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Opinion on back pain going untreated
Hi everyone! I am am not really sure I am in the right place here, but needed to seek some advice on my story. At 21 I had emergency surgery to relieve pressure on my spinal cord after getting cauda equina syndrome - and fast! This developed two days after trauma and was aggressive. I woke up with full saddle anesthesia…
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Fnd
Hello I’m wondering if any one can help I have been having attacks of fnd for last 5 years in 2014 my legs stop working had mri and neurologist appt given a web site and sent home since then my legs have gone weak and neck then in my face I’ve been lucky this only seems to last a few days neurologist saw me and said it’s…
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Is it worth it?
Apologies if this is in the wrong section but there isn't a Chronic Pain section that I could find easily, though admittedly my major problem these is the Neurological Pain caused by continuous Chronic Pain damage over a long period. Today is yet another bad day, I get them quite a lot but today is a day I should ask for…
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Isolation of deaf
I think the idea of sending out postcards etc to the lonely is such a good idea. I for one know how deaf can isolate. Pen pals would be so good too even for those of we already retired. I had penpals years ago for the same reason. Lack of sound.
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CIDP
Hi, I was diagnosed with CIDP in November last year. Anybody out there who would like to share experiences?
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FND
Just been diagnosed with F N D
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Anyone with Functional Neurological Disorder?
Hi does any one have this condition and how does it affect your live and what help is their out thier
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Do you have problems processing the sounds your ears hear
Hi all, Many can have problems with their brain processing the sounds that their ears hear, this can be a genetic issues and is an Auditory Processing Disorder (which is a life long set of issues and symptoms which can include developmental dyslexia), and there are acquired causes such as brain injury, stroke, and dementia…
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Debilitating, undiagnosed set of symptoms - anyone recognize?
Hello, I recently came across this forum, and it is nice to know that I'm not the only one who suffers froma disabling, undiagnosed condition. I feel like I can't really talk to anyone about this because no one seems to take me seriously. I will list a few symptoms in the hope that someone can recognize them (though I…
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Does anyone's feet cramp after bending toes?
This happens to me and I want to have an idea about what disease I have. I also have tremors, myoclonus, twitches and an absent heel reflex.
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I need some advice on how to cope with Restless legs syndrome
Hi, my name is Maria and I've been struggling recently with RLS, not sleeping, pacing the room etc. Can anyone odder some advice on how to cope? Thanks
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Let's talk chronic pain
Who on here suffers with chronic illness?
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Local council refuse to help me due to no diagnosis!
So long story short, I've been having chronic abdominal pain since November 2018 following a hospital admission for fluid in my Fallopian tube (all cleared up now so not the answer!) Since the new year my symptoms have been getting worse and my flare ups are making it harder to live normally still. My boyfriend is…
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Peripheral neuropathy
I have chronic pain and poor mobility following a life changing broken right leg 9 years ago and then 11 surgeries. I rely on crutches and a mobility scooter. Now I have been diagnosed with Peripheral neuropathy in my left leg and at a follow up have drop foot aswell. The Consultant is very concerned and has said I will…
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Anyone have Post Polio Syndrome?
Hi, just joined today. I was born with polio in 1959 and am wondering if anyone else has had polio and is now suffering from PPS?
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No sleep tonight
Hi all, anyone else joining me with the no sleep tonight syndrome? I have an appointment tomorrow that I need to be up at 6am to get to, we live in the back end of nowhere and that's the nearest hospital that has a neurosurgeon ? my appointment is at 9:30. I was told almost a year ago I have a syringomyelia, they found a…
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Is there anyone who can relate to me who i could chat with?
Hi everyone! I am new here. Living Bath Central. I am a diabetic type 2, with arthritis in both knees and left hip. Is there anyone who can relate to me who l could chat with?
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social islation
Hi everybody, I am new 2 this group. I have hydrocephalus and have not been able 2 work since my diagnosis. My main problem is that I sometimes get a feeling of social isolation. I am very much a people person and could chat for ages.
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Chiari 1 post surgery recovery
Hello, I'm a 28yr woman who is 20days post op foreman magnum decompression surgery. Does anyone have any tips or advice for recovery? I know every day is going to be different but I'm really struggling with headaches, fatigue, nausea and lack of appetite. Thanks for reading
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Finally got a diagnosis
a couple of weeks ago I went to the doctors with lots of symptoms that I thought were causes by ME my doctor did a few test and then sent me for a chest X-ray, blood test and a ecg. I went back to see him in Monday and he asked me what i thought was causing the symptoms and I said ME he said he agreed. I thought it would…