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Neurological conditions and access to sport
Sheffield Hallam University Sport and Physical Activity Research Centre is conducting research in playing sports with adults of neurological conditions. Please see the flyer attached for more information about the study: Email: A.Abiodun@shu.ac.uk to participate
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The White paper
@pooleemily29 hey! Folks. I'm going to talking about this white paper I've just skimmed throughin my personal view they're putting too much focus on the NHS and nog enough on disabled people this make work pay scheme labour have cooked up I really did sir Keir when he said " we will change Britain" just last week I read…
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Research participants needed: Yoga to support children/young people with physical health conditions
Hi there, I am a trainee Clinical Psychologist at the University of Exeter and I am researching the use of yoga to support the mental wellbeing of children/young people with physical health difficulties. I am looking to interview children/young people and/or their parents/carers about their experiences of yoga. They only…
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CP Network: Wellbeing Workshops: Join us on Wednesday 27 November 6pm
Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…
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Anyone on this group who has an adult child with severe CP and other issues
Hi everyone, I’m keen to find other parents of adult children with complex disabilities. My son Alister is a 27 year old who is unable to do anything for himself. He is registered blind, non verbal and is gastrostomy fed. He has just had a recent hospital stay due to pneumonia. I would love to chat with anyone in a similar…
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Had my first physio session in years today
After a frankly crazy amount of time without any support I finally had a physiotherapy session today and have a long term exercise regime I can follow! My motivation is quite low these days I can't lie but wish me luck 🤞
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Research participants needed
The University of Plymouth is conducting research into chest health in children with cerebral palsy. Poster description: Are you interested in supporting research in cerebral palsy? CHESTI-Conversations is a research study funded by the National Institute of Health and Care Research. We want to find the best ways to…
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Man with cerebral palsy who gave up hope of finding work models for Primark
Grace Dean BBC News Rachel Price BBC News A man, Elliot Caswell, is sitting in an electric wheelchair in front of a blue backdrop in a photography studio. He is wearing a grey tracksuit and a black gilet and is smiling at the camera. A woman in a black top is taking his photo with a large camera. Elliot Caswell was…
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Communicating with cerebral palsy: How Maddy found her voice
Maddy Norman says she was born without a voice, using technology to communicate since she was five - now she performs poetry recitals. Watch Maddie's interview on ITVX
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Cerebral Palsy Therapy
SDR PROGRESSION SDR Progression offers therapy that is focused specifically for your child's capabilities and needs. This service is also extended to teenagers and adults. Therapy is offered to those suffering from Cerebral Palsy, and also those who have had SDR (Selective Dorsal Rhizotomy) surgery which attempts to remove…
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In Memory of Tina Sharp 1966 -october 2021
So, on the 17 October, it will be three years since my sister, Tina Sharp passed away at 55yrs . Whoever said time is a great healer, was wrong, as my grief for her, is stronger than ever. People do not understand how difficult it is to lose a disabled loved one. I was 5yrs when Tina was born, with quadruplegic cerebral…
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World record for the fastest marathon by an athlete with hemiplegia
Marathon runner secures world record after completing global challenge. A runner who took on a prestigious global race series has broken the world record for the fastest marathon by an athlete with hemiplegia. Andrew Tomlinson, who has paralysis on his left side, finished the London Marathon in April in a time of 3:58:53 -…
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The joy of accesible sport and CP
Paul McAuley Community reporter for Liverpool Echo Ellis Palmer is now working alongside British Power Hockey Association.(Image: Ellis Palmer ) A man is doing the “unimaginable” after “giving up” when he was a teenager. Ellis Palmer, from Birkenhead, has been a wheelchair user for most of his life, having been diagnosed…
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The Cerebral Palsy Charter – World CP Day 2024
RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…
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Inexpensive drug can prevent cerebral palsy in premature babies
A study from the University of Bristol found that giving women at risk of premature birth a magnesium sulphate (drip) can help prevent their babies from developing cerebral palsy. The first major review in 2009 showed this treatment was effective, and new research continues to confirm it. Since 2015, the World Health…
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Hi, my name is Lucy_Scope!
Hi, my name is Lucy, and I’m the new Cerebral Palsy Specialist for Leeds and The North. I live with spastic hemiplegia and I am really excited to work with the CP Network, and everyone else. I’m looking forward to meeting you all, please say hi 😀
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The Sunflower Conversations Podcast: cerebral palsy
To mark World CP Day 2024, the Sunflower Conversations Podcast spoke with Richard Luke from Scope and Karen Watson from Cerebral Palsy Adult Advice UK (CPAAUK) about cerebral palsy: The Hidden Disabilities Sunflower is a simple tool for you to voluntarily share that you have a disability or condition that may not be…
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New Boccia Club in Bolton
CP Networker, Carla is starting a new Boccia club in her home town of BOLTON. If you, or anyone you may know, would be interested in going along on a Friday afternoon to play or even to try the game - please click the link and join her new Facebook group, Bolton Boccia
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I want to contribute to society-19 year old young man
This young disabled man dreamed of having a job-The system had other ideas BBC In depth
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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
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Online Webinar: Reducing anxiety by challenging negative thoughts
Reducing anxiety by challenging negative thoughts Reducing anxiety by challenging negative thoughts This session will help you to understand how anxiety and stress affect our thoughts, feelings and behaviours We will explore how you can use strategies from Cognitive Behavioural Therapy to begin to challenge negative…
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Investigation of the physical and social Impact of living with hemiplegia.
Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…
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Meds and Moves: The art & science of living well with cerebral palsy
You are invited to attend our upcoming webinar Meds and moves: The art & science of living well with cerebral palsy on Friday 11 October at 7 am UK time Join us for this insightful webinar exploring individual experiences with medication. Each person from this group of presenters with diverse lived experience—Madison…
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My Son has cerebral palsy and looking for support groups!
HI all My Son has cerebral palsy he is only 16 months old..however I want to support him as much as possible and would love to get help from others in a similar situation or help other families. Can anyone point me in the right direction, or shall I create my own!! Thanks Dale
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Join us for the next CP Network meeting on Wednesday, 21August, from 6 to 7 PM
I hope you can join us next Wednesday😀! Mark your calendars for Wednesday, 21 August 2024, from 6pm to 7pm. Looking forward to seeing you there! 😃 Not a member of CP Network? Sign up today
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Maternity Care for women with CP: The RICH Project
We need two more women to join the study. Can you help? RICH Study - The University of Nottingham RIghts and CHoices for women with cerebral palsy: A qualitative studyto understand what works in the provision of their maternity care Purpose of the study: 1. To find out about the reproductive choices and experiencesof women…
