-
DLA
My son has ACC , I wanted to know if any other parent has a child with the condition and if they have been offered support? We just recently found out about DLA but my son gets middle rate . I know he is eligible for hrc and hrm because he ticks all the boxes , but I don't know what they will decide. Has anyone had similar…
-
Agenisis of the corpus collosum
Hi, I'm a mom to a child with ACC, if anyone else has a child with the same condition I would love to speak to you, he's being assessed for Autism and Adhd , now is 5 and is the absolutely best thing in my life right now , he's so loving and so beautiful and is taking every day as we go. I want to say to new parents, don't…
-
Hi, my name is thomashughes714! I'm in need of social care, but cannot pay for it.
I'm 53 year old Spina Bifida Sufferer and I need your help please. I'm in need of social care and have been getting care from a wonderful team in Rugby, but I've been told that I've got to pay £107 per week for my care. I get pip and my wife receives carers allowance, but my wife has got Fibromyalgia and is too ill too…
-
Looking for places for 25 year old son with learning disabilities to socialise
Hi, I have a 25 year old son with learning disabilities. We are trying to find somewhere for him to make friends and/or socialise online and in person. Any advice would be welcome. We live pretty rural , roughly 39 min from Carlisle. Thank you
-
Hi! New mum of disabled baby... Agenesis of the Corpus Callosum
Hi everyone ?? My name is Deborah and my son is 16 weeks old. Being a mum is brilliant, but we are struggling. He has complete Agenesis of the Corpus Callosum (the CC is a piece of the brain which allows the right and left-hand sides to communicate. He is missing his entirely), and also diagnosed yesterday with Optic Nerve…
-
Hi, my name is Carlykins! Any ideas to help my child sleep?
I have a child with autisum,ADHD and global developmental delay. She is 9 years old and we still have problems getting her to sleep every night. we have tried everything and wondered if there was anything else we could do. from a very worn out mum, dad and two big brothers
-
Hi Will I still get my regular payments while waiting for my carers allowance letter?
I'm still waiting on my copy of entitlement carers allowance letter.would I still get my regular payments every week?
-
Hi, my name is Alicegirl! Caring for husband after stroke
Hello. I have just started caring for my husband who's had a stroke. He was discharged from a nursing home. I do have carers coming twice daily to help. I'm feeling lost and a bit overwhelmed by it all and would just like to know if anyone is in the same situation. Thanks.
-
Benefit frauds claiming child Dla
Apparently there are actually people claiming this benefit who don't even look after their child or even live with them!.it's people like this who make the system harder for genuine parents trying to access help for their child/children. Ultimately they will get caught out and will either have to pay back ALL the money or…
-
Need help with disabled son
I’m looking for help and things to do for my adult disabled son and to also give me some kind of break, it’s not good for him to be with me 23/7
-
My wife/caregiver has been told by UC that they can’t find her immigration status?
The situation that we are currently experiencing with UC is tantamount to harassment. Initially they wrote to us both via the work coach asking us to submit our finances for the last three months, so we did. Next they asked us to upload our ID - so this was also done. My wife had to resubmit her ID with her passport beside…
-
Christmas! the dreaded C word!
This is a very long story so I'll cut it down to the main crux of my problem. I don't want our eldest child and their partner to come to us for Christmas this year. They're 30 years old and have always come to us but this year I just don't have the energy to host them for a few days (that's where the long story part comes…
-
Sleep issues for older asd/adhd
hi, my name is Eileen and I’ve brought up my adhd/asd grandchild up from a baby, never slept well, now 23 getting no more than 2 hours a night and when he does sleep nightmares all the time, we have tried sleeping pills don’t work as once took 24 and still didn’t sleep for next 3days, this impacts him a lot, any…
-
getting an sgo in family court?
can I get advice about sgo in family court? Sister trying to get one nd I’ve been diagnosed with adhd
-
Hi, my name is lori! 5 year old son struggling in school - ADHD and ASD
my son is 4y10 months, 5 in January. He recently started reception in September however has attended the school including the nursery since 3. He has struggled throughout this time and I have been having TAF meetings for 1.5 years. He does not have a diagnosis yet but school suspect he has ADHD and ASD. Dad also has ADHD.…
-
No carers element when on Lwrca as a single carer
I think it's a shame that as a disabled single carer you cannot claim the carers element/allowance ( not sure what it is actually called).But if you had a partner one of you can claim.As my child constantly breaks things and although I get his dla.By the time I've now got this new u.c my income is down and struggling so…
-
Adoption application
My wife and I are beginning to look into adoption, but I’m feeling anxious that my disability might affect our chances. I have hEDS, POTS, and IIH, and I’m an ambulatory wheelchair user. We’re planning to go through our local authority (Southwest), and I’d love to connect with anyone who has been through this process as a…
-
Hi, my name is jgidi!
My 9yr old autistic grandson finds it difficult to fall asleep at night. Never ask about day time, he rarely takes a day time nap. He wakes up early and falls asleep late. Will it help if I am a bit more strict with the bedtime routine or be a bit more flexible?
-
Hi, my name is mumeedin! Could my daughter be autistic or is it PANDAS?
Hi my daughter is 12, up until this year - no issues at all. Last June she had a violent vomit episode (she'd not been sick for 11 years) and since then shes had increasing nausea. Its now at the point she only eats chicken tenders, waffles, raspberries and choc brownies. She wont leave her room. Hasnt started high school.…
-
Hi, I need some advice for childcare
I’m really hoping someone can help. I was made permanently disabled in a car crash when my daughter was 3 months old. My plan has always been to return to work when i finished mat leave but life’s been a lot more complicated. I’m now running out of stat sick pay and I’m realizing I’m not well enough yet.. My daughter goes…
