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Cerebral Palsy and Pregnant?
Hey everyone, I'm new here but it's been recommended to me by a few people over the years. I'm a full time wheelchair user with quadriplegic cerebral palsy - and I've recently found out I'm pregnant (unplanned). Does anyone here have any experience or tips that they could share on the journey and how they found it? Thanks…
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Respite Support
I am looking for advice on where I can receive overnight respite support or if anyone in the community has got any experience of this or can point me into a general direction… My son, who is 6, has severe Autism. He needs support in almost allaspects of his life. He also has a sleep disorder, which means no two nights will…
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Link for go fund me : for disabled child
I’m trying to go fund me for my daughter : won’t give nature just yet . But am I allowed to put on this site the link as it’s due to disabilities? Thanks
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Hi, my name is Hearn1958! Wanted to see what help I can get for my son
Hi I'm Melanie ive joined this group to see what help I can get for my son I am his carer and he needs help with a new bed and cook can anyone point me in the right direction. By the way he has paranoid schizophrenia. I look forward to hearing from someone. Thanks
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Help with mum's social care assesment?
Hello, I have requested a needs assesment for my Mum. Social care advised I need to request a continuing healthcare assesment first and wait for the outcome. The CHC process can take weeks. The checklist has been completed which has triggered an assesment but they can't give timescales. My Mum has care and support needs so…
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Finding days out so hard just don't know what to do.
Hi, My eldest child has Autism and my youngest doesn't. Days out are often so hard with refusal to walk, he often gets stuck on things he sees he enjoys and won't move then I'm forced to try and carry him away and he gets very violent I just don't know what to do. I don't want to be unfair to my youngest child who loves…
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Renewal child Dla
Need advice for the future please.My son is in.reciept of Dla for his adhd.It is only for 1 year.He has had no treatment or help since his diagnosis and so I will have no further 'evidence' to send when I need to renew.What should I do?
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Informal kinship care
I’m looking for some advice about informal kinship care. I’ll try to make this short. My mum is 48 with a 3 year old son, she had him after her boyfriend (10 years younger than her) basically bullied her into having this child. She’s a functioning alcoholic and substance abuser (marijuana) and has borderline personality…
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Two teenagers with ADHD, any advice would be appreciated
Hi everyone, Claire here. I’m a mother of two teenage daughters, both of whom have confirmed ADHD. My youngest, who is 14 was also diagnosed with ASD. She is refusing to have any contact with me and is living with her dad. He is doing nothing to encourage her to see me. I am sad beyond belief. Any advice would be so very…
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Am I wrong to be concerned about autistic son Around ex’s partners
Really difficult to explain and I imagine some won’t either see the problem or agree with me, I do get that. My son is five and is severely autistic. He lives with me as I’m more consistent around routine etc than his mum. He needs a very strong routine and her having two other kids makes that harder for him so we decided…
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Elderly Parent who is a carers & planning for the future
Hi everyone, I'd really appreciate some advice and help. My parents have been the main carers for my sister the whole of her life. My Dad died at the end of last year leaving my 79 year old mum and 55 year old sister who has cerebral palsy. My sister has carers who come in to help get her up/washed/use the toilet etc 5…
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My mother’s not interested in my son
Interested to see if any other parents of disabled children have these problems. I’m a single Dad and my boy who has autism lives with me full time. There’s just me, no other family or friends sadly. My mother just isn’t interested in my boy though. She doesn’t dislike him but just makes no effort. In 4 months she’s spent…
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Have you faced accessibility problems with your local playground?
You know all
children have an equal right to play. Play feeds imagination and forms friendships. But how many times
have you gone to a playground to find
it’s
not inclusive for disabled children? Disabled
children shouldn’t
have to fight for their place in the playground. You and your family
deserve to feel a part of your…
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Help with school uniform
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Where do I start?
My daughter is 17, has autism, LD, anxiety (not diagnosed) and her OCD part of autism is in overdrive. she hasn’t left the house Feb 21st so hasn’t been to school so I can’t go to work. we have had ups and downs and she is on Sertraline and risperidone but the last two days is refusing all meds. she demands everything her…
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Hi, my name is Heather Looking for support for my son
I am mother to a 25yr old son with CP, MLD, ASD and epilepsy. We live in North Devon and struggle to find support for him. He is starting to think about independent living and wants to move to North Somerset, specifically Portishead where he has family and friends…. I have no idea where to even begin to help him achieve…
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Non epileptic seizures in children
My 15yr old daughter has epilepsy but controlled by medication. She now also has NES but they only occur at school. If you have a child with this, what support do you get from their school. thanks in anticipation of your reply Lisand70
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Short term respite?
Hi, I am very new to this community and would like some advice please. I have a 15 year old son with Autism, and oppositional defiance disorder. I'm a single parent and my son is adopted. I would like to know if there are any short term respite accommodation available so I can have some breaks.
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Personal assistants. Direct payments from local council
My 29 year old daughter was recently assessed by a social worker who has recommended she has a PA for 6 hours a week to help her with independence skills and companionship. I have received a prepayment card but no information or support about how to proceed. Help!
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Council housing and autistic child
My family and I have recently been served a Section 21 by our landlord as they want to sell the property. Due to our financial situation we cannot afford a private rented property anymore, we are currently in the process of going homeless and have approached the council for social housing which has been accepted. They have…
