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Hoping to find some support

sophie99sophie99 Member Posts: 9 Listener
edited February 2020 in Parents, carers and disabled parents
I am 20 with a nearly 2 year old son, jaiden..he has cerebral palsy with an intraventricular brain haemorrhage..I am hoping to find some support just in the meeting new parents area 😊ĺ
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Replies

  • chiariedschiarieds Community Co-Production Group Posts: 9,254 Disability Gamechanger
    Hi @sophie99 - Welcome to the community & thank you for joining. Please do have a look around the forum any time & join in with any discussions. You can also chat here, or do both! :)
    I'll ask @jadealyssa to come & talk to you, as she has young son with CP. Can you help here please, Jade. Thank you.
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  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @sophie99 and welcome to the Community.  It is nice to meet you and thanks for joining us.  I hope you find our forum to be helpful and enjoy your time with us.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
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  • jadealyssajadealyssa Member Posts: 63 Courageous
    @chiarieds thank you for the tag <3

    Hi @sophie99
    Welcome to the community  as mentioned I have a son with CP he will be 3 in April and I understand as a parent how hard it can be to have an additional needs child. However it is so rewarding when they do the little things that children without additional needs do!
    How is your son? how is mobility? have you got a good support medical team behind you because they can make all the difference to your childs treatment and needs being met to give him the best chances and opportunities in life.
    Always here for support anything you need please ask 
    Thoughts and love sent.out too you 
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  • sophie99sophie99 Member Posts: 9 Listener
    @jadealyssa thank you! Jaiden is unable to walk unaided at the moment..He struggles daily due to other conditions that cause him distress frustration and meltdowns..it for sure is hard but more rewarding then anything..I've only just put in for referrals for help from the health team so I'm hoping to get some more support very soon! It's amazing to have another parent to speak to with a younger aged son! 
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  • jadealyssajadealyssa Member Posts: 63 Courageous
    @sophie99
    Yeah I can understand it being hard.
    My son didnt walk untill recently and as I say he will be 3 in april. However I flagged up something was wrong from 10month old as he couldnt sit unaided and wasnt making any attempt to be mobile. Was passed off constantly from g.p saying he was just delayed but I kept going back and saw different docs each time n finally got to see physio and and paediatrician. He got his diagnosis and they started serial casting for 6 weeks which worked wonders and he started to stand n take steps. He saw orthotics and they provided him with night splints, gators and specialist shoes. I have always said without the team and all they did for him he wouldnt be mobile at all.
    He was offered botox injections in his ankles to improve movement and he regularly sees physio who really streach him out and keep him from stiffening up. They always reccomend swimming which is fab for the muscle just being in the water alone will do wonders.
    Sorry for the long post but I just want you to know that there is always light at the end of the tunnel. Keep fighting keep getting answers and I really hope you get a great medical team! 
     <3 
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