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Anyone with Functional Neurological Disorder?
Hi does any one have this condition and how does it affect your live and what help is their out thier
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Debilitating, undiagnosed set of symptoms - anyone recognize?
Hello, I recently came across this forum, and it is nice to know that I'm not the only one who suffers froma disabling, undiagnosed condition. I feel like I can't really talk to anyone about this because no one seems to take me seriously. I will list a few symptoms in the hope that someone can recognize them (though I…
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Does anyone's feet cramp after bending toes?
This happens to me and I want to have an idea about what disease I have. I also have tremors, myoclonus, twitches and an absent heel reflex.
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I need some advice on how to cope with Restless legs syndrome
Hi, my name is Maria and I've been struggling recently with RLS, not sleeping, pacing the room etc. Can anyone odder some advice on how to cope? Thanks
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Let's talk chronic pain
Who on here suffers with chronic illness?
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Local council refuse to help me due to no diagnosis!
So long story short, I've been having chronic abdominal pain since November 2018 following a hospital admission for fluid in my Fallopian tube (all cleared up now so not the answer!) Since the new year my symptoms have been getting worse and my flare ups are making it harder to live normally still. My boyfriend is…
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Peripheral neuropathy
I have chronic pain and poor mobility following a life changing broken right leg 9 years ago and then 11 surgeries. I rely on crutches and a mobility scooter. Now I have been diagnosed with Peripheral neuropathy in my left leg and at a follow up have drop foot aswell. The Consultant is very concerned and has said I will…
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Anyone have Post Polio Syndrome?
Hi, just joined today. I was born with polio in 1959 and am wondering if anyone else has had polio and is now suffering from PPS?
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No sleep tonight
Hi all, anyone else joining me with the no sleep tonight syndrome? I have an appointment tomorrow that I need to be up at 6am to get to, we live in the back end of nowhere and that's the nearest hospital that has a neurosurgeon ? my appointment is at 9:30. I was told almost a year ago I have a syringomyelia, they found a…
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Is there anyone who can relate to me who i could chat with?
Hi everyone! I am new here. Living Bath Central. I am a diabetic type 2, with arthritis in both knees and left hip. Is there anyone who can relate to me who l could chat with?
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social islation
Hi everybody, I am new 2 this group. I have hydrocephalus and have not been able 2 work since my diagnosis. My main problem is that I sometimes get a feeling of social isolation. I am very much a people person and could chat for ages.
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Chiari 1 post surgery recovery
Hello, I'm a 28yr woman who is 20days post op foreman magnum decompression surgery. Does anyone have any tips or advice for recovery? I know every day is going to be different but I'm really struggling with headaches, fatigue, nausea and lack of appetite. Thanks for reading
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Finally got a diagnosis
a couple of weeks ago I went to the doctors with lots of symptoms that I thought were causes by ME my doctor did a few test and then sent me for a chest X-ray, blood test and a ecg. I went back to see him in Monday and he asked me what i thought was causing the symptoms and I said ME he said he agreed. I thought it would…
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Osteoarthritis
I have osteoarthritis in both hands hip a bulging disc and nerve damage and osteoarthritis in my spine and osteoarthritis in both knees I am on tramadol and gabapentin.
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I have a brain injury
I have a brain injury. Had meningioma removal in July 2012 then Bacterial Meningitis Oct 2012. Nov 2012 had 2nd opening of skull to mend CSF leak from 1st Operation. Now have seizures, depression and anxiety. I'm now 48 yrs old.
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Adult son with epilepsy
Hi, my 24 year old son was diagnosed with epilepsy when he was 11 years old. Just lately he has been having seizures more frequently and this has had a detrimental effect on his confidence. He is currently unemployed and becoming more and more depressed because he is so restricted and cannot live as independently as he…
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Having fibromyalgia and asking for help!
Hello all, I have so many questions and emotions running wild don't know where to start.. All my life I have worked 24/7 years ago my chiropractor warned me of 'abusing' my body, now I feel so lazy, I got diagnosed with fibromyalgia and chronic pain and 12months ago and also gave up doing my career due to the pain and…
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TVTO-TVT
I’m not sure if I’m in the right place but does anyone suffer with a CSF Leak and/or a TVTO?
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Fibromyalgia
Hi, I was diagnosed with fibro in 2016 in the Nottinghamshire area and was given a lot of support from the doctor and hospital. I saw a occupational therapist on a regular basis for mental and physical support ,also given aids to help with pain, can you tell me why I can not get this in the Lincolnshire area as cannot even…
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Not sleeping well
Hi all Im new [n this site. Haven't been to sleep again tonight, too much pain from a 3+ year old spinal cord injury and the morphine isnt ×[raking tonight! Then I will sleep most of tomorrow and before I know it another week will have gone by and ill only have gotten out of bed once a day to feed the kitties and birds…
