Remaining politically neutral during General Election 2024


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Advice needed

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April2018mom
April2018mom Posts: 2,882 Disability Gamechanger
I’m sure that I have not mentioned this before. I seem to have a baby who frequently turns blue around her lips and scares me. She does this often at night as well. I have taken some photos of her lips and upper extremities for evidence. The pictures are on my phone. She is four weeks old today. I have also heard some funny sounds. So today I decided this was abnormal. And I called the pediatrician for advice. 

Has anyone else had a baby with spina bifida and a breathing difficulty? What were the warning signs? I will definitely send a email with the pictures tonight to a pulmonary team requesting advice. It is likely we will be readmitted for additional observation and tests. I will keep you updated.. 


Comments

  • jadealyssa
    jadealyssa Community member Posts: 63 Courageous
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    Hi @April2018mom
    Sorry to hear this about your baby it must be very frightening for you.
    Does your baby stop breathing or does the breathing change when this happens? 
    Sometimes if they have trapped wind it can cause a.blue tinge around the lips and they can make odd sounds...
    Also my.son has CP and as a baby he suffered with acid reflux which begun with him constantly having a blue tinge to him and making really odd sounds which I later found out that it was the acid causing the sounds as it came up to his throat.
    Please let us know any progress you have
    I hope your find a resulation to this
    Wishing you and your baby the best of luck 
  • poppy123456
    poppy123456 Community member Posts: 57,077 Disability Gamechanger
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    HI,

    We are not medical professionals and will not be able to give you any advice regarding this. Rather than wait for a pediatrician then i'd advise you to either ring your GP or health visitor with any concerns you have.

    Although, i do agree that a baby that has wind can often make strange noises.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • woodbine
    woodbine Community member Posts: 12,109 Disability Gamechanger
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    Hope everything is ok, you are both in our thoughts x

    2024 Election won

  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
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    It is not wind.
    I have gas myself and I know the sounds associated with that. It honestly sounds more like a honk sound that sounds like it is coming from her neck 
  • poppy123456
    poppy123456 Community member Posts: 57,077 Disability Gamechanger
    edited February 2020
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    If you're worried you should either call 111 or speak to her GP. We are not medical professionals and we won't be able to give you any medical advice. https://www.nhs.uk/using-the-nhs/nhs-services/urgent-and-emergency-care/nhs-111/

    When babies have wind they can often make very strange noises. I know this because i've got 3 children. A baby with wind is completely different to an adult or order child that has it.


    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Adrian_Scope
    Adrian_Scope Posts: 11,386 Scope online community team
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    Hi @April2018mom.
    I hope you get some feedback about this soon from your GP. As mentioned above, the noises a baby will make when windy can be odd and very wide-ranging. Let us know how you get on.
    Community Manager
    Scope
  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
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    A quick update since I don't have endless amounts of time. 

    I went to see the pediatrician two days ago. I took a video of her breathing and showed her some photos as well. We were then re admitted last night. Early this morning we talked with a pediatric ENT doctor who has done some tests already. I also met with the pulmonary team who have also performed tests.  

    It is not wind. They have ruled that out. I did watch her during feeds but Francesca has not had any of the usual signs, squirmy legs, crying, making a fuss as I feed her, or turn red. Plus I doubt that wind causes stridor. I will update with more information later by the end of this week. 


  • poppy123456
    poppy123456 Community member Posts: 57,077 Disability Gamechanger
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    Your first comment said you had called the pediatrician for advice....

    All of this just proves that an internet forum is not the place to ask for medical advice because as advised we are not medical professionals.

    Gad to hear that she's being investigated with tests.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
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    UPDATE
    We are now home. Francesca is doing better. They discharged us today but want to see us again in a week or so to see if she is better. 
  • poppy123456
    poppy123456 Community member Posts: 57,077 Disability Gamechanger
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    @April2018mom Hope she's better now.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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