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Wrongfully put on child protection
I want to know if anyone else here had the issue with children's services?.... Briefly...wrongfully put on child protection. No significant harm by parents, instead NHS negligence/misconduct and family is held accountable (scapegoat). Bringing evidence supporting our innocence to the social workers was futile, after a…
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Audio card to family member with dementia (abroad) what to put in it?
Please let me know if I need to move this to the mental health section as it is about dementia. But it's also family so I wasn't sure! So, someone in my family asked me to record in a card for a family member with dementia. He's also visually impaired. I don't even know if he can see anything. I have sent aural cards…
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Join our online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Carers allowance
Hi all.advice needed please. I was a carer for a gentleman recently. I was receiving carers allowance. When we realised that the carers allowance was affecting his disability benefit and attendance allowance I phoned the carers allowance department and asked for my carers allowance to be stopped. Now the gentleman has…
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What help is there with getting children to school?
I’m a lone parent of 4 children 13,12,9,6) . Their dad died after we divorced and I’ve got Lcwra. I’m starting biologic therapy and I have Ankylosing spondylitis and a two other autoimmune progressive diseases, mentally ill and have FND. My 6 and 9 yr old get picked up from childminder and takes them to school. I am…
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Disabled Children and Sleep - Practical Sleep Strategies for Parents and Carers🌙😴
Part One - Disabled Children and Sleep - An Introduction😴🛌 Part Three - Services and Signposting Support😴💤 As part of our focus on sleep this week, this blog post is all about practical sleep strategies you can try at home. You don’t need to do everything, just pick and choose what feels manageable and see what works best…
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Dla for my son
hello I have filled in some forms for my son but looking at them I feel like giving up I don’t no how to write or explain he’s daily stuggles and I am not good at wording things correctly So my son needs a lot of support in school, he is suspected asd/pda and I have he’s pathway referral report He also needs a mri scan for…
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Deputyship for son with severe learning disabilities
Hi Our son turns 18 in a few months. He has severe learning disabilities and no ability to make decisions for himself on financial or health matters. At the moment he only receives benefits but if either his mum or dad die, he could receive property/money. Also it's likely he'll move into supported living in a few years.…
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Hi, my name is VaniC!
Hello All.. I am looking for a support group for parents with children with Cerebral Palsy (CP). My son is 14 years old on the severe spectrum. I have never reached out to anyone or joined a support group. I live in Northwood, London.
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Disabled Children and Sleep - An Introduction😴🛌
Part Two- Practical Sleep Strategies for Parents and Carers🌙😴 Part Three - Services and Signposting Support😴💤 This weeks focus on the family side of the community is sleep. If your child struggles to fall asleep, stay asleep or wakes frequently throughout the night, you’re definitely not alone. Sleep difficulties are…
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Hi, my name is amylou8850! I have joined this community because I am really struggling to meet my...
Hi I have joined this community because I am really struggling to meet my daughters care needs she has complex medical needs and challenging behaviour and it is becoming increasingly difficult to manage
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Respite
hi everyone I’m obviously a new member here and Im hoping everyone is ok I have a 13 year little lady who has severe learning disabilities and a wheelchair user. I’m a single parent trying to make the best life for us I do have a sw and have lawfully been recognised I need support and was awarded 4 hrs pw p/a and 2…
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Life Reimagined 1 Week To Go!
Our new webinar series Life Reimagined starts next Wednesday, 21st May. If you’d like to grab one of the last remaining places, you can register for free below. Life Reimagined is a new four-part series for parents of children with special or additional needs. Julian Fraser and Angelina Hynes will share their lived…
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Step daughter issues advice needed!!
I have a 25 year old stepdaughter my partner and I have lived together 5 years and she has always had a issue with me, ignores me in a room and constantly asks partner to do things just then which I do understand and acknowledge and advocate that it is important they spend time just them, whenever we visit their home I…
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Guardianship
Does anyone have experience of setting up guardianship for an adult (aged 55)? My stepson, who lives in Scotland but likely moving to England this year, has LPA in place by his stepdad who wants to revoke this and pass responsibility to his Dad and I. I'm concerned that he will not pass the capacity test for a new LPA now…
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Goodbye Care Workers - Kuenssberg today
They now want to get rid of our care workers ! Cooper is asked about visas for care workers and says rules will change to restrict recruitment from abroad. She says current care worker visas will be allowed to be extended but employers shouldn't be recruiting from abroad going forward, which is a "significant change". She…
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Dla
hi my son has anxiety and has sleeping problems has suffered with them from a young age he was on melatonin and has now been prescribed adult medication due to melatonin not working he has at least 1 hour a sleep a night he pulls his eye lashes out due to anxiety he is struggling in school n his attendance is very low due…
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Hi, my name is cathy55! Where can I buy clothing that will not rip my daughter has autism and ...
Where can I buy clothing that will not rip my daughter has autism and is ripping clothes every day up to 4 outfits a day
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Leeds family voices wanted