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Hi, I am an adult second language teacher in Wales. I am looking to find support for several students who are learning English (so not fluent speakers/readers). I was wondering what the chances are of people from this community being able to help us. One student has a brain injury, one has a brain tumour, another is…

reaching out to see what’s available in west London please. Am asking for our 15yr old daughter who uses a walking frame to get around.

Hi I'm hoping someone can give me advice please regarding my sons application for high school and a matter which has arisen which I'm not sure is even legal, feeling confused and upset, if this is anyone's area of expertise, he has an EHCP in place is currently on a partial timetable and my belief is mainstream school are…

my son was recently diagnosed with epilepsy

Hi, in a 3 bedroom, got son at home and daughter with her 7 mnth old baby, im in 3rd room and husband sleeps downstairs ( has done for 2 years) im his carer hes recently been diagnosed with young onset dementia along with alot of other health issues , barely sleeps throught the night which has me up and down, ( went down…

Hi - does anyone know if I should put in for DLA for my 3 year old? He is non-speaking/non-verbal and after his appointment with the pediatrician, he has been diagnosed with being on the spectrum (awaiting the formal report - followed up today and the sent it out in the port today). He has other needs daily night and day…

hiya everyone, just wanted people to talk to who are in the same boat as me. My beautiful daughter is waiting on a diagnosis for autism, global development delay and sensory processing disorder. Just wanted some advice on how to help her deal with it and how I can help her. Thank you for reading!!

Hi everyone. I’m a new member of your community from today. I would like to briefly tell you my story about my son 10 years old with Downs Syndrome and ASD. He was born as a strong and healthy boy with small numbers of DS futures . Genetic tests confirmed that he has Trisomy 21. He was developing very well till he turned…

My sister wants to move with me with her 15yr old granddaughter whom she has guardianship we are both on pip dla I have a 2 bedroom flat which I rent from local council I receive full hb will effect hb? we are doing this to look after and support each other any advice would be appreciated many thanks

I need some advice about universal credit my partner has health issues and I am currently caring for him we also have a son who turns 3 in May and going by the rules you have to start looking for work when they reach this age I am aware that universal credit provides child care for up to a certain amount of hours but I…

I hope to speak with like minded parents/carers who are going through similar experiences/struggles with their children

My DD is in mainstream school. Got her EHCP in Sept 2023. She has been on the verge of permanent exclusions quite a few times. However, we feel that since the EHCP things have improved, she is attending lessons, albeit not the mainstream ones. She has 1:1 for Maths/English and 1:1 TA support first thing each morning to set…

Hi there, Our private landlord has given us section 21 which is ending in 4-5 days. We are on the housing register already. Council is aware of the notice & asked all the documents we had from our landlord. They said they will check if the notice is valid. Really anxious with two special needs children what will happen…

Hi, 1St time posting here, so thank you. My daughter, now 14yrs old was diagnosed 18months ago with POTS is in medsto try and help her through the day and meds to help her to sleep. Every day is a struggle for her, but she puts on a brave face but inside she is exhausted. We Have informed her school of the diagnosis many…

Hi again, so I’m just wondering about the moving around question and what to tick for the distance my daughter walks. She is an ambulatory wheelchair user. She can walk up to 50m and then gets pain & breathlessness. We have clinic letters stating this. However at school she walks further than that because she won’t use her…

hi all, My son has severe ADHD and been accepted for an EHCP assessment. He is medicated effectively for his education only and takes it only for school, and the medication does significantly improve his ADHD symptoms to allow him to be able to sit still in class and he presents with less symptoms. I asked his SENCO if I…

Sensitive issue. Please be kind. My son is 18 and I am his appointee. He keeps bringing cannabis to our home. He gets £300 UC a month (pays us £100 a month board). The £200 he has -its all gone in 2 days on drug debts. He has a UC work coach but is consistency refusing to work. He agreed to attend a short course but…

I have a annual review for my sons EhCP and he is currently going to a mainstream high school in year 7, but is not coping and I have taken him out due to suicidal thoughts and started to self harm, my concern is now I have taken him out of school, he does not want to go back and I would like the LA to consider a move to…

Hi, I had a bruising time getting my daughter into a specialist school that could implement her EHCP. Both her mainstream school and the LA failed her. I want to put in a formal complaint to let the school and LA know that their inaction was detrimental to my daughter forcing me to remove her. Her mainstream school…

My wonderful 7-year-old daughter is on the autism spectrum. Just here to connect and maybe share experiences with others.

Hi there. I have a 13 year old child diagnosed autistic PDA. She strives for autonomy and freedom. She is risk curious (alcohol, maybe more). She is social and goes out with friends. I feel she is very vulnerable. Communication between us is up and down. I don't think she tells the truth, but also don't know if I am just…

Hi to all! I am I’m trying to get some help and answers about a big issue that I am having . Please to all of you, give me your opinion and thoughts and if you can help i would really appreciate it. I am a mum of four. My third child now 11 he has always been super active since he was little. Having said that I have never…

What do I do if my autistic son refuses to leave the house all of a sudden

hello, I have joined as I need good advice on a situatuation. My daughter has a disability, mostly neuro, overlapping migrainal/epilepsy disorders. After finishing 6 form school she went to college to get better marks for English/maths, this was over a 2yr period, she was on dla from 17yrs old, in 2016 she was put on ESA…

Hi there- I am here on behalf of my daughter who is on the autism spectrum and also diagnosed with ADHD as well as several other physical conditions. We were refused PIP previously however our consultant suggested that we should apply within the autism community to seek advice as my daughter is more than eligible for…

hi could someone please help with advice as it’s a minefield when trying to find out non dependents deductions.. I currently live alone and claim UC council tax benefit and work capability element my 16 year old son and his pregnant girlfriend want to move in with me due to unforeseen circumstances. He works but earns…

High I have mentioned the DLA award high rate care needs which I agree with the mobility award I did not agree the award is 10 years The motility part I sent clear evidence of the challenges out side on a journey a school letter a echp plan previous to this at play school This was picked up at 3 years old and had to limit…

I know rules have recently changed but I am currently in receipt of LWRCA and pip enhanced rate and low mobility. My adult child is going through psychotic episode and has been told by the psychiatrist he cannot work and will not be able to attend uni in September as he had hoped as he definitely will relapse due to…

Hello, I am a full-time retired carer for my two disabled daughters who are both on the high rate of PIP and have now received migration letters. Please advise me of what to expect. I will be very grateful

hiya, my daughter was diagnosed with a progressive neurological condition at the start of this year. I’m finding it very hard to come to terms with and really feel alone in it. I would love to talk to other parents whose children have similar disabilities. For reference my daughter is only 7. Thank you.