Cerebral palsy

Glenys Evans, founder of Cerebral Palsy Cymru retired in November 2024. Thirty five years ago, Glenys was one of a group of parents who started a specialist therapy centre in Whitchurch, Cardiff for children with cerebral palsy. She has been involved in the centre, now based in Llanishen for all of those 35 years. Sadly…

Hi guys, first thanks for being here, I really appreciate it. I saw that I've been posting one issue of mine, every year. but believe me or not you are the only people I can talk to freely about my Hemiparesis problems. Since 2 weeks ago, I've started my occupational therapy again (after 2years). But the problem is that…

This is the moment a young man from Birmingham was gifted a new West Midlands accent. Jack Reeve, 22, who has cerebral palsy, had been using a communication device with a robotic voice. But ahead of his wedding to fiancee Bethan in 2026, and with the help of special technology, he received a Dudley accent from an anonymous…

Newcastle University is exploring how poetry can be used as a creative way to share experiences and perspectives in healthcare research for people with disabilities or chronic illnesses. Participants will learn about how poetry can be used in research, take part in a simple poetry activity to share their experiences and…

Hi everyone. Myself, @SaraC_Scope and @Lucy_Scope would like to thank everybody who attended the Scope CP Network Wellbeing series hosted by our friends at The Almond Tree Organisation. We would appreciate it if you could leave feedback about the events

@pooleemily29 hey! Folks. I'm going to talking about this white paper I've just skimmed throughin my personal view they're putting too much focus on the NHS and nog enough on disabled people this make work pay scheme labour have cooked up I really did sir Keir when he said " we will change Britain" just last week I read…

England finished fifth at the Cerebral Palsy World Cup as Iran beat defending champions Ukraine in the final. The Para Lions required a penalty shootout to overcome Argentina following a goalless draw in the play-off for fifth and sixth in Salou, Spain. Iran recorded an emphatic 3-0 victory against Ukraine to avenge their…

The following article from the University of Michigan by Valerie Goodwin is an important one. Please be aware that some of the language within the article is not the language that I or Scope would use. Changing the Definition of Cerebral Palsy Organisations are now recognising Cerebral Palsy (CP) as a child-onset…

Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…

ICPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024 at 5pm UK time. “Finding My Voice - Adolescents with Cerebral Palsy and the Challenges of Growing Up” To mark the International Day of Persons with Disabilities, ICPS is again teaming up with the World Health Organization to…

Hi everyone, I’m keen to find other parents of adult children with complex disabilities. My son Alister is a 27 year old who is unable to do anything for himself. He is registered blind, non verbal and is gastrostomy fed. He has just had a recent hospital stay due to pneumonia. I would love to chat with anyone in a similar…

Am 40 years old, got CP when I was born. Walking tiptoes. Had surgery age 16 age more surgery later on. Am Asian British Pakistan live in south Yorkshire. Rreply back to me, I tell u more about me. Thank you

My daughter has a social care transition worker, and after an assessment, we were informed that we could apply for direct payments to fund a personal trainer with experience in cerebral palsy to work with her at the gym. I found a suitable trainer, but now we’ve been told that this is considered a healthcare need, not a…

After a frankly crazy amount of time without any support I finally had a physiotherapy session today and have a long term exercise regime I can follow! My motivation is quite low these days I can't lie but wish me luck 🤞

Good afternoon everyone. I'm Sara and I've worked for Scope for five years in the family services team. I wanted to introduce myself again as I have recently been appointed as Scope's Cerebral Palsy Specialist for Cardiff and surrounding areas. I'm looking forward to working with the cerebral palsy community. Online and…

I would like to know why a person with cerebral palsy can have pain in the hip I have a strange feeling of pain on the left side of my hip Is it because I am more spastic in my legs due to my spastic diplegia What to do I am 49 years old I have not been followed by a neurologist since I was 13 We do not have many resources…

The University of Plymouth is conducting research into chest health in children with cerebral palsy. Poster description: Are you interested in supporting research in cerebral palsy? CHESTI-Conversations is a research study funded by the National Institute of Health and Care Research. We want to find the best ways to…

Grace Dean BBC News Rachel Price BBC News A man, Elliot Caswell, is sitting in an electric wheelchair in front of a blue backdrop in a photography studio. He is wearing a grey tracksuit and a black gilet and is smiling at the camera. A woman in a black top is taking his photo with a large camera. Elliot Caswell was…

"The average age for starting menopause is 51, but for people with learning disabilities, it tends to start earlier."By Emma Fraser I’m 43 years old, I’m autistic, and I have cerebral palsy. Now, I’m also navigating perimenopause. There are around 13 million people currently peri- or menopausal in the UK, equivalent to a…

Govind, a 16-year-old dressage rider from south-east London, has found independence on the back of a horse. "I have to rely on a lot of people in my day-to-day life, but in horse riding I don’t have to depend on anyone," he said. He has cerebral palsy, and began riding on the advice of his doctor, to help strengthen his…

Following a spectacular Paralympic Games in Paris where we saw so many inspirational performances from ParalympicsGB athletes, we are on a mission to bring sporting opportunities to as many disabled people as possible. We are excited to announce that each National Disability Sport Organisation and ParalympicsGB, are…

What's life with cerebral palsy really like? Share your experiences We're urging Scope supporters to fill out My Neuro Survey. Run by The Neurological Alliance, My Neuro Survey is the largest patient experience survey of people with neurological conditions in the UK. By filling in the survey, you will help to improve the…

Maddy Norman says she was born without a voice, using technology to communicate since she was five - now she performs poetry recitals. Watch Maddie's interview on ITVX

SDR PROGRESSION SDR Progression offers therapy that is focused specifically for your child's capabilities and needs. This service is also extended to teenagers and adults. Therapy is offered to those suffering from Cerebral Palsy, and also those who have had SDR (Selective Dorsal Rhizotomy) surgery which attempts to remove…

Mumfighter-Swansea play review. Powerful play explores life bringing up a disabled child. Wales Online Mumfighter play review

I am recruiting again for my study exploring Disabled Women's Experiences of Dating. I need a few more participants: Two to four as soon as possible. I have attached a poster if that helps. Or there is a link here to my Instagram Research page: https://www.instagram.com/antonia_research/ Or you can email…

For those of us that were not up and about at 4 am. Here is the recording of the webinar. This webinar was hosted by My CP Guide and presented by a lived experience panel in an open discussion facilitated by Stacey Cleary of CP-Achieve. This webinar explores individual experiences with medication. Each person from this…

On Wednesday, October 30 at 8 pm ET, Midnight UK time, our MyCP webinar will provide a broad overview of all the progress toward addressing the issues raised by the community including the development of new educational materials, improvements in dystonia diagnosis and plans to study the effectiveness of common treatments…

Parents, carers and young people, ACTION CEREBRAL PALSY would like to hear from you! The Department for Education has recently launched a Curriculum and Assessment Review and we would like to hear about your experiences and to know what you think needs to be changed in the current curriculum, its delivery and assessment to…