Neurological conditions
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Let's talk chronic pain

Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
Who on here suffers with chronic illness? 

Replies

  • ToffeeToffee Member Posts: 250 Pioneering
    I have fibromyalgia 
  • LaughingLollyLaughingLolly Member Posts: 101 Pioneering
    Not normally interested but as I am rocking back and forth in severe pain now then yes. It just popped up. Hard to cope with. Been 26 years
    A laugh a day keeps the psychiatrist at bay. 
  • nessaannnessaann Member Posts: 2 Listener
    Ive fibromyalgia
  • ToffeeToffee Member Posts: 250 Pioneering
    Horrible nessaan isn't iit do you claim pip for it? 
  • ToffeeToffee Member Posts: 250 Pioneering
    As I am searching how others get on will it? 
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    Hi @Toffee, quite a lot of people do claim PIP for fibromyalgia. Although, PIP is based on how the condition affects you, not what your condition is. So, two people both with fibromyalgia might not get the same rate of PIP or even PIP at all.
    From what I've heard, it's one of the most commonly assessed conditions for PIP, but that doesn't always mean it's successful.
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • zakbloodzakblood Member Posts: 419 Pioneering
    i'm back at the pain clinic on Monday, so hopefully on my way to a back op after turning one down in 1999, so maybe things have come on enough now to do something about it, hopefully, just need to go and get through the waiting list and hoops first to get back to the right department, so not a long haul, more of some short steps now hopefully, will post there finds and solutions asap
  • ladygonegagaladygonegaga Member Posts: 11 Courageous
    Hi, I have Multiple sclerosis and was also given a diagnosis of Fibromyalgia last year. I am in chronic pain daily which gets progressively worse as the day goes on. I have been on DLA for the last 10 years, middle rate care and higher rate mobility got changed over to PIP beginning of this year and have now lost the enhanced mobility part and so my mobility car was taken from me in April. I am in the process of going to tribunal but its so very stressfull and has made my conditions much worse and this has now been going on for 10 months with no tribunal date so far. The Fase 2 Fase accesment was riddles with contradictions and I wont say LIES but inaccuracies, 30 mins it took for this A&E nurse to write up my report. I dout that she had a great deal if no knowledge of MS because of some of the things said like, I don't have relapses? 
    All the infomation I put in my PIP claim form along with how my condition effects me and letters from my MS specialist who is a professor, brain injury specialist, GP letter and all other info has been ignored and the DWP are just going on what is said in the Fase 2 Fase accesment. A lot of what is in the accesment is incorrect and does not relate to me or my life at all, if it wasnt so stressfull it would be funny. 
    Accesor put that I like to go out with my husband for coffee and lunch. I have not had a drink of coffee since the 90's and have eaten out 2 times this year once at a indian and the other take away fish and chips.
    Accesor put that I make sandwhiches and beans on toast, I have IBS and have not eatern anything with wheat in since 2002?
    And there is so many more it just beggers belief.

    AARRRR my rant is over 
  • zakbloodzakblood Member Posts: 419 Pioneering
    edited June 2019
    inaccuracies are lies in all meaning, apart from the word used, i'm a male, who was assessed and had a reply by a female nurse that she does well on medication and she does this and that?

    i'm a male, so beggars belief if they can't even get my gender correct, my tablets or doses when in front of them and so may others you'd laugh, sent them off the NMC and the GMC only deals with doctors and written a formal complaint against the nurse on the grounds that her recording and visual assessment was flawed on so many points, listing just the first 20 to prove her incompetent at least, negligent at best and god help anyone who gets her in a nursing role back in the NHS, as so skilled as over turning consultants and senior consultants and professors notes and medical findings on looks alone without even wishing to read any reports, facts or MRI or XRay data, which more to the point i'm not sure she even understood, then makes up stories and contradicted her self 5 times in 3 pages of notes which looked copy pasted, and then went on to contradicted her own findings and says it's a factual report and signs it in her name, lol, look forward to tribunal just for the laugh, never mind the stress, last time if was there 12 years ago, i also made them grin and had another one over turned, i don't mind it using points system and rules which differ from time to time, but when they don't follow there own guidelines and put it in writing, then still dismiss it in MR even when you point of there wrong and it's faulty data, no wonder why so many tribunals are over turned.
  • ladygonegagaladygonegaga Member Posts: 11 Courageous
    I took advice from CAB and from posts on this wesite which said when I did my MR not to focus on what is incorrect in the accesment but to target were I think I should have scored the pionts and why. 
    Doing this got me nowhere because they just reverted back to the incorrect accesment report and so the MR was turned down.
  • zakbloodzakblood Member Posts: 419 Pioneering
    CAB does lesson on how to pass most things now days, but as for some, me for one don't agree with that approach and would prefer to stay honest and pass on the grounds your right and there wrong, no matter how much longer it takes, so yes with my MR arrived with them, only 10 to 14 dates to also be told again i've failed, so then back to tribunal for me, being wrong isn't something they like to admit, or making mistakes, so to over turn either, is something of a saw point to them, where as most tribunals see things in more black and while, my MR was full of my comments explaining why my nurse was useless and gave the reasons why she was wrong and i was right, using there rules as the points, the % of MR's turned down is very very high, but the amount of tribunals cases who win, are the opposite, so something wrong in there system and the care less world we live in
  • zakbloodzakblood Member Posts: 419 Pioneering
    http://researchbriefings.files.parliament.uk/documents/CDP-2019-0092/CDP-2019-0092.pdf

    makes for some sorry bed time reading with data for 2019 upto april being after failed MR
    PIP and ESA appeal success highest ever

    The Tribunals Service statistics show that claimants are winning PIP and ESA appeals at the highest rate ever recorded.

    Overall, an extraordinary 70% of social security appeals are successful, with the claimant getting a better award than they originally received from the DWP.

    Success rates for individual benefits:

    • Employment and Support Allowance (ESA) 74%
    • Personal Independence Payment (PIP) 73%
    • Disabled Living Allowance (DLA) 66%
    • Universal Credit (UC) 58%

    This is an increase in successful appeals of 4% for PIP compared with the year before, and 5 percent for ESA.

  • ToffeeToffee Member Posts: 250 Pioneering
    Thank you every one hugs to all
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