a stroke. Both are…
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Moved: Things that you have found helpful for managing your CP
This discussion has been moved.
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Ageing with Cerebral Palsy: Experience, Challenges and Solutions
This short documentary film is the first part of a larger research project that is being undertaken by Scope and the Unversity of Nottingham, overseen by Dr Sonali Shah. The film provides new knowledge and understanding about the experiences of ageing for adults with cerebral palsy. Speaking for themselves, six adults with…
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Bulging Discs and back pain
I have suffered with a bad lower back for years. I am 55 now and i had an MRI last year which showed up the bulging discs / prolapsed disc and squashed nerves. I tried many different painkillers. Currently take ibuprofen and paracetamol. I do get bad back spasms too. Currently in middle of one and trying to work also! I…
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Annual Conference For Adults with CP
Hi, I’m new here and I have a self interest in searching for something positive to look forward to, so I have a question. If it was possible to organise, would a weekend annual conference appeal to anyone? I’m thinking a nice hotel, possibly with a grand spa, in a different part of the UK each year, where adults with CP…
