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Hi, my name is becci1005!
Hello there, I am 22 years old and have Central Core Myopathy, Scoliosis repair, Bi Lateral Femoral Shortening and Complex PTSD. I have 2 children 1 of whom recently underwent her surgery for bi-lateral hip dysplasia and is in her spica, which they believe may be linked to my genetic condition. Im just wondering if others out their have had children with the same or similar problems to then due to genetics and the subsequent emotions that come with it all... I feel very alone, I dont have many friends and certainly none who understand. Thank you.