new opinion — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.

new opinion

pollyanna1052
pollyanna1052 Member Posts: 2,032 Disability Gamechanger
Hi, this could be a long story, but I`ll try to shorten it...after all it has been 20 years!
When I was 45/46 I began falling..my left leg felt like wood..then I had foot drop and stiffness in my legs and spasms in my arms. 

My bladder and bowels were very unpredictable. I had supra pubic catheter fitted.

I was diagnosed with Primary Progressive MS. Within a very short time I became a wheelchair user....

10 yeas later, the MS diagnosis was exchanged to Hereditary Spastic Paraplegia

A few years later I had a genetic test, which was negative. So my HSP label was changed to a big fat ?

I saw 16 neurologists in as many years. No-one could diagnose me!

2 years ago, I was discharged from the neuro department.

I had to accept and just get on with it.

Last week I was given a new chance at being diagnosed.

I`m hoping to get a referral to The Walton Centre in Liverpool. It is the only neuroscience hospital in UK, with top professors and doctors.

Maybe I will get that elusive diagnosis, eh? I am not expecting miracles!


Comments

Brightness

Complete our feedback form and tell us how we can make the community better.