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Hello lovely people! I've recently been requesting to send details of my children for a child benefit review. I have 3 kids whom are 8,3 and 1. My oldest is homeschooled by my father who was a teacher for over 35 years. Documents required by child benefit are; doctors letters for all 3, my oldest school details, and 4…

Hi everyone, I am seeking advice on whether my 12-year-old nephew with severe cerebral palsy can get medical treatment in the UK. He was diagnosed at birth, but unfortunately, he has never received proper medical care. He cannot speak, stand, or walk.

Hey I'm looking for some advice in regards to my autistic 5yr old daughters ehcp plan . She was issued a ehcp plan roughly to £14000. A big part of that was for a 1 to 1 trusted aupport person. My daughter has been in the school since reception and now is in year 1 . She was given a 1 to 1 in reception and it took about 5…

HHi. I have two children on the spectrum and I'm new here.

Hello, We get DLA for my child which is due to be renewed in Oct this year. Is this straightforward process? I heard online somewhere that it is just a light touch when revering child DLA claims. My older child in receipt of PIP, I am appointee for both of them just worried that at the time for child DLA renewal it won’t…

hi my daughter receives high care and low mobility and I work one day a week! I was advised to apply for carers she under 16 no esa or pip had letter to say I was entitled and was expecting first payment today! Nothing called them said claim suspended no notes so no idea why he’s filled report in :(

Well yesterday my daughter aged 22 broke down with chronic anxiety about the benefit cuts although she has a few health conditions including autism she was refused pip a couple of years ago and took it to heart saying they think I am lying so refused to go through the process anymore she is doing her modern history masters…

Hi everyone. I'm looking for a charity that helps supply garden toys for children. I stumbled across one a while ago but can't seem to find it again now 🙄 Does anyone know of a Charity that can help? Looking to apply for a special needs swing. Thanks in advance 👍

I got my decision letter from PIP today, didn't get it. I am also awaiting outcome of WCA (UC50). If I am refused LCW I won't be able to cope with 35 hours a week of job searching ☹️ I have been waiting for NHS mental health support since October 24 and now told by GP it will be another 15 weeks for initial appointment…

Hello everyone new to this group. I am a single parent to an 11 year old that has severe anxiety and is currently being assessed for ASD/ADHD. I'm struggling everyday especially with her school and getting her there. It's so hard especially when she has meltdowns, I feel hopeless and like a useless mum most of the time.…

Hi, my son who is 12 has had his child dla turned dwn he has a hearing aid its gone to a mandonatory reconsideration they declined it as he doesn't need care attention for a child same age as him. We have sent doctors letter as supporting evidence. Can someone tell what's next steps and has someone else got it for a 12yr…

Hi, I’m a mom of four and I take care of my disabled sister. She has cerebral palsy . I have a problem with the housing and I really need help with any advice of what to do. We live in a 3bedroom rented house and joined the house register 2.5 years ago when my sister had a really bad fall on the stairs and since then her…

Good morning all!! I've just joined this group in hope to find information, support and a sense of community. I am a mother of the most happiest, cheeky, determined little boy who just so happens to have bilateral CP, bilateral PVL and global developmental delay. None of his diagnosis stops him or hinders him to be the…

can you tell me if PIP money can be controlled by the LA if child has a FCO. IE we can give it to her as her needs arise. she is vulnerable due to her ASD and might use it to run away and she is not mature act about 7-12 sometimes young although she is 16 - she cannot leave independently qt this time.

hi everyone, A bit of background…my daughter is 7 years old. She was seen By a consultant who felt she had ADHD was going to await school questionnaire and then diagnose. He retired by the time it got sent back she was then passed onto an ADHD nurse, whilst the score scored high for inattentive adhd, she scored borderline…

Good afternoon My name is Hannah im new to the site. Im looking to relocate to cornwall in 2026 with my 4 children 2 of them have Adhd and Asd. What are the best schools and location would you recommend? Thank you Hannah

Hi, hope someone can give me some advice please. My 11 year old son has been diagnosed with autism and has never really slept well. Over the last 4 months he has not slept much at all, we didn't sleep at all last night. He does not let me and my husband sleep as when he can not sleep he wants one of us with him. He gets…

I have 5 kids. 2 of which suffer anxiety. Adhd and seriously outrageous tantrums that involve complete refusal to move. Have no filter to their mouths, what they say, who is wat high at time. My yr 10 14yr old son suffered 2 small fractures to his spine that during it scans they found 3 nodules in his back and lungs. He…

Has anyone else had a PIP assessment for their teen child ? I’m absolutely astonished with their lack of empathy for a 17 year old . I understand the process but she was grilling him to the point it reduced him to shock. I had to tell her stop and remind he was a 17 year doing an adult assessment. I said he had already…

Hi everyone. My 13 year old son has recently been diagnosed with mild cerebral palsy. It mainly affects his speech, balance, fine motor skills and coordination. Sadly he gets mercilessly bullied. All through his primary school years and now into high school, as well as out of school activities such as scouts. This has…

Hi guys, I posted on here a few weeks back about my autistic daughter and got lots of advice.. so here goes... My daughter is 10 years old and has several learning difficulties and severe school anxiety. She has a EHCP in place, which is not helping with her anxiety. Every day is a struggle to get her to school and every…

Good morning, I need help regarding DLa mandatory reconsideration. My Son has ASD/Adhd. He got high rate on care and low rate mobility .we want reconsideration on mobility, but I read on line they will reconsider whole again .and might be they put low in both criteria or refuse too. Can I ask for look only mobility rate?

Hi , Please can someone help me. My son has learning disabilities and other illnesses. He attends a SEN school. He has been given a place at a school that was not my preference. I have been told the preferred school says they can not meet his needs. I also have issues with his EHC Plan. It contains things about him that…

Hi I am a mum of two girls. both my girls have special needs

Hello. My teenagers have both been recently diagnosed with autism, and my son with low attentive adhd too. They are 18 and 16 and it’s quite hard to take it all in. My daughter has brilliant coping mechanisms and seems to be doing well but my son hardly leaves the house. He is often quite rude to me and his dad and his…

I joined this group because I want to meet people like me who are in similar situations. I am in my early 20s, and my mother had her second stroke in 2013 and has been disabled since. I was 9 when I found her. She is the strongest woman I know. In recent years, things have become really tough for her, both emotionally and…

New here, my son is currently being referred for ADHD and ASD, not sure on the ASD but there is so many over laps the school advice to tick both boxes. He's symptoms have been so much worse the past month. I think this is due to my parenting style has completely changed. I have ADHD so very short fuse and explosive. Since…

I have a 7 year old son who I believe may be ASD he is high functioning and school haven't picked up on alot of things, but more symptoms present as he gets older and I am personally finding it hard to navigate some of his behaviours that are not dangerous to others but mentally self harming to himself. Need any help and…

I'd like to bring your attention to an issue that I have been working on since the 17th of December last year when the government decided to introduce a new bill that could potentially **** parents of their parental rights in certain situations. We approached Steve Broach Specialist Barrister KC when the changes to rights…

I'm hoping I can get some help/ advice to pass on. I have a grandchild who has a disabled mum and has periods of chronic pain, she tries at all costs for him to be aware which has a huge impact on her energy levels. Her little boy is often aware and at such times he becomes emotional, very demanding of her no one else will…