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My son
Hi I have a 15 year old son who was born with club foot on both feet he's had 23 operations he had a growth spert in October last year which dislocated his knees in his sleep he's awaiting to see if he needs surgery to stop it from dislocation again he's also got learning delays and challenging behaviour since new year…
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Periods
My daughter has started her 1st period 3 weeks ago. Her period lasted 7 days. Then after a few days she started spotting again, on an off. She was ok for a week and now since yesterday she has started again. Is this normal? Any advice would be helpful
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Severe depression
hi all I'm 44 suffer severe depression since my daughter died in 2018 aged 24. I've had her little girl since both she's now 4 she has duplication of 20p chromosome disorder she has epilepsy and has just been diagnosed with multiple endocrine neoplasure type 2 which contributed to my daughter's death. Gracie also has lots…
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My two adult sons have Adam's Oliver Syndrome
My two adult sons have Adam's Oliver Syndrome. They are 33 and 34 and as they grown older they feel very isolated and with all the things that can come along with AOS,they feel depressed at times. We are hoping to be referred to the genetics clinic at Leicester to see if they can find out more about their condition,but…
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Advice
Hello I thinking of create an app the shows wheelchair accessible restaurants in Coventry I would love what other people in scope community think of my idea
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Hello
Hi, I'm here as a mother of two aged 27 and 21 that both suffer with anxiety and depression. Looking for ways for them to meet people and make new friends who understand. Any ideas welcome.
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Toothbrushes for disabled children
Hello Can anyone recommend a new toothbrush for a small child with a moderate physical impairment? A little background info on our situation: My son has no cognitive/speech/fine/oral motor limitations however. His main problem is actually getting into the bathroom safely in his wheelchair. In the past he brushed his teeth…
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Help with difficulties at school and the social side of things
hi all im single mum to a little girl with special needs shes just started school and this is something shes really struggling with would be lovely to meet other parents etc in the same boat or any one with advice on how I can help with difficulties at school and with the social side of things and im supermummy as im mummy…
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Hi, my name is becci1005!
Hello there, I am 22 years old and have Central Core Myopathy, Scoliosis repair, Bi Lateral Femoral Shortening and Complex PTSD. I have 2 children 1 of whom recently underwent her surgery for bi-lateral hip dysplasia and is in her spica, which they believe may be linked to my genetic condition. Im just wondering if others…
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The Festive Season and Back to School
Hello everyone!I hope you had a good time during the end of year. For us it was the longest stretch of relaxed time spent together as the whole family in a long time and much needed. I am working self employed in retail, and I used to work pretty much up to the 24th and opened again on 2nd January. Plus I usually got some…
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Anything I could do to help?
I am a carer for my 55 year old sister who has learning difficulties, I am 60 I live next door to her so I am always available , she lives with my ageing mum and dad who are finding it difficult to cope with her constant repetitive habits and her temperamental outbursts , I try and take her out from under there feet when…
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Blue badge for autism - anyone manage to get one?
I am waiting for the outcome of my application for a blue badge on behalf of my 9-year-old son. His severe sensory issues make journeys very challenging but as we live in Central London we decided to sell our car 3 years ago as there was little benefit for him as we could never park close to our destination. We now rely on…
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I'm a parent with two special needs children
Hi I'm Aims, I'm a parent with two special needs children, my eldest has Autism, SPD, depression/anxiety and my youngest has SPD, sepeach and language delays and behavioural problems. I myself have also got osteoarthritis and degenerative disc disease. I've joined because where I live there is absolutely no support for any…
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Road to Resilience - How to avoid feeling overwhelmed
We have a new series of films to share with you, from parents and carers for parents and carers called The Road to Resilience. This film is about how to avoid feeling overwhelmed. https://www.youtube.com/watch?v=glACggVD_kM&feature=youtu.be Please let us know what you think and share your own experiences and stories.
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Education Health and Care Plans
There are some great resources available on the Contact website about EHC Plans that might be useful to some of you. From who needs an EHCP, what happens during an assessment, how to go about asking for an assessment and what an EHCP looks like, there is a lot of information available.
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15 month old being assessed for Cerebral Palsy
My son who is 15 months old who was 8 weeks premature, he had his initial assessment today as we were concerned with his development and they have mentioned Cerebral Palsy. He has to go back in 3 months to be assessed again, in the mean time he needs lots of physiotherapy, hydro pool sessions and we have been told to send…
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Help!
Hi im very new to this.. asking for help isnt somthing i really do, bt here goes anyway.. my son is severely autistic, non verbal and has learning difficulties, he has been helped for years by a behavior team, bt recently hes gotten obessional, sometimes he seems low and sad , hes started lashing out at school and has led…
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Useless Carers Assessment!
Any advice please?After three years of trying to secure a social services assessment for my two disabled children, and more years before that of trying to get my husband's needs assessed, as well as my own.... I finally sent in a formal complaint, and we were all assessed. I thought we were finally getting somewhere.They…
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Carer to severely disabled daughter and Grandaughter for 9 yrs
Hello All! Have been a Carer to severely disabled daughter and Grandaughter for 9 yrs. Looking forward to gaining insights and tips, possibly sharing some of mine! Nice to have some chat with people that walk in my shoes?!
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My almost 4 year old daughter..... it's a long one....
Where to begin.... I'm a mother to my daughter she will be 4 in january (where has the time gone?) So let's start from the beginning... I am a single mother and have been back to work after my maternity. I put my daughter into private nursery from the age of 1 till the age of 3 (august this year). They never had any real…
