FOF
Discussion List
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Paid Caring help for parent⁰
Hi there folks Kris back again , not been on here for while , hope everyone had a better xmas n new year than me , im here today to enquire about family members , is there any help for them even if thereon state pension, mainly my mum. Up until 2-3 years ago i ran my own plumbing and heating company but due to my illness…
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Change off mind
Hi good afternoon everyone what a beautiful day in Cape Town south Africa weather is hot but a cool wind I'm thankful to God that I'm alive and my children healthy my one daughter was sick almost the whole week but I didn't wanted to talk about it cause I knew God would made her better a lot has happened and my children…
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DLA decision to payment, timescale?
Hi all, I have a 10yo (W) & a 5yo (A) both boys… W has been diagnosed/medicated/receiving DLA for 3/4 years now, and I seem to remember getting the back payment before even the explanation letter! For A we have been waiting since forms went back in 13/08 last yr. Since we hit the 20wk mark I’ve called DLA twice & (yay!) a…
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EHCP Help
Hi I wonder if you can help me, My daughter is on the waiting list for ASD and ADHD assessments. But with her being in year 5 at school we need to get her EHCP done so that when we apply for school at end of 2025 we can look at special schools. The school she goes to have said they wont apply for EHCP until she has a…
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Community paediatrics rejecting baby with CP
I am a foster mum. Baby R is with me, 3 months old with emerging spastic cerebral palsy following birth trauma.., community peads team rejected him saying he needs acute care, ( as possibly I am Seeing vacant episodes and spasms). in the last 3 weeks we have visited 4 nhs hospitals and had 1-4nights in 2 of them… acute…
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Awaiting autism assessment for both son's
I've been really fed up ciz my little one has been awaiting a diagnostic assessment now for nearly 2 years now. I feel really let down by CAMHs who they are also under due to social and generalised anxiety and emotional dysregulation. It's been a really tough old ride. Does anyone else feel their precious children have…
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Help/advice
hello, I am a mum of 2 disabled children, my oldest is just physically disabled my youngest is non verbal and completely dependent, I cope very well with day to day life but recently I’m scared of them growing into adults I’m scared my oldest will be bullied and she understands everything and my youngest I worry who will…
Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…