Invisible impairments
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Can fibromyalgia go into remission and come back?

ivycottageivycottage Member Posts: 6 Listener
edited September 2019 in Invisible impairments
Good morning. I’ve just signed up to this forum as I am totally bemused by my condition and hoping you can help me. 
Around 4 years ago I was told I had fibromyalgia. I tried various different types of pain relief and nothing helped. I was actually unsure the diagnosis was correct but I’m not a dr so went with it. After 2 years my symptoms suddenly started to go away and for the last 2 years I have been symptom free. I felt so well that in March I started my own cleaning company and now clean 4 days out of 7. Most days 6-7 hours a day. The last few week I have started feeling unwell again. Very similar to before. 
My question is, can fibromyalgia go into remission and come back and have I chosen the wrong career choice? Or should I go back to the drs and see if there’s something else going on? 
A new symptom this time is not being able to lie on the right side of my head at night. It causes a lot of pain around my ear and eye on that side and pressure across my forehead. I didn’t have this last time and wonder if anyone else suffers like this?


  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    edited September 2019
    Hello @ivycottage   Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions. We guide, advise and help new members who join the forum.

    Thank you for your question about your condition. Unfortunately we as a community are not medical professionals.

    As with any illness or condition. I would always speak to your GP about any new symptoms.

    Hope that helps.

    Please if we can help with anything else further please get in touch.

    Please take care.


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • ivycottageivycottage Member Posts: 6 Listener
    Hello @thespiceman

    Thanks for your reply. I think I may have phrased my question wrongly. I was more wondering if anyone else with fibromyalgia had experienced a similar thing. 

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    I was diagnosed with fibromyalgia 6 years ago and my diagnosis took 2 years and i had every test imaginable before i was finally diagnosed. I suffer every single day with severe pain across the whole of my body and for me late afternoon onwards is my worst time. I have days were i'm better than others, depending on what i've done that day but i never ever have good days.  I also suffer with other conditions to.

    We are all affected differently by these conditions and you can't compare 2 people. For this reason I agree with @thespiceman you should speak to your GP regarding this because we are not medically trained here.

    Good luck and i hope you get some answers when you speak to your GP.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ivycottageivycottage Member Posts: 6 Listener
    firstly im sorry to hear you are constantly in so much pain. 

    I will speak to my gp this week. Thanks for your reply. X
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Hi @ivycottage
    I think it is a good idea to see your GP, let us know how you get on.

    You can also take a look at Fibromylagia Action UK who also have a helpline that perhaps could help? You can contact them on 0300 999 3333
    Senior online community officer
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Hi @ivycottage and I just wanted to welcome you to the community. I'm sorry to hear the pain has returned and I hope it goes okay when you speak to the GP.

  • ivycottageivycottage Member Posts: 6 Listener
  • ivycottageivycottage Member Posts: 6 Listener
    Hi! I went to see my gp yesterday and have been referred back to rheumatology. No further answers yet other than the gp said symptoms can get better and come back. So for now I’m trying to control my pain with an anti inflammatory diet. 
    Thanks for everyone’s replies and advice. 
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,997

    Scope community team

    Best of luck with rheumatologist @ivycottage. I hope they're able to give you some answers and help you manage and symptoms. 
    Senior Community Partner
  • ivycottageivycottage Member Posts: 6 Listener
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