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Cerebral Palsy Awareness Month "Embracing Identity Through Laughter" Rhys Thorne
I recently had the pleasure of speaking with Welsh comedian Rhys Thorne, whose fresh voice, quick wit and lived experience bring something truly special to the comedy scene. Our conversation explored the intersections of cerebral palsy, LGBTQ+ identity, creativity, and personal resilience. And how humour becomes a powerful…
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The hidden effort of socialising with cerebral palsy and epilepsy
Living with both cerebral palsy (CP) and epilepsy can require a significant, often invisible, effort to maintain a social life. The combined challenges of physical limitations, chronic fatigue, the unpredictable nature of seizures, and medication side effects can make showing up socially feel like more than a 100% effort.…
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Disability Sports Wales Event. Gwent.
I attended the Disability Sports Wales Insport event at Cwmbran Stadium in Torfaen, Wales, on Friday, 20 February 2026. It was a great opportunity to try several sports in one space. There was boccia, golf, table tennis and boxing. But the sports attracting the most interest were wheelchair rugby and curling. Attendees…
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Samantha Maxwell-Author and Chair of Wrexham Accessibility Project
Samantha Maxwell-Interview with Sara Edwards, Cerebral Palsy Specialist. Samantha Maxwell from Wrexham has cerebral palsy and is the author of CP Isn’t Me and Disabling Ableism. Samantha's third book, Silenced, was published in September 2025. It takes a deeper look into the relationship between disability and mental…
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Welsh CP Network Meeting 17 February 2026.
Join Scope's Welsh CP Network on Tuesday, 17 February at 6 pm. It's our second online meeting! It was great see so many people from across Wales at our first meeting in January 2026. We want to grow our Welsh community, so please spread the word about these new meetings for Wales. You can sign up for February's meeting by…
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Tips for shoes for child with cerebral palsy that wears a splint?
Hi my little boy is nearly 3 and has cerebral palsy and he has to wear a splint on his right foot but I find it hard to get shoes that fit his splint especially boots or wellies. He currently wears crocs majority of the time as I have found they are the easiest for putting on with his splint. Just wondering if anyone has…
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Calling the All-Wales CP Network
Calling the Welsh CP Network. Good afternoon. I'm preparing for the second online Welsh CP Network meeting. It's taking place on Tuesday 17 February at 6pm. Last month, we mentioned topics we would like to focus on, and this is shaping our Network. This week, I spoke to a Police Officer who delivers Hate Crime Awareness…
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Opportunities to Try a New Sport in 2026. Disability Sports Wales
Opportunities to try a sporting activity are limited for me. Contacting a group and telling them I have Cerebral Palsy makes it difficult for sporting groups and gyms to find a way to adapt their services for a disabled person. I want to try something new in 2026 and have found Disability Sports Wales are hosting three…
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Interview with Zach Eagling. Pride of Britain Winner 2025
Introduction. Sara Edwards and Lucy Hindmarch from the CP Network recently interviewed Zach Eagling, an inspiring fourteen-year-old who lives with cerebral palsy and epilepsy. Zach's journey began during the COVID-19 lockdown, when, motivated by Captain Tom Moore, he undertook a remarkable fundraising challenge. At just…
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CP Network Wales winter meetings moved online. Please join us In One Month.
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Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
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Sheffield University Research Project Recruitment for Adults with CP
Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…
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So happy to have joined the CP Network Meeting ..... First Time
Thank you for having me on the zoom call meeting, at first i felt very nervouse to speak to everyone so decided to message in the chat and it helped me feel less nervouse and included and made me laugh smile and be more happy, so tank you and i will definately be joinging more.
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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How much pain is acceptable?
A few months ago I saw a neurophysio and an OT they didn’t examine me (not once) we discussed my pain level and their response was… “Well you need to accept that you have Cerebral Palsy and at 32 you’re going to be in pain” A few weeks later I was with the OT, again the subject of pain came up. My pain was that bad I was…
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Water Therapy has Given my Daughter Confidence
A 15-year-old girl who was told she may never walk after being born with cerebral palsy has grown in confidence thanks to aqua therapy, her mother has said. Listen to Lillie's mum, Keighly discuss this with Radio Sheffield. BBC News Cerebral Palsy
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How do you get to go to a gym if you DON'T NEED a carer?
Dear Anyone. I live in Brighton, have done for 10 years. Just found out about this community (well, recently!) Been trying to get to go to a gym all the time I've been here and "No, Sorry, you Must Have your Carer With you. Health and Safety." Thing IS - I don't have or need a carer. And to hire one for a day - they don't…
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Hi, my name is Annie015
I'm 38, and i'm a mother of one and live with my partner. I joined the online community so I can chat and discuss with other members whose lives are affected with disabilities and be able to learn more.
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Sudden Unexpected Death in Epilepsy SUDEP
Medical professionals need to be discussing SUDEP with their patients! The leading cause of death in epilepsy is rarely explained to patients by doctors, a grieving father has said. BBC News-SUDEP
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Meet the Challenge Squad - BBC Children in Need
Last night, I watched the One Show introduce their Challenge Squad for Children in Need. All I can say, is what a great group of people to take on their challenges. I felt emotional listening to their stories. You can read more about them following the link below. Meet the Challenge Squad. Children in Need
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Frailty Index Could Improve Lives of Younger Patients
Researchers at a Scottish university have discovered a measure used to assess the health of older people can improve quality of life for younger patients. BBC News Cerebral Palsy
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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Power chair for tall person
Hi everyone, I am really struggling to know what to do. My Son is a wheelchair user, he is 13, 6ft 3" and still growing! I am finding it very hard to push him because of my own health challenges and it is preventing us from ever getting outside. I've been searching the web for a powerchair that has the seat depth he needs…
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Forty Years Later: The Viewpoint of Cerebral Palsy from a Sibling’s Perspective.
For World CP Day 6 October 2025. Warning- This article might contain information which some might find upsetting. When parents received a diagnosis of cerebral palsy and epilepsy in the 1970s and 1980s, it was an emotionally and practically overwhelming time. But what if you’re a sibling in this scenario? How does your…
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World CP Day 2025!
World CP Day 2025! It's taken a long time for me to accept my cerebral palsy. Now I understand it makes me unique, has given me opportunities I never thought possible, and united me with the CP community.
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CP and spasticity
I'm 66 and have left sided Hemiplegia. For about the last 10 years I've had increasing problems with weakness/ spasticity on that side of my chest. I call it a 'wraparound' pain. I slump to the left, the pain goes down my neck, under the bust, over the shoulder and up into my head. My chest feels like concrete. I don't…
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Cerebral Palsy No Barriers for Oxford Student
Maisy Gallagher-Horwood, aged 21, who lives in Shipton-on-Cherwell has cerebral palsy and is a wheelchair user. For years she has championed disability rights and accessible employment opportunities, Now she’s landed a job with Oxfordshire County Council as its special educational needs and disabilities (SEND) media…
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child to teens/young adults
My son is now 20 and we are beginning to notice the lack of help . He goes to college this will be his third year although he didn't attend for most of the last year because he didn't get on with the course . He has had a specialist chair all the way through school and college (Bambach). As he wasn't in attendance the…
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thinking of leaving my job
Hello I have mild cerebral palsy and I had been working since I was 18 years old full time, then part time. When I turned 40 my health rapidly got worst. I started to have other health issues as well. Doctor can’t help much. I have reasonable adjustments at work, but I am still struggling. I have a lot of pain, fatigue and…
