-
Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
-
CP Network Wales winter meetings moved online. Please join us.
-
So happy to have joined the CP Network Meeting ..... First Time
Thank you for having me on the zoom call meeting, at first i felt very nervouse to speak to everyone so decided to message in the chat and it helped me feel less nervouse and included and made me laugh smile and be more happy, so tank you and i will definately be joinging more.
-
Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
-
How much pain is acceptable?
A few months ago I saw a neurophysio and an OT they didn’t examine me (not once) we discussed my pain level and their response was… “Well you need to accept that you have Cerebral Palsy and at 32 you’re going to be in pain” A few weeks later I was with the OT, again the subject of pain came up. My pain was that bad I was…
-
Water Therapy has Given my Daughter Confidence
A 15-year-old girl who was told she may never walk after being born with cerebral palsy has grown in confidence thanks to aqua therapy, her mother has said. Listen to Lillie's mum, Keighly discuss this with Radio Sheffield. BBC News Cerebral Palsy
-
How do you get to go to a gym if you DON'T NEED a carer?
Dear Anyone. I live in Brighton, have done for 10 years. Just found out about this community (well, recently!) Been trying to get to go to a gym all the time I've been here and "No, Sorry, you Must Have your Carer With you. Health and Safety." Thing IS - I don't have or need a carer. And to hire one for a day - they don't…
-
Hi, my name is Annie015
I'm 38, and i'm a mother of one and live with my partner. I joined the online community so I can chat and discuss with other members whose lives are affected with disabilities and be able to learn more.
-
Sudden Unexpected Death in Epilepsy SUDEP
Medical professionals need to be discussing SUDEP with their patients! The leading cause of death in epilepsy is rarely explained to patients by doctors, a grieving father has said. BBC News-SUDEP
-
Meet the Challenge Squad - BBC Children in Need
Last night, I watched the One Show introduce their Challenge Squad for Children in Need. All I can say, is what a great group of people to take on their challenges. I felt emotional listening to their stories. You can read more about them following the link below. Meet the Challenge Squad. Children in Need
-
Frailty Index Could Improve Lives of Younger Patients
Researchers at a Scottish university have discovered a measure used to assess the health of older people can improve quality of life for younger patients. BBC News Cerebral Palsy
-
Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
-
Power chair for tall person
Hi everyone, I am really struggling to know what to do. My Son is a wheelchair user, he is 13, 6ft 3" and still growing! I am finding it very hard to push him because of my own health challenges and it is preventing us from ever getting outside. I've been searching the web for a powerchair that has the seat depth he needs…
-
Forty Years Later: The Viewpoint of Cerebral Palsy from a Sibling’s Perspective.
For World CP Day 6 October 2025. Warning- This article might contain information which some might find upsetting. When parents received a diagnosis of cerebral palsy and epilepsy in the 1970s and 1980s, it was an emotionally and practically overwhelming time. But what if you’re a sibling in this scenario? How does your…
-
World CP Day 2025!
World CP Day 2025! It's taken a long time for me to accept my cerebral palsy. Now I understand it makes me unique, has given me opportunities I never thought possible, and united me with the CP community.
-
CP and spasticity
I'm 66 and have left sided Hemiplegia. For about the last 10 years I've had increasing problems with weakness/ spasticity on that side of my chest. I call it a 'wraparound' pain. I slump to the left, the pain goes down my neck, under the bust, over the shoulder and up into my head. My chest feels like concrete. I don't…
-
Cerebral Palsy No Barriers for Oxford Student
Maisy Gallagher-Horwood, aged 21, who lives in Shipton-on-Cherwell has cerebral palsy and is a wheelchair user. For years she has championed disability rights and accessible employment opportunities, Now she’s landed a job with Oxfordshire County Council as its special educational needs and disabilities (SEND) media…
-
child to teens/young adults
My son is now 20 and we are beginning to notice the lack of help . He goes to college this will be his third year although he didn't attend for most of the last year because he didn't get on with the course . He has had a specialist chair all the way through school and college (Bambach). As he wasn't in attendance the…
-
thinking of leaving my job
Hello I have mild cerebral palsy and I had been working since I was 18 years old full time, then part time. When I turned 40 my health rapidly got worst. I started to have other health issues as well. Doctor can’t help much. I have reasonable adjustments at work, but I am still struggling. I have a lot of pain, fatigue and…
-
World Suicide Prevention Day: 10 September 2025. Cerebral Palsy
September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…
-
CP - orthotics
Hi there My son who is almost 4, has cerebral palsy. His left leg is mainly impacted. He’s been referred to orthotics for a splint but this is taking a long time. Has anyone got experience of this and whether the splint helped, or whether anyone has gone private and what their experience has been, Many thanks
-
Hi, my name is carolynwillis! son having botox in wrist for the first time and not sure what expect
My son has cerebral palsy with a left hemiplegia . He is now 20 years old . He is starting a supported internship at his local college . His love in life is cricket playing ,watching and coaching .As his mother often joke that I'm his personal assistant but joking aside I do help with things such as PIP and universal…
-
Accessing botox
Hi! I have mild diplegic cerebral palsy. I had botox injections once as a child (now in my late 20s) but since then I have had no treatment/physio/consults etc so don't really know where to start with accessing support or treatment. I've been reading about Botox again and would like to explore this option and/or physio. I…
-
Hi, my name is Jude_Cumbria_CP!
Hello everyone, My name is Jude, I am a family advisor for a charity called Cumbria Cerebral Palsy. We support individuals and families who have Cerebral Palsy. I am looking for people in my area to support and wondered if there may be people on here that may not know about us? We offer lots of support including help with…
-
Cardiff CP Network-In Person Event. Cardiff Central Library.
Good afternoon all. I have some news I'd like to share, especially with people living in Cardiff and surrounding areas. On behalf of Scope, I have organised the first Cardiff CP Network meeting. It will be held on Monday 15th September 2025 at Cardiff Central Library. Please see the attached posters for more information…
-
Hi - Building CP games
Hi everyone, I'm a bioengineer, building games to make physiotherapy more fun/easier :)
-
Free transport and advice for disabled people. South of England
Queen Elizabeth Transport Advice Service. If driving is not an option due to a medical condition, disability or age related impairment, the free Transport Advice Service can signpost you to alternative, accessible transport choices. Guidance is available face to face, over the phone or on our website. Our friendly…
-
Hi, my name is Rosies_Dad! Just received a CP diagnosis for my daughter, any book recommendations?
Yesterday I took my twin daughters to Hospital for a routine physio appt and was blind sided with a Cerebral Palsy diagnosis for Rosie it now makes sense why she can’t walk. My wife is away with the Army so wasn’t there is person. We are now waiting to go back for more physio and hopefully some sort of walker. Can anyone…
-
Disability Pride 2025
What does Disability Pride mean to me? Sara Edwards CP Specialist When I first heard the term Disability Pride, I was confused by its meaning. In June we celebrate the LGBTQIA+ community and hold Pride events. I assumed Disability Pride was an extension of this, celebrating the LGBTQIA+ disabled community. In 2024 I was…
-
I need a little favour
and it won’t cost you anything…. well maybe 30 seconds. Please take a moment to support my cousin who has CP. On 12 June, my disabled cousin was denied boarding by British Airways staff in Cairo. His sister was told it was because “last time it took half an hour to board him” on a previous flight. Just too inconvenient.…
