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I cannot remember the last time I slept right
My Son has global development delay which makes him currently 11/2 years behind in hes education and mentally he has his issues especially at bedtime and up until last week I cannot remember the last time I slept right through and he never slept in his own bed , I have Celebral palsy so my sleep is key. this is my life
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I'm a carer for my husband
I'm a carer for my husband 52 who has life limiting dysautonomia. His particular diagnosis is rare and I've yet to be in contact with anyone in the UK caring for his condition - orthostatic hypotension, gastric and bladder problems, very low immunity, mood swings ( he can be particularly agressive and blunt verbally ) and…
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Creative coffee morning at Tate for parents & carers of D/deaf, disabled & neurodiverse young people
Parents and carers of D/deaf, disabled and neurodiverse children & young people are invited to join A New Direction at I Am Tate Exchange Festival for a creative and inspiring coffee morning. Find out more & book here: http://bit.ly/iamcoffeemorning I Am At Tate Exchange Festival is an ambitious partnership between A New…
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Help for parent carers of adult children?
Hello, Does anyone know of an Parent Carer if adult children organisations? Thank You
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CFS - ME
My daughter is 11 and suffers from CFS does anyone else have experience in this area ???? Having a nightmare with school considering homeschooling
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Looking to rent a 2 bedroom bungalow
I am caring for a disabled person and am looking to rent a 2 bedroom bungalow in Somerset with a rent level of approximate 500 pound a month. Has we are both on benefits.
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Do you find there is enough support for parents and carers?
Hi everyone, I’m Charlotte. Mother to Chayce 6 and Remii Lorraine 10 months. Chayce was diagnosed with Autism when he was 2 years old. I’ve since given up my business at co founder to As1 - a community group for parents of children with disabilities and special educational needs. We’ve found the work we do is very much…
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Disabled persons trust
Hi there I care for my wife who has progressive m.s I would like to protect her future needs but find that this seems difficult .any advice would be appreciated thanks
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Disabled Appointee
Hi I have been my Daughters Appointee for 9 yrs. My Daughter suffers with Bipolar 1 , Emotionally unstable Borderline Personality Disorder,Frontal Lobe Syndrome,Dysphoric mentsrual Disorder , Asthma, Duspraxia , Panic,Anxiety Disorder,Depression and self harms plus numerous other problems. I also have numerous health…
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Baby adaptations
Hi I am 21 weeks pregnant and a wheelchair user, I really need some help with adaptations around my house and for my power chair like prams, baths changing areas cost etc. This is my first time being disabled and I don't know where to start from so as you can imagine I'm freaking out. I don't seem to be getting any help…
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Is there anything else I can claim to help in this situation
I am looking for some advise. My son is disabled and just turned 20. I work 20 hours and I am his carer. I recieved disabled tax credit which has stopped. This is a massive drop in income and I am going to struggle paying my rent. He is now classed as a non dependent although completely dependent on me. He receives full…
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Are there other avenues of support for Dad?
Hello everyone Not sure where to go tbh. My Dad is 88 and struggles. Wondering the streets at night We're trying to cope as a family but we can't always be there He's 88 I try my best to support him. I don't know what to do . We had a really good social worker but Dad left hospital after his last episode as he wants to be…
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I have a 10 year old son who also has leukemia
Hi just joined the scope community, hoping to be able to share experiences and ideas. I have a 10 year old son who also has leukemia
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Fighting for my daughter to be allowed back in to mainstream.
My daughter is 14 has ASD and Adhd and has been suicidal and self-harming over the last two years. We don't attend school atm and are fighting for her to be allowed back in to mainstream. I also have an Adhd daughter who manages life well and a husband.
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I have 3 children with Autism
I'm Lisa I have multiple sclerosis. I have 3 autistic children. Want to say hello
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Disabled siblings
Hi, I am new here. I have 2 younger siblings with Special needs. My mum is their primary carer & she is 65 now & they are late 20’s & 30. They are both wheelchair bound and need help for everything. When I was 18 I moved out and started a life about 40 miles away. We were never really a close family. I am 37 now. I am now…
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Need some support, no family and friends to help now
hi everyone I'm new here and hoping someone might have some advice that could help. Sorry for the long story just want to give a clear picture, it could be longer I'm just highlighting lol. I'm a mum of 4 ages 13, 12, 9 and 3 my 12 year old has ASD, ADD, dyslexia, mearselin and challenging behaviour. My 9 year old is also…
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Carer for my autistic child.- building knowledge
Hello everyone I suffer from Fibromyalgia and I am also a carer for my autistic child. Looking forward to gaining more knowledge
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I am parent of a disabled child
Hi. I'm a parent of a disabled child.
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Family
I have problems getting out as I have moved and everyone keeps to them self I have no clue what to do ...... I dug a big hole 2 years Its. been it’s very difficult to cope with my health ..... a lot of issues going on can’t see a way out ......???
