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Support for ADHD

Hi there. My five year old has recently been diagnosed with ADHD and ODD and is currently awaiting and ASD assessment (I suspect PDA but I know they don't diagnose in my area). He also suffers from anxiety and has several ticks, vocal and physical. He's on ADHD medication. We're really struggling at the moment with the rebound behaviour when the meds have worn off and struggling with sleep. He's always slept badly and even with Melatonin it takes him ages to get to sleep and he wakes up several times over night. I shout a lot more than I want to but I'm working on it. We don't seem to be able to access any support because he 'only' has a dx of ADHD. All the support and awareness in our area seems to focus on ASD. Also struggling with school as they don't think there's any point applying for a statement even though they've admitted that he needs a permanent 1-2-1. So any advice on that welcome!
Phew sorry, that was a long one!
Phew sorry, that was a long one!
Replies
Good Evening & Welcome to our Community/family.
I am very very sorry to hear about your current problems.
We have got some good info for you below:
https://www.scope.org.uk/advice-and-support/families-with-disabled-children/
Please please let me know if you need any further help/support????
@steve51
Welcome to Scope, I hope you find our community helpful.
I am extremely sorry to hear about your current situation and I hope that speaking on here and meeting other people experiencing similar problems will help you and make you feel less alone.
I am one of the Community Champions so if you need any advice or help, please do not hesitate to ask, we're all here to help!
Have you posted in the autism forum on here? Hopefully someone else will be able to answer your questions.
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Sorry to hear about all of your issues. It can't be easy.
Even though it is statements in Wales, you can still self refer for one for your son. It is always best to have the school's support as they will be required to submit evidence if your county decide to go ahead with the statement referral but any evidence is useful such as any reports from professionals such as Occupational Health, Speech and Language an so on.
Because your son is on the pathway for ASD, have you thought about using our Navigate service. I am one of the parent advisers for the free service which is for parents of children on the pathway to a diagnosis or who have been diagnosed within the last year. The service is designed to provide emotional support and practical advice over a six session period. This support comes in the form of up to an hour long phone call each week for six weeks.
If you feel that this is something that my help, you can either ring us directly for a referral on 0808 801 0510 or click on the following link to take you straight to the referral form.
https://www.scope.org.uk/family-services/navigate/
I hope that we can help you in some way.
Take care,
Beverley
Parent Advisor
Navigate