Help/advice

keg90
keg90 Online Community Member Posts: 1 Listener
edited January 14 in Families and carers

hello, I am a mum of 2 disabled children, my oldest is just physically disabled my youngest is non verbal and completely dependent, I cope very well with day to day life but recently I’m scared of them growing into adults I’m scared my oldest will be bullied and she understands everything and my youngest I worry who will care for her when I’m gone I feel like I’m alone in this situation no one understands

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Comments

  • judie
    judie Online Community Member Posts: 154 Empowering

    @keg90 please see these are perfectly reasonable worries for a loving mum to have, doubts for the future of your kids are normal. The strength you and your children show every day is amazing and there is help out there. Sending you love.

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,137 Championing

    hi there welcome to the forum I'm not a mum so I can't speak for them. However I want ton recommend the coffee lounge for a general chat and the games room for some fun

  • Mary_Scope
    Mary_Scope Posts: 360 Scope Online Community Children and Family Specialists

    Hi @keg90 and welcome to the community!

    Your feelings are completely valid and understandable. It's natural to worry about the future of your children, especially when they have disabilities that require ongoing care and support! You're definitely not alone in this as many parents in similar situations share these concerns.

    I know it's hard not to worry about the future but try to focus on the present moment and the happy experiences with your children right now.

    Do you have a support network? Or do you know anybody else who have disabled children that you can build a friendship with, this can be in person or online? Having a support network of other parents/carers can sometimes be helpful for sharing similar experiences and concerns and make you feel less alone!

    Personally, I find that even though I know i can't control the future, knowing the options that are available to me can make me feel calmer. I'm not sure exactly how old your children are but sometimes it can be helpful to plan for the future even if it is quite far in advance.

    For example, maybe looking at support that disabled adults in your area are currently receiving, this may make you feel at ease knowing that your children are going to continue having support and care as they are getting older.

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