FOF
Discussion List
-
caring for a teenager
hi every one i am a carer for my daughter aged 13 who has asd anxiety and ebsa and sometimes its very draining and i find it makes my fibro and osteoathritis, and other conditions reaally flare up, wondering if anyone else on here is in the same positiion and any tips for support thanyou
-
Hi, my name is Julia247! How to overcome barriers with other parents?
Hi, I’m a Grandma, looking for ways to support my family with a child with AuDHD in mainstream. In addition to supporting their child, they face lack of understanding from other parents. Has anyone successfully overcome these barriers and educated the school community? The teachers are excellent, it is the wider, negative…
-
Hi, my name is welbeck! My ASD teen has noise sensitivity, any advice?
Hi,my ASD teen and noise sensitivity
-
10 month old -, seeking advice on early intervention & intensive therapy
Hi everyone, I’m a first-time poster and honestly don’t quite know where to start. Our daughter is 10 months old. From quite early on I noticed some things that concerned me — a very sensitive Moro reflex and very clenched fists — but I hoped she’d catch up. It wasn’t until 6 months that we were referred to paediatrics.…
-
School SENCO ignoring requests for SEN support – advice needed
I am an AuDHD parent and my child shows many autistic traits (social communication, sensory, emotional regulation difficulties, and high anxiety around school). I first raised concerns with teachers at Reception and formally requested SEN support and support for an autism assessment in September. Since then, the school has…
-
Hi, my name is Tc57!
I have a daughter who is autistic and has sensory, auditory processing disorder, anxiety and is in year 10 and is struggling with her learning , so far behind that it takes a lot for her to get into school , She has mental health issues and self harms and is on the watchlist committing suicide due to the fact that these…
-
Advice on autistic child
I hope you're well. I’m reaching out to you for some advice, as I’m feeling unsure where else to turn. My daughter is 10 years old and undiagnosed autistic, though we are confident she is and shes been on MATT pathway a few years. She experiences extreme anxiety around school, and even stepping onto the playground is a…
-
Private Educational Psychologist
Hello all. I’m considering arranging a private Educational Psychologist assessment for my child, to better understand her educational needs and what support or provision may be most appropriate for her. This would be the first time I have gone privately for this type of assessment, so I would be very grateful to hear from…
-
Need some advice
Hi everyone, me and my partner has a non verbal autistic son who is 7. He's getting a handful for mum as I'm at work. We not sure if we both care for our child or just swop roles, she work and I stay at home. He's all dad ATM and kicks off when I go work or go anywhere without him. We do have a PA but it's only 4 hours a…
-
Hi, my name is reenieroo!
hi my daughter is autistic and is ebsa due to anxiety. she hasnt attended school since year 5, shes now in year 10. she has a ehcp and sees a mentor not connected to the school two days a week for three and a half hours each day that the ehcp is paying for. she has been seeing that mentor for 5 years and has an extremely…
-
Hi, my name is Gemzie246!
hi i’m new here im looking for advice my son is 9 he’s autistic i’m really struggleing with him at the minute he’s got a thing abou tv the weather if he sees clouds he has huge melt down if the sun is creeping through he has a melt down i can’t get him to school as they keep ringing me to get him , and can’t get him to…
-
Hi, my name is Asaint! Issues with SENCO, EHCP and college
Hello my daughter has an ehcp, the college named on her ehcp refused her based on her predicted grades. I've been told that as the college is named they cannot refuse her. The school she is currently at the senco is horrible and keeps lying and has offered no support. Even thought she has an ehcp. AAny Advice
-
Friendship
Hi am a Sen mum my son is now at college I was just wondering if any one else in the some place as my son can't get it groups in the week he's getting his confidence and I would love to help my son make a friend
-
Hi, my name is Jimbones13! my child is stuggling at school.
Hi, i am guardian to my 6 year old granddaughter, she is currently on the waiting list to be diagnosed for adhd. She has only just been accepted on the list for diagnosis and could take a year/18 months to happen. The reason i am here is to try and get some advice or help regarding my childs school. She struggles with…
-
EP report/ehcp plan how accurate/
I’m looking for advice regarding my 14 years old daughter with Educational Psychologist (EP) report, which I’ve only recently found after her latest EHCP annual review. I’m still learning about the EHCP process, but I’ve always felt something didn’t seem right with her plan. The EP report is nearly 3 years old and was…
-
Our Son is nine and Autistic. My husband is ...
Our Son is nine and Autistic. My husband is very bothered by what others think when our Son is lashing out or behaving in ways that at best seem unusual and at worse could be very dangerous because of problems communicating or Sensory processing difficulties. Any advice?
-
How to get support for adult daughter after my death
hi my daughter is 32 and lives with me (mum) she is autistic , Asperger’s as well as moderate learning difficulties. A social work assistant said years ago my daughter presents better than she functions. so while she appears capable, life for her is really a struggle. She makes poor diet choices , poor hygiene choices ,…
-
Hi, my name is AmyLaura!
I wondered if anyone has any advice please, I’m a 35 year old woman with Cerebral Palsy, a history of Epilepsy and depression and although I can walk short distances I’m a wheelchair user. I have been with my husband for almost 16 years and married for about 9 and a half years and we are the same age. Although my husband…
-
Help
so long story short, my daughter is awaiting diagnosis, showing pda traits. Now a teenager and has started vaping to fit in at school. Masks all day at school and at home has meltdowns, burn outs, is forever trying to control every situation. I don’t know how to deal with the vape situation and feel the more I’m going on…
-
Living with brain injury
hello. I’m looking for answers, as to why my life has basically been so difficult. I underwent extensive brain surgery with complications long ago. I’d really like to give my children , who weren’t born when I had the surgery , reasons as to why, I didn’t do what thier friends did as a family. Maybe My brain injury played…
-
EHCP year 10 annual review
hello My 14 year old daughters annual EHCP review is this week & im so worried, since year 9 they’ve cut her support without putting it on paper when I challenged them they first said we have limited TAs/LSA’s, then they said they are getting daughter to be more independent, this is the wording in her EHCP • “Additional…
-
DLA REnewal forms
I was wondering if anyone could help me. My daughter’s DLA award runs out at the end of May. I phone at 20 weeks out for renewal forms and they told me they wouldn’t be sent until 12 weeks out. I phoned a week ago and they told me the forms are automatically sent out from the computer and to phone again in 2 weeks (which…
-
ASD Therapy/schools/help
hi my son has ASD, non verbal aged 5. Was due to start school sept 25 but due to no EHCP he stayed in nursery till he turned 5 in December. He now has his EHCP waiting to go to panel for a place at a special school. In the meantime they want me to send him to mainstream (this isn’t suitable and I am fighting this) but in…
-
Support group nearby
Hello, My son has cerebral palsy and is currently 3 years old. We live in Birmingham/Solihull area and I was just wondering if anyone knows of any support groups around here that we could go to? We're trying to encourage him to take some steps with his walker and I think if he saw other children using walkers he might be…
-
Does claiming carers allowance affect your own PIP
My grandson,12 has just been awarded DLA, higher rate of care, (autism). A leaflet enclosed said may be able to claim Carers Allowance. My DIL who would be claiming is on PIP, (took a tribunal hearing). Worried that if she puts in a claim for Carers Allowance they will want to 'review' / stop her PIP. The care she provides…
-
i really need some help
where to even begin i know this is going to come across like i am only focussed on money and sounds terrible but it im struggling a lot and do not have any support sorry if this does not make sense i am panicking and crying i do not know how i will cope today my statement has come and i have been benefit capped and they…
-
Educational Psychologist Report
hiya, I hope this is okay to post here! So we’re on week 32 of the dreaded EHCP assessment and had the EP assessment last week. We’ve already submitted a complaint to the LA and we’ve been redirected to the Local Government and Social Care Ombudsman - we’ve submitted our complaint with them. We have just been sent the EP…
-
DLA date - is this correct or an error?
Hello, my child currently gets middle rate DLA for care only and has been getting it for a few years. I have just had a letter telling me about the increase from April but it is showing that they will be getting DLA until October 2nd 2027, however, they turn 16 on October 2nd 2026 (this year). Is this correct with DLA or…
- Sleep deprived
-
Homeschooling for beginners
Help for parents (beginners) who have recently started to homeschool.
Upcoming Events
-
Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
-
Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…