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Bobath surveys on the effect of Covid-19 on adults and children with cerebral palsy
We are a charity for babies, children and adults with Cerebral Palsy and we have recently created 2 surveys to find the impact of the pandemic on people with Cerebral Palsy and other neurological conditions as we believe this was a particularly challenging time for the disabled. First survey investigating the impact on…
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Have a newly qualified SW trying to change a long-standing care package. She has no knowledge of CP
Hello lovely people. I m not sure if this the right forum but I m desperate and don t know where to turn for support/advice. Basically on behalf of my brother (it’s just me next of kin). Suddenly we have a newly qualified SW trying to change a care package that’s been in place for no less than 17 yrs !!!! She clearly has…
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Campaign Promoting Children Disabled Social Services and Reducing Stigma
My name is Joanna, I am a registered adult nurse and I am a mother to 4 children, my oldest and will be 11 this August, has Cerebral Palsy and is severely disabled with complex health needs. Over the years we have had to fight, pretty much for everything to get what she needs. One of these fights was to get a social worker…
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Self abuse in my 22yo with CP
I have a 22 yo son with CP from newborn grade iv IVH in NICU. He has cortical blindness, g-tube fed, seizures and is nonverbal and cannot sit/crawl/walk. Starting around 5 yo he started hitting/punching himself in the face. This has gone on forever, and he is now 22. Over the past year, it has gotten way worse and very…
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Survey of Parents' Experience of Services Accessed for their Children
Action Cerebral Palsy is a charity that works at a national level towards improving public, professional and political awareness of the issues facing children and young people with cerebral palsy. To support this, we would like to get new feedback from parents about their experiences of the services (both statutory and…
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Housing enquiry
I am looking for some advice in regards to housing. Im 23 year old with cerebral palsy and I use a wheelchair and Kaye walker to get around. Due to my parents moving out I have decided to move out for my independence and further support. I am currently going through the council to find somewhere that is suitable however…
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Disability Discrimination and Your Rights
[Wheelchair user in the library with white headphones around neck] Join us for a special edition of our monthly adult meet up this July as we discuss your legal rights with disability and discrimination. Register for Free by clicking HereAbout this event Join us on Zoom with a supportive group of peers, where we discuss…
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Son has CP 16 months. He has a splint, but it's making his falling worse. Can this improve?
Hi my son was diagnosed with CP at 10 months and is now 16 months. He can walk now but falls all the time. He has a splint now but i feel its making bis falling worse anyone can this and it improve?
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Need some advice.
Hello again school community, you were so helpful last time when I came to you all needing advice. So I thought I’d come to you all again and see if you could help me. As you might remember I am suffering with cerebral palsy which I’ve had since birth. For the past 10 years I’ve been going to the doctors about various…
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Hi, I'm syeda123! My 2 yr old daughter was diagnosed with CP. Can I get a 2nd opinion? What to do?
My 2 year old daughter has been diagnosed with CP. Everything else is fine with regards to speech etc. she had delayed gross motor development and is unable to walk or stand. They say she has muscle stiffness in her legs and low tone and scissor steps when holding my hands and trying to take steps. After and MRI they say…
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Moved: Anat Baniel Method for Children- Neuroplasticity
This discussion has been moved.
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Hi, my name is MrsTibtabs! I have a cousin who has Cerebral Palsy
I have a cousin who has cerebral palsy who lives in Basingstoke and needs support with the care package provided by the local social services who are not only very hard to contact but don't seem to care much when you manage to get through. He lives independently with support but the last two companies who have provided his…
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Face to face social group
I am writing because I am interested in setting up a group that are able to meet once a month maybe more depending on the level of interest. The pacific disability I have is cerebral palsy but I want this to be open to everyone no matter what age or ability I want to create a safe space for people to share their…
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Hi, my name is 830bessie! I want to meet others with Cerebral Palsy
Hello, I appreciate an opportunity to meet other people with Cerebral Palsy. I am 57 and newly diagnosed.
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Hydrotherapy Pools
Hi, I live in South East London, Lambeth and want to find a good hydrotherapy pool for my daughter who has CP. She also has extreme bronchopulmonary dysplasia so I am very keen to reduce the risk of her catching a cough or cold as this could result in bronchiolitis. Does anyone know of a good pool where she could have…
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Looking for swim lessons/hydrotherapy for young son with CP
Hi everyone, I hope you’re all good. My wife and I were looking for swim lessons and/or hydrotherapy for our 3 year old son who has spastic diplegic cerebral palsy. He loves swimming and water play (even bath time), and we want to help his development by taking him to sessions so he can exercise and gain confidence while…
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Hi, I'm Agathe. Newly diagnosed mild left hemiplegic spastic cerebral palsy...at 36.
Hi everyone. I'm Agathe. I've just received a diagnosis of mild left hemiplegic spastic cerebral palsy at the age of 36. It certainly explains a lot about my childhood, and my body, and given my neonatal history it's not really a surprise, but it reeeally should have been picked up in childhood. Anyway, as an adult I've…
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New diagnosis
My son has recently been diagnosed with hemiplegic cerebral palsy and we're not being given any help or advice from doctors. He has a fear of loud noise and I wondered if this is just a phobia or if it maybe part of his condition. Any advice please
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Gaining muscle mass on affected limbs
Hi, everyone! Have people been able to gain muscle mass in their affected limbs (i.e, legs, given spastic diplegia) with PT and/or exercise? Is it possible? Thanks!
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My CP is now effecting my right side
Hi there my name is Sam and I am 22 years old I have mild CP on my left side and over the last few months I’ve been experiencing pain in my right leg. I’ve seen a few MSKs and I’m due to see podiatry in about a weeks time, I’ve been diagnosed with early degenerative disc disease on my right disc and I am doing physio for…
