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New ideas for summer activities
I need new ideas for summer activities. So far my very limited list includes road trips and a family picnic. We also planned a couple of cycle rides and weekends exploring other parts of the country. Can anyone else suggest anything new? The only weatherproof idea I can think of is trips to the library. Even better if…
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Finding Special Schools
i have updated a new blog documenting our search for a special school since being told my daughter cannot stay at her current nursery. https://allforzariah.com/2019/06/13/special-schools/ Please check it out and feel free to give any advice if you can!
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Is she traumatised by the fall ?
Hi, My 2 year old fell of a bed while stopping at her aunties 4 weeks ago. Physical injuries where not substantial. after taking her to GP to be sure it was just superficial he verified it was. She was prior to the fall in a brilliant sleeping pattern she had always gone up I put her in bed kiss night and she would sleep…
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Discrimination in Childcare
Hi there, I am new here. My daughter is born blind and suffers from epilepsy. Among all the difficulties we have been through I find it the hardest to cope with the fact that because she needs one on one support, she cant access any private nurseries, childminders, or after school clubs. I believe this is illegal as…
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Tell us something positive about your carer!
Carers Week has started today and will run from Monday 10th June – Sunday 16th
June 2019. This year’s theme will be looking at connecting carers to their
communities, advice and information, support services, friends and family,
other carers and through technology. There are approximately 6.5 million carers in
the UK who…
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Road to Resilience - How to talk about your child’s impairment
We have a new series of films to share with you, from parents and carers for parents and carers called The Road to Resilience. This film is about how to talk about your child's impairment. https://www.youtube.com/watch?v=DXix-yi1uAU&feature=youtu.be Let us know what you think, share your experiences now.
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Reshare: Meet Adele-Caitlin
As part of Carers Week, we're re-sharing this blog from @AdeleTaylor who spoke
to us about her experiences as a young carer and what she is up to now. Hi
Adele, would you like to introduce yourself please? Hi, my name is Adele (Adele-Caitlin) and I’m an eighteen-year-old disabled
young carer as well as an aspiring writer.…
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10 minutes with the doctor after a year wait
Good morning everyone I just want to share some information with you lovely people regarding my son my son Alex is 5 in September after waiting such a long time for an appointment at gosh we finally had an appointment yesterday which we was very excited we just thought we going to get some answers back regarding my son's…
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Carers Week photo gallery!
This week (10th-17th June) is Carers Week. Here on the community we try our best to support carers as we know the importance of them and the unique challenges they may face. There are approximately 6.5 million carers in the UK who care for a loved one who's disabled, older or chronically ill. You can show your support for…
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My newborn has Spina bifida
My nuborn with spina bifida
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Blogging my experience
Hiya everyone, I have started blogging my experience of being a mother to a beautiful girl with special needs to help other young mums or first time mums who are struggling to find anyone going through similar experiences, but also as a coping mechanism for myself. I’ve made a new post today. Please check it out and feel…
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Do I stand anywhere legally?
Can anyone give me some advice on this. I have Aspergers Syndrome and this was exploited through the court system by my ex regarding contact with my children in 2009. I know the law has changed now and disabled people have rights these days but I strongly feel I have had my parental rights taken off me. I have a letter…
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Young adult work
hi I am just wondering what our young adults do when they are unable to work and don’t want to socialise ? Do any of you have young adults that just want to be alone and at home ?
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help and advice for children with epilepsy
Hi all my little man as just been diagnosis with epilepsy but also as learning difficulties and concerns with ADHD and autistic features so just wanted some help and advice and to make new friends
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Feeling Low
Hi, My my eldest son has just turned 7 & has a diagnosis of Aspergers & PDA. Half term has been really challenging, I really noticed his anxiety levels increase & his OCD type behaviours become more apparent. We went camping for a few days & he had several meltdowns. As we were a bit out of routine & in an unfamiliar…
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Swimming lessons
My son and daughter had their first ever proper swimming lesson yesterday at a local community pool. They had a great time mucking around in the water under my supervision for almost two hours. But I’m not sure if I can afford to pay for swimming lessons. Yet another expensive activity for us but it is such a important…
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Im going through a bit of a rough time at the moment, although im trying to stay positive
Hi, thanks for accepting me. Im going through a bit of a rough time at the moment, although im trying to stay positive. i look forward to getting to know you all and having some good banter
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I struggle with sleep massively
I'm a mum of 4 boys, 3 of which with additional needs. 15yr old with Attachment disorder and poss ADHD, 12yr old with Autism, ADHD and Epilepsy and 8yr old with ADHD and Pathological demand avoidance PDA.. times are hard, as you can tell at this time, I struggle with sleep massively.. I also struggle with depression and…
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Coping Mechanism?
My daughter has cerebral palsy and she’s had the diagnosis since about 6 months. I’ve read a lot of conversations and threads on here from parents and from people diagnosed with it but everyone has such different stories. I’m a young mum and just found it hard to cope, so I’ve started a blog to document our story. You…
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Greenwich council
Since march this year I'm been reporting about my fence and gate very unsteady and the wood it actually rotten I have reportedmany of times and are they giving me excuses excuses excuses I have a disability myself which is cerebral palsy and as I'm getting older im getting worse I live in the black of 4 and lady above me…
