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World CP Day. The change we want to see for cerebral palsy.
This year, for World Cerebral Palsy Day, we are being asked to answer one question: THE CHANGE WE WANT TO SEE FOR CEREBRAL PALSY. We need a deeper, more compassionate understanding of the hidden realities of living with cerebral palsy. For many of us, cerebral palsy is only one part of the picture. Co-existing conditions…
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The Flare Up Fighting Kit 🦼😶🌫️🧠🚻😭😫
Each of us has our own challenges that we face each and every single day, strong, survivor are just a few words to describe us. We have good days, meh days, arrrrrrr days, painful days, days that are so dark that it paralyses us, days that we don’t feel heard, not one single day is the same, in fact we can cycle through so…
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Because you matter challenge. Starts today Tuesday 1 September 2026
I'm posting this 30-day challenge on behalf of Chrissie Henson, who has been in touch with Scope. and the Cerebral Palsy Network. Hi, I'm Chrissie. I am a person-centred therapist and author who also lives with Cerebral Palsy. I recently contacted @Richard_Scope as, over the last few months, I have set up a YouTube…
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World Suicide Prevention Day: 10 September 2025. Cerebral Palsy
September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…
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Parents and cares of children with cerebral palsy
Parents and carers of children with cerebral palsy-we want to hear from you. We'd love to hear your perspectives on: a time your child's behaviour was misunderstood. experiences of fatigue. talking to a child about cerebral palsy working with school what helped after diagnosis Your views can help Scope and the Cerebral…
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Cerebral palsy, epilepsy and menopause. A study by The University of Manchester.
Researchers at The University of Manchester are exploring the relationship between epilepsy and menopause, and how hormonal changes during midlife can affect women living with epilepsy. If you're a woman aged 35 to 65 with epilepsy, you may be eligible to take part in this questionnaire-based study. By sharing your…
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I Am Too Proud To Ask For Help 🤔
I have lived on the old Blue Spinning Ball for 43 years and it is fair to say that life has been like a Donkey Kong Roller Coaster….. I have battled multiple mental and physical conditions for every single breath I have taken. I was often told that I wouldn’t amount to anything, that I couldn’t do this, I couldn’t do that…
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Interview with Burt Rickman. Author of the book No Half Measures.
No Half Measures: Burt Rickman’s Story of Cerebral Palsy, Resilience and Change At just twenty-one, Burt Rickman has already achieved something remarkable: he has written and published his book, No Half Measures. Burt has hemiplegia, a form of cerebral palsy, and his book is rooted in his own experiences of growing up with…
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Wales Success at Commonwealth Games 2026
Team Wales Captain Olivia Breen claims sprint silver in the T38 100m final. Team Wales captain Olivia Breen earned the first Welsh medal of the Glasgow Commonwealth Games in athletics with a silver in the T38 100m final with a season's best of 12.86 seconds. C'mon Wales! Wales Success at Commonwealth Games
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Young voices lead the way on accessibility at Ysgol Bryn Alyn. Disability Pride!
There is a huge accessibility project happening in Wrexham, chaired by the author Samantha Maxwell. Awareness of the work is growing in the area and throughout Wales. Last week I attended a presentation from pupils at Ysgol Bryn Alyn, Gwersyllt, Wrexham. The pupils have only recently got involved in the work, but they have…
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I ran the width of England for my inspiring brother
A man has run the width of England in one go, inspired by his close relationship with his younger brother who lives with cerebral palsy. Charlie Isaac, 32, who grew up near Stroud, Gloucestershire, completed the 70‑mile (115km) challenge along Hadrian's Wall from Carlisle to Newcastle, raising £5,900 for Wiltshire's…
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Hi, my name is Moduncdu! Botox experiences for CP?
Hi I am in my sixties with Cerebral Palsy(diplegia). Has anyone had experience of BOTOX injections ?If you have did you have any passive muscle stretching to help muscles to lengthen ? I look foreard to hearing from you🙂
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Cerebral Palsy Awareness Month "Embracing Identity Through Laughter" Rhys Thorne
I recently had the pleasure of speaking with Welsh comedian Rhys Thorne, whose fresh voice, quick wit and lived experience bring something truly special to the comedy scene. Our conversation explored the intersections of cerebral palsy, LGBTQ+ identity, creativity, and personal resilience. And how humour becomes a powerful…
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BBC The One Show. One Big Thankyou. Lily Blackburn
Lily Blackburn was recognised on BBC’s The One Show after raising more than £75,000 for Haven House Children’s Hospice through a series of inspiring fundraising challenges. As part of the programme’s One Big Thank You series, the 13-year-old received a surprise appearance from former One Direction star Zayn Malik in…
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Disabled People facing rising abuse when using their Blue Badge
Disabled people who rely on Blue Badges say they are facing rising abuse and harassment. According to a recent study of over 300 disabled Blue Badge holders in 2026; 67% experienced harassment whilst using their badge. 32% had been threatened with violence. 6% had been physically attacked. These shocking statistics were…
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Cerebral Palsy and the maternity journey. Voices from women in the UK
Choices and Support on the Maternity Journey in the UK: Voices from Women with Cerebral Palsy The number of disabled women, including those with cerebral palsy (CP), experiencing pregnancy and motherhood globally is increasing. This could be attributed to equality legislation, medical advancements (including assistive…
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Liverpool fan with cerebral palsy can finally communicate thanks to ITV Granada
A Liverpool fan with cerebral palsy is finally able to communicate thanks to donations from ITV viewers. Read the story here: Viewers help give man with cerebral palsy a voice
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HEREFORHEMI by Cianna Howard
Hi everyone 💛 I’m Cianna, a mum to a child with hemiplegia, and I’ve recently started a community called Hereforhemi 🫶 After diagnosis, I found it really isolating not knowing anyone going through the same thing, so I wanted to create a space where families could connect, feel understood, and support each other. In just…
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All Wales Cerebral Palsy Network Meeting
Hi everyone. Our next Scope All-Wales Cerebral Palsy Network is next week: Tuesday, 21 April at 6pm. It would be lovely to meet people from across Wales to talk about what matters to them. All-Wales Cerebral Palsy Network meeting – guest speaker We’re pleased to welcome Jenna Trakins, Scope’s Community Programme Lead…
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The hidden effort of socialising with cerebral palsy and epilepsy
Living with both cerebral palsy (CP) and epilepsy can require a significant, often invisible, effort to maintain a social life. The combined challenges of physical limitations, chronic fatigue, the unpredictable nature of seizures, and medication side effects can make showing up socially feel like more than a 100% effort.…
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Disability Sports Wales Event. Gwent.
I attended the Disability Sports Wales Insport event at Cwmbran Stadium in Torfaen, Wales, on Friday, 20 February 2026. It was a great opportunity to try several sports in one space. There was boccia, golf, table tennis and boxing. But the sports attracting the most interest were wheelchair rugby and curling. Attendees…
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Samantha Maxwell-Author and Chair of Wrexham Accessibility Project
Samantha Maxwell-Interview with Sara Edwards, Cerebral Palsy Specialist. Samantha Maxwell from Wrexham has cerebral palsy and is the author of CP Isn’t Me and Disabling Ableism. Samantha's third book, Silenced, was published in September 2025. It takes a deeper look into the relationship between disability and mental…
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Tips for shoes for child with cerebral palsy that wears a splint?
Hi my little boy is nearly 3 and has cerebral palsy and he has to wear a splint on his right foot but I find it hard to get shoes that fit his splint especially boots or wellies. He currently wears crocs majority of the time as I have found they are the easiest for putting on with his splint. Just wondering if anyone has…
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Opportunities to Try a New Sport in 2026. Disability Sports Wales
Opportunities to try a sporting activity are limited for me. Contacting a group and telling them I have Cerebral Palsy makes it difficult for sporting groups and gyms to find a way to adapt their services for a disabled person. I want to try something new in 2026 and have found Disability Sports Wales are hosting three…
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Interview with Zach Eagling. Pride of Britain Winner 2025
Introduction. Sara Edwards and Lucy Hindmarch from the CP Network recently interviewed Zach Eagling, an inspiring fourteen-year-old who lives with cerebral palsy and epilepsy. Zach's journey began during the COVID-19 lockdown, when, motivated by Captain Tom Moore, he undertook a remarkable fundraising challenge. At just…
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CP Network Wales winter meetings moved online. Please join us In One Month.
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Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
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Sheffield University Research Project Recruitment for Adults with CP
Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…
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So happy to have joined the CP Network Meeting ..... First Time
Thank you for having me on the zoom call meeting, at first i felt very nervouse to speak to everyone so decided to message in the chat and it helped me feel less nervouse and included and made me laugh smile and be more happy, so tank you and i will definately be joinging more.
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
