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Bèing Disabled and Pregnant
Hi everyone, I'm hoping that some of you could share your experiences with me. If not then that's completely fine :) Bit of background, I have Sensory Ataxia, Transverse Myelitis, I have central vision loss and am hard of hearing. Also, a possibility of Mitochondrial disease. I'm currently 21 weeks pregnant with our first…
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Top Tips for a Blissful Bedtime
The lovely team at Sleep Right have put together their top tips for ensuring the perfect bedtime routine. Let us know what you think!Calm Start winding down the household a
couple of hours before bedtime and creating a calm atmosphere. Include calming
activities in the bedtime routine (any activities that involve…
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Are disabled facilities Grant's means tested?
Have l go this wrong? I thought disabled facilities Grant's for under 19's were not means tested? But my local authority has sent out a really long 'discretionary means test form' for me and my partner to fill out? An ot has said my home needs adapting for my child who is 11 and made a Mat 1 referral. The grant was applied…
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Independence for Adults with a learning disability
Hello and thank you for allowing me to join this awesome forum!!! I am after your opinions please. As a parent, I absolutely know how hard it is to let your children try things themselves, make mistakes and gain some independence. As a parent of a person with a learning difficulty that job is sooo much harder!! What I…
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Hi, my name is victoria. Just joined here
hope this I hope this finds you all well. I’m deaf and a qualified Teacher of the deaf. I have a daughter who is deaf - she is amazing. Bilingual which means she speaks English ve try well fluently and uses sign language as well when she is in a situation she needs to sign. My husband is registered deaf blind. My daughter…
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Supporting children's return back to school after coronavirus.
How is your child finding the return back to school this term? If you are experiencing problems, then this Youtube video made by Scope's Activities for All team could help. Recorded at a recent workshop, the film discusses fears you or your child might have about returning to school, and gives advice on coping skills that…
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Seeking advice for my 4 year old granddaughter urgently?
Hi there! I am seeking information for my daughter. She is a single parent of 4 year old twins. One of whom is severely disabled- cerebral palsy, visually impaired, none verbal to name a few things. She has no support or help whatsoever. She moved to a different part of the country in August 2019 and by the time the…
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Hi, my name is bella17 and I have a question about managing my child's temper tantrums
Hi there, I have a 3 1/2 year old child with mild cerebral palsy and I just really want some advice on how to deal with temper tantrums (include hitting himself and me if he can reach) ..how to introduce new foods.. just any help is greatly appreciated :)
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Using Direct Payments to purchase goods (trike) instead of care
Hi,I receive direct payments for my son (13) who has quad cerebral palsy and requires 24/7 care, hoisting and is non verbal. We have had no carers coming in from March to mid July (and he hasn’t been at school either) so we have unused DPs. Mencap have just started coming back into our home for 7 hours a week. My son has…
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How to help your child return to school after COVID-19
Scope's Activities for All team have put together a list of resources to help parents and children with the return back to school this September. Please feel free to have a browse and let us know if you have any questions. Transitions back to school This Youtube video is a recording of a workshop that discusses preparing…
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Any suggestions??
Hi all I have 2 boys one 4yrs old and 4 month old boy who s new baby during lockdown my big boy has learning difficulties who cannot communicate about his needs and wants . He s screaming a lots too , lockdown made him worse than before. Sometimes I’m so confused to priorities their needs??i mean which I need to look after…
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SEN Child being bullied - Help
Hi, I’m really hoping you can help me. Our son started coming home in the Autumn term of 2019 saying he
was being hit and punched by another child. We spoke to the SENCO who is not
supportive of Dylan’s needs and he said Dylan was misinterpreting the
situation. The week lockdown started Dylan was in the bath and when I…
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Meltdowns
My son has a mild form of CP - left hemi. Typically with a hemi child he is borderline for an emotional disorder too. He has autistic traits which are, again, typical of a hemi child. I need to learn how to control his meltdowns better and would welcome any advise. He isn't a naughty boy he just has immature meltdowns. We…
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Bottle feeding tips
I am a new mum! With mild CP I am struggling to get my hands and arms in the right position to bottle feed my daughter. She does take it but it is a super long & uncomfortable process. has anyone got any cheeky hacks or work arounds Thanks Jen
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Struggling to get a diagnosis for my almost 5 year old
im struggling to get a diagnosis for my almost 5 year old and and my wits end. Was told id feel welcome here :) hi
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Disabled mum hoping to pick up some tips and make new friends
I'm a disabled mum of 4, 2 of which have additional needs. I'm not sure what else to say, sometimes I feel overwhelmed and alone, hoping I may pick up tips and if brave enough make some new friends who get my life without pitying or patronising glares
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Going back to day centre
We're just beginning to look at a possible return to the day centre for our son. There are lots of questions we have about whether or not it is actually safe. After all, we three have been at home since mid-March and not mixing with others. Is there a check list or similar that we could use to help our discussions with the…
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My child wears splints on both feet, and has flat feet. Where can I buy reasonably priced shoes?
hello i am a parent to a child that wears splints on both feet. i am finding it hard to find shoes that are deep enough but not to expensive. he has flat flat also, so its hard to get his feet to fit into any normal shoes. can you suggest anything or help
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A bit of advice needed
This is a strange one and your advice sought as to how to go about sorting it out. I am not sure if I am in the correct category even. My friend had a stroke in February and then Covid 19. He is not yet retirement age but is now severely restricted by his stroke and very vague either from his stroke or covid 19. He is in…
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Can they ? ? ?
Just booked my 2 kids on play scheme, had to pay £234 extra for the wheelchair user who has cp. she needs a 1:1 for personal care so I had to pay for that. What happened to Equality of Access !!
