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Cerebral Palsy No Barriers for Oxford Student
Maisy Gallagher-Horwood, aged 21, who lives in Shipton-on-Cherwell has cerebral palsy and is a wheelchair user. For years she has championed disability rights and accessible employment opportunities, Now she’s landed a job with Oxfordshire County Council as its special educational needs and disabilities (SEND) media…
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child to teens/young adults
My son is now 20 and we are beginning to notice the lack of help . He goes to college this will be his third year although he didn't attend for most of the last year because he didn't get on with the course . He has had a specialist chair all the way through school and college (Bambach). As he wasn't in attendance the…
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thinking of leaving my job
Hello I have mild cerebral palsy and I had been working since I was 18 years old full time, then part time. When I turned 40 my health rapidly got worst. I started to have other health issues as well. Doctor can’t help much. I have reasonable adjustments at work, but I am still struggling. I have a lot of pain, fatigue and…
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World Suicide Prevention Day: 10 September 2025. Cerebral Palsy
September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…
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CP - orthotics
Hi there My son who is almost 4, has cerebral palsy. His left leg is mainly impacted. He’s been referred to orthotics for a splint but this is taking a long time. Has anyone got experience of this and whether the splint helped, or whether anyone has gone private and what their experience has been, Many thanks
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Hi, my name is carolynwillis! son having botox in wrist for the first time and not sure what expect
My son has cerebral palsy with a left hemiplegia . He is now 20 years old . He is starting a supported internship at his local college . His love in life is cricket playing ,watching and coaching .As his mother often joke that I'm his personal assistant but joking aside I do help with things such as PIP and universal…
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Accessing botox
Hi! I have mild diplegic cerebral palsy. I had botox injections once as a child (now in my late 20s) but since then I have had no treatment/physio/consults etc so don't really know where to start with accessing support or treatment. I've been reading about Botox again and would like to explore this option and/or physio. I…
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Hi, my name is Jude_Cumbria_CP!
Hello everyone, My name is Jude, I am a family advisor for a charity called Cumbria Cerebral Palsy. We support individuals and families who have Cerebral Palsy. I am looking for people in my area to support and wondered if there may be people on here that may not know about us? We offer lots of support including help with…
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Cardiff CP Network-In Person Event. Cardiff Central Library.
Good afternoon all. I have some news I'd like to share, especially with people living in Cardiff and surrounding areas. On behalf of Scope, I have organised the first Cardiff CP Network meeting. It will be held on Monday 15th September 2025 at Cardiff Central Library. Please see the attached posters for more information…
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Hi - Building CP games
Hi everyone, I'm a bioengineer, building games to make physiotherapy more fun/easier :)
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Free transport and advice for disabled people. South of England
Queen Elizabeth Transport Advice Service. If driving is not an option due to a medical condition, disability or age related impairment, the free Transport Advice Service can signpost you to alternative, accessible transport choices. Guidance is available face to face, over the phone or on our website. Our friendly…
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Hi, my name is Rosies_Dad! Just received a CP diagnosis for my daughter, any book recommendations?
Yesterday I took my twin daughters to Hospital for a routine physio appt and was blind sided with a Cerebral Palsy diagnosis for Rosie it now makes sense why she can’t walk. My wife is away with the Army so wasn’t there is person. We are now waiting to go back for more physio and hopefully some sort of walker. Can anyone…
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Disability Pride 2025
What does Disability Pride mean to me? Sara Edwards CP Specialist When I first heard the term Disability Pride, I was confused by its meaning. In June we celebrate the LGBTQIA+ community and hold Pride events. I assumed Disability Pride was an extension of this, celebrating the LGBTQIA+ disabled community. In 2024 I was…
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I need a little favour
and it won’t cost you anything…. well maybe 30 seconds. Please take a moment to support my cousin who has CP. On 12 June, my disabled cousin was denied boarding by British Airways staff in Cairo. His sister was told it was because “last time it took half an hour to board him” on a previous flight. Just too inconvenient.…
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World Wellbeing Week
On the last day of World Wellbeing Week, here is a simple and effective technique to help manage negative thinking. We live in a world filled with uncertainties and it's all too common to be overwhelmed by stress and anxiety. This state of being can often lead to negative views of feeling worthless or unloved. Emotions…
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Free London Art Exhibition in July
'Fruiting Bodies' - Free Art Exhibition by Yasmine Rana Yasmine Rana is a traditional artist from London, UK. She was born with cerebral palsy and has lived over half of her life with other chronic illnesses as well. These impact not only the subject matter of her work, but also how she paints, making each piece a unique…
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Craft
I'm currently crafting a blanket that is Netflix Witcher themed. I'm loving the process do far and it's good for my mental health and for my hands. Emily ❤️
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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BBC Make a Difference Awards in Wales.
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
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PIP isn't a luxury. It allows me to work and contribute to society
As the government proposes changes to disability benefits like PIP, writer Jennifer McShane, 37, shares how cuts could impact her life with Cerebral Palsy I use my PIP payment to live and work, I'm terrified of the DWP taking it away
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Expansion of CP Network in North Wales
Hi everyone. The CP Network and Cerebral Palsy Adult Advice UK group, are looking at expanding our network meet ups in the North Wales area, allowing more people the opportunity to attend sessions. Please could members in North Wales state which area they live in the comments below. We can then pinpoint suitable locations.…
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Carmarthenshire CP Network
Good afternoon. After the success of our joint Scope and Cerebral Palsy Adult Advice UK Wrexham meet up, I'm working with a small group of people to create a Carmarthenshire CP group. Are there any members local to Carmarthenshire who would be interested in being part of this network? Please comment below or reach out to…
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Mental health, Cerebral Palsy & hobbies
Hi everyone, I’m not sure this is under the right topic but I’m really in need of some advice. I have Cerebral Palsy, mental health issues & numerous other health issues. Unfortunately I lost my best friend, my mum a year ago. So it’s now just me & dad. We’ve been through so much in the last few years meaning stress levels…
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Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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CP Multi level Surgery
HI my son is 10 and will be having multilevel surgery later this year and I wondered if anyone has any advise/information/tips they could share. As a family we are all pretty nervous about it but are hopefully doing the best thing for him. He currently uses a walking frame and sometimes a wheelchair but he is being more…
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Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
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Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin Fairy®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achieves…
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CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in their…
