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Ehlers-Danlos Syndrome (EDS) & Hypermobility Spectrum Disorders (HSD) Awareness Month
May is EDS & HSD awareness month. What does it mean to me? I had had problems since being a teenager (tho my Mum later told me she'd taken me to our GP when I was about 9; his diagnosis 'growing pains'). I don't think I thought much about the problems I had as they were just a part of me tho my Mum said don't mention these…
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Research Project on Music Listening and Psychosis
(Please delete if not appropriate) My name is Mark Rowles. I am a PhD student at the Royal College of Music in London conducting a project which explores the role of music listening in the lives of individuals who experience psychosis. I also have experience of caring for a loved one who has experienced psychosis for many…
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Advice and support about nurse training at university with disabilities
Hi, Looking for some help and advice …so I want to become a nurse with no qualifications. I am currently receiving UC and PIP. I feel as if I have all the odds stacked against me… I will be about 55 when I qualify I have ADHD/autism a bad back arthritis in my hip and the start of arthritis in my hands. Am I being…
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Open letter to the chancellor about benefits cuts and harms already caused
please sign and share https://sites.google.com/view/openletterdisabilitybenefits/home
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Limited capability for work
hi I’ve just had my assessment back and I have been awarded limited capability for work and work related activities,my concern is that my partner is going to be moving in with me soon and he earns a good wage that we won’t get any UC so does this me I will lose limited capability for work benefit?
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April is World Autism Acceptance Month!
Hey folks! Yes it's that time of year again where I like to help spread the good word of neurodiversity and acceptance by making a few discussions regarding autism. Autism Acceptance Month (WAAM) was previously known as "Autism Awareness Month" but due to pushback from the autistic community it's been renamed. As although…
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24th July 2024: new look coming to the online community
Hello everyone, We have some exciting updates to share with you! On 24th July 2024, we’re giving our online community a fresh new look. This update will bring an updated design that cleans a few things up and fixes a few lingering problems. What’s changing? A new home page design with a cleaner layout An updated category…
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One of our storytellers, Kevin, is talking about potential benefits cuts in The Guardian.
It's very exciting to see Kevin being interviewed in today's paper, talking about something that is important to each of us in the community. Read all about it here.
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Community charges
Having paid my community charges in full and on time I have just received a demand for£126 for February . Is this legal
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A message to Scope about PIP
Can someone from Scope reply please. I want to know if what was announced today set in stone or can it be stopped. I am so scared that I am going to lose my PIP which runs out again in 2 years and my car which I rely on. Without it I am housebound. I want to know if this has to go through the courts or if this is just…
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World Mental Health Day 2024
It feels like I wrote about World Mental Health Day 2023 a couple of days ago, wow, time flies! Every year on October 10th, people around the globe come together to observe World Mental Health Day. This annual event, initiated by the World Federation for Mental Health in 1992, serves as a platform to raise awareness about…
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Expanding the Warm Home Discount Scheme 2025 to 2026 - consultation closes 11:59pm TONIGHT!!
Open consultation Expanding the Warm Home Discount Scheme, 2025 to 2026 From :Department for Energy Security and Net Zero Published 25 February 2025 Get emails about this page Applies to England, Scotland and Wales Summary We are seeking views on extending the Warm Home Discount scheme 2025 to 2026 to all recipients of…
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Pip wca
If notings set in stone why has The New pip form been leaked ? And everything written as this is happening including wca
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Fond farewell to Jimm
Hi all, We wanted to let you know that Jimm_Scope has left the community team and moved on to new adventures and challenges. It’s always sad when members of the team move on to pastures new; but we wish them all the best for their future projects. If you need advice of support on the community, the rest of the team are…
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Resigned
More than 20 mps have resigned under starmers leadership to become independent let's hope keeps rising
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Best time to post for traffic on Scope?
I have things to ask that I'm struggling so hard to find answers to so I don't want to reduce my chances of getting that one answer that might help. When is there most traffic?
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Pip change
Hi so the new 4 point pip change late next year. Is that for new Claims first . Or is that for everyone? Say if I get my pip reviewed this year and get awarded for 3 years . Will I have to have another assessment next year when the new 4 point system comes in ?
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PIP
I received 2 points on every 10 qustions I'm in a wheelchair and have a brain condition and a heart condition and can't move around on my own I did get 12 points on mobility part but carers part i got 2 points on every qustion what am I going to do ? I need 4 points to pass Do i need to pass away to get accepted
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Responding to the Government's Green Paper
This week, the Government published a Green Paper and a consultation about changes to disability benefits. First things first, it is important to know that Green Papers do not set out final decisions. They are a way for the Government to explore options and get people’s views before developing the final changes. The…
