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Hi, my name is GranDad73! Caring for deceased friend's children, what financial help is available?
Hi everyone I'm new here but really need some advice because social worker I'd unable to help support. Long story short my Deceased friends husband abandoned their two daughters back in April. Tnd social services asked me if I would care for the girls on a voluntary basis and of course I said yes .However I has to pass and…
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End of an era for Cerebral Palsy Cymru
Glenys Evans, founder of Cerebral Palsy Cymru, retires after 35 years. Thirty five years ago, Glenys was one of a group of parents who started a specialist therapy centre in Whitchurch, Cardiff for children with cerebral palsy. She has been involved in the centre, now based in Llanishen for all of those 35 years. Sadly…
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Grants and funding for families
Life costs more if you’re disabled. On average disabled households need an extra £1,067 a month to have the same standard of living as non-disabled households. These can mean having to decide where to allocate your money. Your family might miss out on the little extras, or it can take a long time to save for a piece of…
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Music class for autistic children
hi I’m searching for music class for my autistic niece. She likes music but we have never find a good class for her.. it will be great if anyone can suggest me.
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Can I challenge a camhs assessment
Hi there my 15 year old daughter has Autism but both me and my daughter strongly suspect she also has adhd. We waited 2 year for her to be assessed which was in 1 hour by one man then it went to a panel of people who have never met my daughter. Well the decision was given to us yesterday that yes she has adhd traits but…
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Support for My 34-Year-Old Daughter Recovering from a Severe Stroke Abroad
Hi recently joined as my adult daughter age 34 had a severe stroke whilst on holiday at my home in Spain She is still in Spanish hospital This community will be a great help for me when we eventually get her back to the UK
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Appealing Social Services Decision: Struggling with Care Needs and Parent Carers’ Declining Health
Social services won't get carers in to help me because "my needs are being met by my parents." My parents health is declining they both receive PIP. I am going to appeal the decision. If my parents continue to care for me, it will kill them or break us apart. Any suggestions would be very welcome, I am so stressed and…
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Beyond Mother Love, upcoming documentary film
Hi there, my name is Jen and I'm the parent of a child with Down's syndrome and Autism. I am also the director of Beyond Mother Love, an upcoming documentary film and qualitative research study about friendships between people with and without learning disabilities; that cross cognitive divides -www.beyondmotherlove.com…
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Need some advice for my son who is 13 with suspected autism/ADHD
Hello, i need some advice if anyone can help please. my son has suspecteed autism/ADHD he is 13, he has been refered to St Davids for a diagnosis. We have been let down by the school firstly a missed referal to St davids in year 5 after waiting 3 years and chasing this up we realised he was never referred. He was on a PSP,…
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Daughter with CFC syndrome
Hi I'm a parent to a 7 year old girl with a extremely rare condition (CFC syndrome) wanting to communicate with other parents
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DLA
My son has ACC , I wanted to know if any other parent has a child with the condition and if they have been offered support? We just recently found out about DLA but my son gets middle rate . I know he is eligible for hrc and hrm because he ticks all the boxes , but I don't know what they will decide. Has anyone had similar…
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Agenisis of the corpus collosum
Hi, I'm a mom to a child with ACC, if anyone else has a child with the same condition I would love to speak to you, he's being assessed for Autism and Adhd , now is 5 and is the absolutely best thing in my life right now , he's so loving and so beautiful and is taking every day as we go. I want to say to new parents, don't…
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Hi, my name is thomashughes714! I'm in need of social care, but cannot pay for it.
I'm 53 year old Spina Bifida Sufferer and I need your help please. I'm in need of social care and have been getting care from a wonderful team in Rugby, but I've been told that I've got to pay £107 per week for my care. I get pip and my wife receives carers allowance, but my wife has got Fibromyalgia and is too ill too…
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Looking for places for 25 year old son with learning disabilities to socialise
Hi, I have a 25 year old son with learning disabilities. We are trying to find somewhere for him to make friends and/or socialise online and in person. Any advice would be welcome. We live pretty rural , roughly 39 min from Carlisle. Thank you
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Hi! New mum of disabled baby... Agenesis of the Corpus Callosum
Hi everyone ?? My name is Deborah and my son is 16 weeks old. Being a mum is brilliant, but we are struggling. He has complete Agenesis of the Corpus Callosum (the CC is a piece of the brain which allows the right and left-hand sides to communicate. He is missing his entirely), and also diagnosed yesterday with Optic Nerve…
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Hi, my name is Carlykins! Any ideas to help my child sleep?
I have a child with autisum,ADHD and global developmental delay. She is 9 years old and we still have problems getting her to sleep every night. we have tried everything and wondered if there was anything else we could do. from a very worn out mum, dad and two big brothers
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Hi Will I still get my regular payments while waiting for my carers allowance letter?
I'm still waiting on my copy of entitlement carers allowance letter.would I still get my regular payments every week?
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Hi, my name is Alicegirl! Caring for husband after stroke
Hello. I have just started caring for my husband who's had a stroke. He was discharged from a nursing home. I do have carers coming twice daily to help. I'm feeling lost and a bit overwhelmed by it all and would just like to know if anyone is in the same situation. Thanks.
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Benefit frauds claiming child Dla
Apparently there are actually people claiming this benefit who don't even look after their child or even live with them!.it's people like this who make the system harder for genuine parents trying to access help for their child/children. Ultimately they will get caught out and will either have to pay back ALL the money or…
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Need help with disabled son
I’m looking for help and things to do for my adult disabled son and to also give me some kind of break, it’s not good for him to be with me 23/7
