-
Claire - what exercise equipment do you recommend?
What kind of exercise equipment do you recommend for someone with sciatica and general back chronic pain? We have been thinking of a vibrating foam roller for back stretch/massage, exercise bands, and maybe a roman exercise chair. Thoughts? Thank you so much! Doug
-
Local days out for groups with CP
My son is 8 he has cp and from henly in arden, warwickshire way. I was wondering is there any days out local for groups with cp so he can mingle with people with the same disorder so he knows he's not alone. Many thanks
-
Upper back/neck pain advice
I'm not sure if this is the right group or if this even counts as chronic pain but basically I have had pain in my upper back/neck to the right of my spine for as long as I can remember, it isn't constantly painful, but I do have to avoid doing certain things or walking for an extended amount of time. I'm a full time…
-
How can we be taken seriously with chronic pain ?
Hello, I am a 58 years old and have several conditions which cause me chronic pain here they are - Ehlers Danlos Syndrome, Fibromyalgia, Meniers Disease, Asthma, Osteoarthritis, Hahimotos Thyroiditis, two Mortons Nueromas in the same foot plus being investigated for PoTS. I just wanted to ask how can we get help for pain?…
-
Cerebral Palsy in adults
I was born, fifty eight years ago. It was a difficult birth, so I was told. Because of this, I have minimal CP, but I have tried to be included as a non disabled person. As a child, I tried to fit in with other peers, and became desperate for attention, so would do silly things for that attention. As I grew, I was advised…
-
New Blog
Hi all, I have a new blog piece on being asked what's 'wrong' with me...please have a read and let me know what you think! Thanks, C. http://memyselfanddisability.wordpress.com/2019/01/21/please-stop-asking-whats-wrong-with-me/
-
I have Fibromalgia and Chronic hip and back pain
I have fibromalgia and in chronic hip back pain numbness in my feet tinglingli in both hands i also have problems with balance and vision
-
A Fitness Fanatic Living with Cerebral Palsy Sets Up Own Gym
Jake Leonard felt that the gym is was paying membership for was making him feel out of place and unsupported. So he decided to set up his own gym that now helps 40 people with a range of physical impairments.See the full article here:Accessible Milton Keynes GymWhat are the main barriers that you have faced when trying to…
-
Skiing/snow boarding with spastic diplegia
hi, just wondering if anyone has any experience skiing with Cerebral palsy? My son, aged 10 has mild spastic diplegia, his left leg is very rotated inwards, although he walks independently. I wondered if there is anything that can be adapted to help him skiing? He has had a couple of snowboarding lessons, which were ok,…
-
Speech therapy
My grandson is nine year old with very little speech. His speech therapy has basically been not enough. He was awarded 3 sessions just before Christmas...1 was in December, 1 this week and the next one is in March. I would like to get him more frequent treatment but not sure where to turn. Does anyone have any idea?
-
Anyone out there whose child suffers from ataxia? Or a mild form of CP that showed in an MRI?
Hi there, I’m new to the site and I’m glad I’ve found it. Our son has been diagnosed with developmental delays. We’re waiting for blood test results and will possibly need to do an MRI. Gross motor skills and language most affected. However we’ve been told he also had Sensory Processing Disorder and that this affects his…
-
Feeling alone
HI everyone, I'm 23 and have cerebral palsy, this affects me quite severely physically. I have slowly become quite lonely over the last couple of years and am now fighting depression. I enjoy night clubs and being social but have no one to go with. All my local groups seem to cater for people with learning disabilities and…
-
Career in sports
Hi as you know I have got cerebral palsy and I was wondering what it is like getting into a sport career with that type of disability if anyone knows. I currently am doing a levels in sport and I do not know whether to continue it to university yet. I have not sure what type of job I would like but I don't mind. I Am up…
-
Mild CP and tremors
Hi everyone, We recently had a diagnosis of 'Bilateral
Cerebral Palsy with subtle right hemiparesis' for my son, he is 6 and is just about to go into year 2 in primary school. He has intention (action) tremors that make writing and other fine motor tasks very difficult, just wondered if anyone else on here suffers with…
-
Physiotherapy to be at heart of Primary Care
There has been a pledge to create more first contact physiotherapist roles and greater access to physiotherapies for Cerebral Palsy and across a range of conditions. Prof Karen Middleton, chief executive of the CSP, said: "This is a very encouraging plan for the NHS, the physiotherapy profession and for our patients. ‘It…
-
Suspecting my 4 month old has cerebral palsy
Hi, I thought I’d come on here as I really need somewhere to vent what’s been happening over the past couple of weeks. I had a traumatic birth with my daughter - she was term and no clear signs of oxygen deprivation but she was born very quickly and unfortunately the midwife wasn’t aware that she was coming. In the past…
-
Unwanted gastrostomy
Hi, my 13 year old daughter has athetoid dystonia cp. She is healthy, lively, gets around the house independently, uses Makaton and communication aid, cognitively bright. New sl t in august, referral for fluroscopy which showed silent aspiration. Stated daughter has to have tube a d go nil by mouth. Cu recently has…
-
Advice please
Hi my name is Sam, I'm 30 and I have both Spondylolysis and Spondylolisthesis as well as arthritis and pain killers only ever take the bear minimum of pain away. I think I may have cpd as well how would I go about getting a diagnosis?
-
Unknown Small Fiber Neuropathy
Hey Folks, I have been diagnosed with a small fiber neuropathy. I have had lots of tests, MRI scans of the brain and neck, lots of blood tests and everything comes back normal. My GP has prescribed Amitriptyline for the pain but this only works for a few hours. I am having a burning sensation in my feet that goes up to my…
-
Helping my daughter with CP be more comfortable
Hi my daughter is 26 with cerebral palsy which effects all four limbs she’s non verbal as well so it’s very difficult to know what’s wrong she was on baclofen but this has been changed to Tizanidine she seems to sleep during the day but of a night she goes off to sleep ok but is then continuely waking through the night she…