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Carers allowance
Morning all I would like to ask a question that I have never seen discussed or asked. I became a carer for my mam 10 years ago, I applied to the dwp everything went OK and they started paying myself carers allowance. A year ago I had to stop caring as her dementia was just too much,and sadly not long after she died,…
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i really need some help
where to even begin i know this is going to come across like i am only focussed on money and sounds terrible but it im struggling a lot and do not have any support sorry if this does not make sense i am panicking and crying i do not know how i will cope today my statement has come and i have been benefit capped and they…
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Carers Hourly Rates
Checking rates for private carers on the Curam homecare lists the cheapest carers i can find in my area are £20 per hour but most are around £25-£30 per hour. With the national minimum wage currently set at £12.21p are some carers pricing themselves out of employment because at £25ph that's double the minimum wage.
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Feeling guilty as a carer when you’re exhausted – how do you reset?
I care for my parents alongside a full-time job and, most days, I just about manage. But every now and then I hit a wall and feel completely worn out. On those days I’m not as patient as I’d like to be with my dad, and afterwards I feel really guilty. I know I’m not the only one juggling work, caring and trying to have…
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Christmas Bonus
I was paid my £10 for PIP - over 2 weeks ago My wife/carer has still not been paid hers as a carer yet !!
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Universal credit : Carers element
If you receive high rate care component of PIP for yourself so you receive limited capability for work also and you look after a disabled child who gets PIP, high rate care and mobility, you receive Carers allowance for them are you entitled to the care element for them also, or no because you get the limited capability…
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pedro boot ,splint ,gaters
my daugther has not had her boot on for 4 mounth and now has to where splint and now gatters to has her tendens are very titte and finding it hard to walk ,I do not know that much about cerebral palsy ,she is 31 years old and 31 kg 4 feet tall ,born with small brain microcpaly ,I need some help with this she is wheel chair…
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Appointees
I am an appointee for my child, I have a bank account for them but in my name, as appointee. What happens if I die, can I request that another family member has access to this account/becoming their appointee? I have looked into Deputyship but it is so expensive I’m not in a position to apply for this at present.
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Carers Assesment
Hello Hoping For some advice . I’ve cared for my husband pretty much solely since he had his life changing RTA accident 19 months ago. He got lost in the system as I only found out two months ago and thought it was normal the way I had it deal with everything . Anyhow, adult social care team and the occupational therapy…
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Short Changed by Care Agencies
In my experience an issue with care agencies is carers routinely failing to stay for the allocated time. For me its clearly endemic across the entire care system that carers routinely leave early. Ok, carers have such a tight schedule if they can gain a few minutes on every visit travelling to the next client becomes much…
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Adult pads
Hi everyone I could really do with advice. I care for a family member who is double incontinent bit the local continence people will only allow 4 pads a day. Years ago it was 3 but they grudgingly increased it. I can't leave him in soiled pads, his skin burns etc. He is getting through 6 or 7 a day. We are having to self…
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Growing up with cerebral palsy, then, now and what comes next. Podcast
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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Sleep deprived
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Direct Payments
I believe Ive got myself into a sticky situtation. We astarted getting these payments in the pandemic and tgeyve never been reviewd..I have been using them for cleaning products and care items instead of a respite carer for me...what can i do?
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You cannot change the path of destiny
All this time ive been fighting so hard for support and reading back over my own posts and notes I realise that this has been going on for 15 months.Its now obvious to me that there is obviously a greater power going on that simply defines my future path.So I am no longer going to do anything about anything as this it…
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Neurodivergent son being taking advantage of
So my mum who is a narcissist and whom I haven't spoken to for many years has ACTUALLY phoned me today to say that she is concerned about my son over this situation with this girl.So know I know the situation is bad!.The question what can/do I do about it?.In brief my son got chatting with a girl who used to go to his…
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Help with sleep for autism toddler
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15-year old son has Becker Muscular Dystrophy
I have a 15 year old son who has Becker Muscular Dystrophy. It's a degenerative condition causing muscle weakness and wasting. I wonder if there are any other people on here who's child has a similar condition?
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Dying
My brother brother was born 71 years ago with the umbilical cord wrapped tightly around his neck. Thus resulted in catastrophic brain damage, mild LD and CP. Despite predictions to the contrary, Edward learned to walk and talk, read and write. When mum and dad died Edward had to go into supported living where he was…
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Pension credit
Hello, i’m trying to get some advice please as i seem to be getting different answers, i’m currently in the process of claiming carers element in order to care for my mum full time, i’m currently on UC and put the claim in via my UC, when speaking to citizen advice they’ve told me claiming carer element wouldn’t completely…