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Free London Art Exhibition in July
'Fruiting Bodies' - Free Art Exhibition by Yasmine Rana Yasmine Rana is a traditional artist from London, UK. She was born with cerebral palsy and has lived over half of her life with other chronic illnesses as well. These impact not only the subject matter of her work, but also how she paints, making each piece a unique…
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Craft
I'm currently crafting a blanket that is Netflix Witcher themed. I'm loving the process do far and it's good for my mental health and for my hands. Emily ❤️
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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BBC Make a Difference Awards in Wales.
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
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PIP isn't a luxury. It allows me to work and contribute to society
As the government proposes changes to disability benefits like PIP, writer Jennifer McShane, 37, shares how cuts could impact her life with Cerebral Palsy I use my PIP payment to live and work, I'm terrified of the DWP taking it away
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Expansion of CP Network in North Wales
Hi everyone. The CP Network and Cerebral Palsy Adult Advice UK group, are looking at expanding our network meet ups in the North Wales area, allowing more people the opportunity to attend sessions. Please could members in North Wales state which area they live in the comments below. We can then pinpoint suitable locations.…
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Carmarthenshire CP Network
Good afternoon. After the success of our joint Scope and Cerebral Palsy Adult Advice UK Wrexham meet up, I'm working with a small group of people to create a Carmarthenshire CP group. Are there any members local to Carmarthenshire who would be interested in being part of this network? Please comment below or reach out to…
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Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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CP Multi level Surgery
HI my son is 10 and will be having multilevel surgery later this year and I wondered if anyone has any advise/information/tips they could share. As a family we are all pretty nervous about it but are hopefully doing the best thing for him. He currently uses a walking frame and sometimes a wheelchair but he is being more…
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Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
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Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin Fairy®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achieves…
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CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in their…
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Yeovil Man to Run the London Marathon
Connor Hyde who has epilepsy and cerebral palsy ran the London Marathon 2025. BBC News
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Wrexham Cerebral Palsy Get Together-CP Network and CP Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
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New member
My daughter has CP is hypotonic, has a learning disability and is on the autistic spectrum. I would like her to be able to join here with her own account. Is this possible. She could do with making some friends outside her very small circle of existing ones.
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Functional Electrical Stimulation (FES)
Hi I have my first appointment for this soon & wondered if anyone with CP Diplegia has tried it & how it works for them? I'm in my late 50s & can't wait to give it a try. I'm hoping for no more scuffing of toes & the ability to walk outdoors with more confidence even if I still have to use my sticks or rollator.
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Unable to find tenant to share adapted house - so facing eviction
Hi, my son is a wheelchair user CP has supported living in a super two bedroom house, wheelchair adapted, very close to both nature and a town. The other person moved out nearly two years ago and neither the council or the agent have been able to find another tenant. It's not financially viable for the agent and they want…
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Sugar Kayne Radio: A Journey of Resilience, Passion and the Power of Music
Sugar Kayne radio. A creation by Matthew Kayne. Since its launch, Sugar Kayne Radio has grown into a favourite for worldwide listeners of RnB, Club Classics, and feel-good hits. Hosted by DJ Sugar Kayne, also known as Matthew Kayne, Sugar Kayne Radio is more than just music- it's a lively community, where listeners connect…
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Next Steps
Hi everyone, This is just a post to learn more about other's experiences and get any advice that this lovely community can provide us with. My brother who is about to turn 19 feels that he has no community or friends. He has CP and fully wheelchair bound. No matter how much support that I can provide, he still needs…
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Forty Years Celebrating Disabled Artists Across the UK
Let's keep raising awareness during Cerebral Palsy Awareness Month. An artist who has quadriplegic cerebral palsy is one of many showcasing her creativity at a 40th anniversary festival to celebrate disabled and deaf artists. BBC Celebration of Disabled Artists
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Meet the Author-Samantha Maxwell. CP Isn't Me and other ventures
Samantha Maxwell-Interview with Sara Edwards-Cerebral Palsy Specialist. Samantha Maxwell from Wrexham is the author of CP Isn’t Me and Disabling Ableism. I caught up with Samantha to discuss the inspiration behind her writing, the impact of her books and what the future holds. Samantha has a mild form of cerebral palsy. In…
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Are You a Premature/Pre-term, NICU Baby?
FROM NICU TO NOW YOUNG PEOPLE’S VOICE IN RESEARCH Were you in the NICU as a baby? We’d love to hear your story! The Neonatal Medicine Group at Imperial College London is looking to set up a group for young people (aged 17-24) to help shape neonatal research. Why join? Inform neonatal research Share your thoughts and…
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My cerebral palsy and epilepsy journey. Cerebral Palsy Awareness Month
I was diagnosed with right sided hemiplegia at the age of one in 1977. I had my first seizure at the age of two and was diagnosed with epilepsy soon after. In the early days physio was part of my childhood routine, and I accepted it. But as I got older, I noticed people would stare at me when we were out and even though I…
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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at to attend this event. I recently interviewed Jan where we discussed her…
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Join us next week to mark Cerebral Palsy Awareness Month 2025
Join us next week Wednesday 5 March 2025 to mark Cerebral Palsy Awareness Month. We are excited to welcome a range of inspiring speakers who will share their personal stories of living with cerebral palsy. They will offer insights into the challenges they face and the triumphs they achieve, giving us a deeper understanding…
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Webinar on Health Equity for Persons with Cerebral Palsy and Other Disabilities
Webinar hosted by the International Cerebral Palsy Society (ICPS) People with cerebral palsy and other disabilities face health challenges not only as a direct result of their condition but also due to lack of adequate training or resources in the healthcare system or even prejudice and discrimination on the part of…
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Exciting Research Project. Ulster University. Your Voice on Pain-Take Part
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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CP Midlands Fabulous February Disability Meet-UP This Saturday!
Who's joining us at our Disability Meet-Up this Saturday? Fabulous February Disability Meet-Up! Join us on Saturday, 22nd February for a fun and inclusive get-together hosted by Ability Life West Midlands at Cerebral Palsy Midlands, 17 Victoria Rd, Harborne, Birmingham, B17 0AQ! Connect, share stories & make new friends…
