Cerebral palsy

So, on the 17 October, it will be three years since my sister, Tina Sharp passed away at 55yrs . Whoever said time is a great healer, was wrong, as my grief for her, is stronger than ever. People do not understand how difficult it is to lose a disabled loved one. I was 5yrs when Tina was born, with quadruplegic cerebral…

[The image says: A gentle reminder If you don't schedule a break, Your body will take one for you, and it probably won't be at a convenient time.] This quote will resonate with many in the cerebral palsy community and the broader disabled community, and it certainly resonates with me! Just like many of you, I’m sure you’ve…

Marathon runner secures world record after completing global challenge. A runner who took on a prestigious global race series has broken the world record for the fastest marathon by an athlete with hemiplegia. Andrew Tomlinson, who has paralysis on his left side, finished the London Marathon in April in a time of 3:58:53 -…

Emily and the BBC Children in Need Challenge Squad Home > News > Emily and the BBC Children in Need Challenge Squad The One Show welcomes back the epic fundraising challenge, The Challenge Squad for BBC Children in Need, and we’re so excited to announce that Emily – a long-standing CPotential friend and service user – is…

Paul McAuley Community reporter for Liverpool Echo Ellis Palmer is now working alongside British Power Hockey Association.(Image: Ellis Palmer ) A man is doing the “unimaginable” after “giving up” when he was a teenager. Ellis Palmer, from Birkenhead, has been a wheelchair user for most of his life, having been diagnosed…

The British Power Hockey Association is having a taster day on 2nd November between 11AM - 14PM For more information go to British Power Hockey Association Website Image description: Full shot of a poster promoting a "Power Hockey Taster Day." The top portion of the poster features three images, each showing multiple…

The actor stressed the importance of disability representation within the creative industry. By Ayaan Ali of The Express You might recognise Keron Day from Sex Education and Kirkmoor, but his path to success has been anything but easy. Keron has shared his experience of living with a lifelong condition, cerebral palsy,…

RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…

A study from the University of Bristol found that giving women at risk of premature birth a magnesium sulphate (drip) can help prevent their babies from developing cerebral palsy. The first major review in 2009 showed this treatment was effective, and new research continues to confirm it. Since 2015, the World Health…

Sophie talks about her son who has cerebral palsy and why more needs to be done to improve disability inclusion in schools. "Children and young people are our future. The way we raise our children shapes the world they’ll grow up in. "Our world is made up of people with all sorts of characteristics and personalities. We…

Hi, my name is Lucy, and I’m the new Cerebral Palsy Specialist for Leeds and The North. I live with spastic hemiplegia and I am really excited to work with the CP Network, and everyone else. I’m looking forward to meeting you all, please say hi 😀

From LBC Former Prime Minister Lord Cameron told LBC's Nick Ferrari at Breakfast that his son Ivan, who lived with an extremely rare condition called Ohtahara syndrome, and quadriplegic cerebral palsy, might have lived longer if he had been born today - such are the improvements in medical science.

To mark World CP Day 2024, the Sunflower Conversations Podcast spoke with Richard Luke from Scope and Karen Watson from Cerebral Palsy Adult Advice UK (CPAAUK) about cerebral palsy:…

CP Networker, Carla is starting a new Boccia club in her home town of BOLTON. If you, or anyone you may know, would be interested in going along on a Friday afternoon to play or even to try the game - please click the link and join her new Facebook group, Bolton Boccia

This young disabled man dreamed of having a job-The system had other ideas BBC In depth

When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…

Please join us for our Instagram Live with @Eva_Abley this evening at 5 pm on our UK Instagram @sunflowerlanyardscheme ⠀ Eva has cerebral palsy and has just finished her GCSE's and joins us to talk about her experiences so far. She has achieved an awful lot already!⠀ We will put the recording on The Sunflower Conversations…

Providing therapy using the Bobath concept is at the heart of what we do at Cerebral Palsy Scotland. We're currently offering funded specialist reviews for adults with cerebral palsy living in Scotland. Why apply for a specialist review? Therapy is the key treatment for cerebral palsy, but many adults don’t have access to…

I don't know if you have seen but Disney+ has adapted the book, "Out of My Mind" for World CP Day 2024. This is huge! WorldCPDay.org says: Our exclusive partnership with Disney+ for World Cerebral Palsy Day has received global recognition. On Friday, October 4 we launched the trailer for Out of My Mind - a new film telling…

“In pageants, beauty queens don’t speak about disabilities or health conditions. But that’s not real. I want to show that this happens, and we can be a part of something.” One of the reasons I had to leave school was because of negative attitudes. Through primary school, I used a lot of different aids and was constantly in…

Hi there, my friend has CP and had direct payments removed 5 years ago as one of her carers was scratched by her cat and sued for £20,000. It was not her fault! Is this even legal?!!! Before and since direct payments she has had very unsuitable carers, the vast majority who don’t speak English which has increased her…

Mowgli Street Food Fundraisers The Cardiff branch of the popular Indian Street Food Restaurant has raised £75,026 for Cerebral Palsy Cymru to date. @SaraC_Scope

I’m looking for support/advise for my young son who has CP, struggling with emotional regulation and settling into nursery

The countdown is on! There are now just ten days to go until we celebrate World Cerebral Palsy Day on Sunday 6 October 2024! Every year, 6 October is an opportunity to come together in a global day of action and celebrate the resilience, diversity and vibrancy of people with CP. In 2024, the theme of World CP Day…

Dr Sonali Shah, The University of Nottingham and Scope are happy to share our research article published in the International Journal of Disability and Rehabilitation. You can read the full article here. Have you experienced an increase in falls? When discussing falls, this would be a good piece of research to share with…

By Kelly Dawson Good Housekeeping.com (USA) Navigating a largely inaccessible world can be exhausting, but I made sure my apartment would be the ultimate place to relax. A year ago, when I moved into my own apartment, I aimed to cultivate a setting that made me feel safe. As a woman born with cerebral palsy, I have legs…

Reducing anxiety by challenging negative thoughts Reducing anxiety by challenging negative thoughts This session will help you to understand how anxiety and stress affect our thoughts, feelings and behaviours We will explore how you can use strategies from Cognitive Behavioural Therapy to begin to challenge negative…

Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…

You are invited to attend our upcoming webinar Meds and moves: The art & science of living well with cerebral palsy on Friday 11 October at 7 am UK time Join us for this insightful webinar exploring individual experiences with medication. Each person from this group of presenters with diverse lived experience—Madison…