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‘I am a shadow of what I was before lockdown’: unpaid carers feel trapped and are at risk of burnout
‘I am a shadow of what I was before lockdown’: unpaid carers feel trapped and are at risk of burnout Have you felt more exhausted and burnt out during lockdown? Are you worried about possible further lockdown restrictions? What measures would you put in place to support unpaid carers?
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Mom with 2 kids with needs
Hi I am new I have 2 children with needs one with asd and anxiety one with epilepsy and gobel development delay and behaviour issues also speech problems both with sensory needs.
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Hi, my name is ann76! My son has suspected ADHD and autism, so I'm looking for support
Hi everyone, I’ve just signed up to hopefully gain some support and help for my 8 yr old son who is waiting for his diagnosis for ADHD and potentially Autism too. It’s been a rough month at home, as our son has now developed a fear of wind, rain and grey clouds! This all stems from being caught in some hail 2 yrs ago and…
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Disabled role models in schools
Hi all, I hope that everyone is well. Firstly, thank you for taking the time to read this. I am looking to develop a presentation whereby I go into schools, primarily looking to begin with primary and secondary school aged children, to talk about what it is like to live with a disability, how it can affect a person's…
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Carers Group Session TODAY at 11am
Attention, friends, carers, parents We want to reach out and give you the time you need to speak to us about the challenges you are facing in these current times. Today's session is an important one as in recent carers group discussions, it became apparent that people within our community have faced extraordinary…
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Hi, my name is Mohammad Islam
Hi my name is Mohammad Removed by moderator (personal details). I am new to this community. I have a Five years and Ten months old autistic son he attends a primary school. Last year in December the inclusion manager told that my Son's EHC plan will be completed by next session but since July 2020 I have been emailing the…
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Help for adult son with LD and anxiety, depression and challenging behaviour
Hi New here I'll jump straight in if that's ok? Is there any way of getting help and support re. the above, that doesn't involve having my son sent to some horrendous unit and left to rot? Hope this is the right place for this...
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Direct payments
Hello everyone. I’m a mum to two boys with Duchenne muscular dystrophy. I’m trying to find out if anyone who has DMD boys that are children and in receipt of direct payments are able to be paid the money even though they live in the same household. I don’t have anyone suitable enough to provide my children the care that…
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This Fridays Carers Group with Healthwatch Birmingham
Attention all carers, parents of adults or children with disabilities. This week in our carers online session, Cerebral Palsy Midlands and Noah’s Star will be welcoming Healthwatch Birmingham and Mark McKinley, Volunteer and Engagement Officer will be joining our zoom meeting to talk to us about their service to our…
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Do I need to request an EHCP myself for my 9 year old son who has ADHD?
Hello Please my 9yrs boy is diagnosed with ADHD I don't want to put him on medication but the scool senco said they can't request for EHCP for him that I should request it by myself am confused what should I do. Thanks
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Help please anyone
I need to pick my little girl up from school this Friday from school but they have put me on a late ..... I’m sick of my boss letting everyone else go see there kids early but when it’s me they don’t :( I’ve never had a day off work been there over 2 years as well .... got no one to collect her, what can I tell my boss ?…
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Hi, my name is Eamesy88!
Morning all, mum of 2 girls aged 14 and 11. My youngest is epileptic, asthmatic and has developmental disabilities so is 4 years delayed. She has very poor sleep and I'm currently trying too get ideas to aid sleep. I have tried weighted blankets, heat, lavender, relaxation sounds, dimmed lights and more.
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Bèing Disabled and Pregnant
Hi everyone, I'm hoping that some of you could share your experiences with me. If not then that's completely fine :) Bit of background, I have Sensory Ataxia, Transverse Myelitis, I have central vision loss and am hard of hearing. Also, a possibility of Mitochondrial disease. I'm currently 21 weeks pregnant with our first…
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Top Tips for a Blissful Bedtime
The lovely team at Sleep Right have put together their top tips for ensuring the perfect bedtime routine. Let us know what you think!Calm Start winding down the household a
couple of hours before bedtime and creating a calm atmosphere. Include calming
activities in the bedtime routine (any activities that involve…
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Are disabled facilities Grant's means tested?
Have l go this wrong? I thought disabled facilities Grant's for under 19's were not means tested? But my local authority has sent out a really long 'discretionary means test form' for me and my partner to fill out? An ot has said my home needs adapting for my child who is 11 and made a Mat 1 referral. The grant was applied…
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Independence for Adults with a learning disability
Hello and thank you for allowing me to join this awesome forum!!! I am after your opinions please. As a parent, I absolutely know how hard it is to let your children try things themselves, make mistakes and gain some independence. As a parent of a person with a learning difficulty that job is sooo much harder!! What I…
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Hi, my name is victoria. Just joined here
hope this I hope this finds you all well. I’m deaf and a qualified Teacher of the deaf. I have a daughter who is deaf - she is amazing. Bilingual which means she speaks English ve try well fluently and uses sign language as well when she is in a situation she needs to sign. My husband is registered deaf blind. My daughter…
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Supporting children's return back to school after coronavirus.
How is your child finding the return back to school this term? If you are experiencing problems, then this Youtube video made by Scope's Activities for All team could help. Recorded at a recent workshop, the film discusses fears you or your child might have about returning to school, and gives advice on coping skills that…
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Seeking advice for my 4 year old granddaughter urgently?
Hi there! I am seeking information for my daughter. She is a single parent of 4 year old twins. One of whom is severely disabled- cerebral palsy, visually impaired, none verbal to name a few things. She has no support or help whatsoever. She moved to a different part of the country in August 2019 and by the time the…
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Hi, my name is bella17 and I have a question about managing my child's temper tantrums
Hi there, I have a 3 1/2 year old child with mild cerebral palsy and I just really want some advice on how to deal with temper tantrums (include hitting himself and me if he can reach) ..how to introduce new foods.. just any help is greatly appreciated :)
