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Advice needed
I’m sure that I have not mentioned this before. I seem to have a baby who frequently turns blue around her lips and scares me. She does this often at night as well. I have taken some photos of her lips and upper extremities for evidence. The pictures are on my phone. She is four weeks old today. I have also heard some…
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benefits and working advise!!
Hi my daughter who is 26 has a 7 yr old disabled daughter.shes a single parent and is claiming income support,carers allowance and full housing benefit and child tax credits.shes wanting to take a job of 10 hours but is very confused if it will be worth her while as she says her income support will stop can you please…
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Starting the diagnostic pathway for possible ADHD and PDA (my son)
I'm a mum to a 10 year old boy who has Autism. We have just moved back to Cornwall to be nearer to family. Starting the diagnostic pathway again for possible ADHD and PDA which feels very overwhelming! x
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How do you persuade an Asperger's teenager to leave his room ?
My husband and I have been very understanding of our son's difficulties due to Autism. However I feel it is harming my son to allow him to remain in his room. I try to encourage him out by tempting him with his favourite foods, or bringing him books and magazines related to his favourite topics and interests. He is a…
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15Q 11.2 Microdeletion.
Good Evening everyone, I have an 11 year old recently diagnosed with 15Q 11.2 microdeletion. The reason for this post is that I am struggling to get any support from his school and he is on a long waiting list to see his pediatrician. (He has been seen once in 18 months, and as a result we had genetic testing, leading to…
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Getting out and about with a toddler with mild hemiplegia
Hi everyone, I'm wondering if anyone has advice on getting around with a baby and a toddler (who has a mild hemiplegia) we use a buggy board but it's just getting too heavy for me and my little boy can't walk long distences if we're out as a family I end up carry him and I have noticed we go out less and less on my own…
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Adopting when you have a disability
Hi everyone! Has anybody here gone through the adoption process? Or is anybody doing it as we speak? My husband and I are right at the beginning but it's already beating me down. I'm hoping to find others for advice and support. Thanks!
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Carers premium
Hi,I applied for carers in Nov 26th 2019 for my Autistic grandson who is 8 I have looked after him from 9 months while parents work he was diagnosed in Sept Oct last year and gets PIP middle rate,,I was told as get pension credit although entitled to carers allowance from Dec 2nd could not receive as receive pension credit…
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Finding a carer for my autistic son
Hiea
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Hoping to find some support
I am 20 with a nearly 2 year old son, jaiden..he has cerebral palsy with an intraventricular brain haemorrhage..I am hoping to find some support just in the meeting new parents area ?ĺ
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Divorce disabled child Carers
Hi im new, looking for advice about getting divorced while being main parent and Carer of a disabled child. my ex is only breadwinner. im unlikely to be able to work as child gets dla and I get Carers. iF I was to claim universal credit would my previous savings be counted? What about my pension (which I don’t claim yet as…
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Advice needed please!
My son is 16 just started college this time, he has always been very different to his siblings and at times very challenging, throughout school years teachers have mentioned he may be autistic, I work in education and this has always been my thoughts too...but referrals to doctors, mind, cahms and educational psychologist…
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Glue Ear
Hi, After lots of hearing tests, one including putting my son to sleep but it went wrong and he ended up in the intensive care, I have now been told my son needs grommets due to having glue ear in both ears? Just want to know peoples experiences? Are they worth it? Thanks
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Looking for advice with baby equipment
I am trying to find out about baby equipment that can help me look after a baby, and what help I can get I have arthritis and need knee replacements, however I need to loose weight before they will do it. do you have any advise you could pass on to me, it would be very much appreciated thank you
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What do you do if your child refuses to go to college?
What do you do bc if you’re child refuses to go to college?
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I'm a carer struggling mentally to cope
Hi. I'm new to this group. I'm a carer and struggling mentally to cope
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day centres with in Birmingham for young adults
hi im the parent of a twenty year old lad who is wheel chair bound and need a lot of one to one support is there any centres with in Birmingham that offer places for young adults
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More support in school
I am in the process of applying for a EHCP review ,and am not getting much help from the school and want to see how I can move things forward. I want to ask for more ie 1:1 support for him within the resource provision that he is at . I also want to get a speech and language team funded support and see if he can get…
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Blue Badge Application Rejected
I have just had an update from my local council (Camden in London). They have advised that they are automatically REJECTING/ARCHIVING ALL BLUE BADGE APPLICATIONS FOR HIDDEN DISABILITIES. This is because they have not received any guidance from the government on who qualifies and therefore refuse to process these…
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My son
Hi I have a 15 year old son who was born with club foot on both feet he's had 23 operations he had a growth spert in October last year which dislocated his knees in his sleep he's awaiting to see if he needs surgery to stop it from dislocation again he's also got learning delays and challenging behaviour since new year…
