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My New GP is refusing to prescribe...
Hi, I wasn't sure where to turn or who to talk to about this so I thought the best place to start was here. I have just recently changed to a new gp practitioner due to moving areas. I was due a repeat prescription and as I am new I had to have a phone consultation for my first prescription. A GP phoned me and I told her…
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Exciting Event with Cerebra and Pedal Power in Cardiff
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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Transform Your Child’s Progress This Easter / Spring School Holiday with Intensive Therapy!
From Monday 7th April to Thursday 17th April, we’re offering Intensive Therapy to help children with cerebral palsy and other movement disorders make real progress. Available dates are: Monday 7th to Friday 11th April – 5 days Monday 14th to Thursday 17th April – 4 days Can’t make those dates? No problem. We offer…
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CP Midlands Fabulous February Disability Meet-UP This Saturday!
Who's joining us at our Disability Meet-Up this Saturday? Fabulous February Disability Meet-Up! Join us on Saturday, 22nd February for a fun and inclusive get-together hosted by Ability Life West Midlands at Cerebral Palsy Midlands, 17 Victoria Rd, Harborne, Birmingham, B17 0AQ! Connect, share stories & make new friends…
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Dating with CP is Our Next CP Network Event Wednesday 19 February 6PM
This week, our Zoom meeting will be discussing dating with CP. We will be joined be journalist Melissa Parker. Melissa is an award-winning freelance journalist. Her writing has appeared in Radio Times, Stylist, Cosmopolitan, Digital Spy, and Metro. She covers topics from dating to Doctor Who. She focuses on how disability…
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Cerebral Palsy Support Group to launch in Taunton in March
CP Network member Nicole has set up a new support group for people with cerebral palsy that is launching in Taunton. The first meeting will be on Wednesday, March 19, between 2 pm and 4 pm at Compass Wellbeing on Taunton's Belvedere Trading Estate. Nicole said: "Our aims are to tackle the stigma around cerebral palsy, give…
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Augmented Assistance Technology. Question and Answer session with Michael Cash from Voiceitt.
Michael Cash-Voiceitt. Question one: Hi Michael, Welcome to Scope’s online community. We’re here today discussing Augmented Assistive Communication (AAC), particularly your company Voiceitt. Before we get into the details, tell me about yourself and your background. Answer: From a young age my parents noticed I wasn’t…
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Do You Have Difficulty Falling and Staying Asleep?
Everyone needs adequate sleep each night. Sleep allows the body to rest and recharge for the following day. But for people with cerebral palsy, sleeping isn’t always easy, as there is a frequent struggle with spasticity and involuntarily movements. There are a few ways to help address this problem. Cerebral palsy isn’t…
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Exciting research project. Ulster University. Your Voice on Pain. Take part.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Man with cerebral palsy to swim 5km for charity
From BBC News A man with cerebral palsy known for taking on fundraising challenges says he is training for his next event. Ash Jenkins, from Bristol, is planning to swim 5km (three miles) in open water at Adam Walker's lake, in Lincolnshire, for charity. He has previously done bungee jumps and indoor skydives - but the…
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Hi, my name is fayluna! Cerebral palsy and incontinence
I have a question, I have cerebral palsy and is anyone else suffering with a little bit of incontinence?
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How Scouts opened the door for my daughter with cerebral palsy
Sophie is a Beaver who has cerebral palsy. When she joined Beavers, it was the first time Sophie said an enthusiastic ‘yes’ to her family about an extracurricular activity with no hesitation. Sophie’s mum, Nicola, writes how inclusive Scouts has been. Her story shows that inclusion isn’t just possible – it can make a huge…
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Activities in West London for 15-year-old
reaching out to see what’s available in west London please. Am asking for our 15yr old daughter who uses a walking frame to get around.
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CP Friends - For Adults with Cerebral Palsy
Are you or someone you know living with Cerebral Palsy (CP)? 🤗 Join Richie, a 21-year-old with CP, at the Hub Ashmore Park in Wednesfield for the "CP Friends" meet-up group! This welcoming space is all about connection, friendship, and support. Enjoy some tea and cake while making new friends in a warm and accessible…
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Join us for the next CP Network meeting on Wednesday, 12 February, from 6 to 7 PM
We are delighted to announce Liz Whiteley will be joining us to talk about emotions and disability. Liz Whiteley is a Sheffield-based Trauma-Informed Therapist offering online sessions across the UK. She specialises in disability counselling and trauma-informed therapy, providing compassionate support to help clients…
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Understanding the Physical and Psychological Impact of Falls in Ambulatory Individuals with CP
Scope and the University of Nottingham are working on a UK Falls study: "Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course." It will add weight to a growing body of research but from a UK perspective. The Research below is the latest paper from the…
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Interested in PE for Cerebral Palsy?
Participants are needed for a study with Ulster University. They would like to understand the experiences of PE for children with CP. If you are interested please email:Leydon-C1@ulster.ac.uk
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Three year old boy with cerebral palsy running to raise funds for school
Jacob Fallows, a three year old from Devon is running 500m around his school playground in 30 days. Jacob has spastic diaplegia cerebral palsy which affects his legs, but hearing his parents were running to raise money for his local school, he wanted to get involved. Read the full story here Devon News
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Model with cerebral palsy champions adaptive clothes
BBC News Elliot Caswell has cerebral palsy and, like many disabled people, struggles to find clothes that are easy to put on. Now he is one of the models for Primark's range of clothes adapted for adults with disabilities. The 25-year-old from Newcastle says adaptive clothing is life-changing for him and he hopes all major…
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Primark launches clothing range designed for people with disabilities
Range of womenswear and menswear contains 49 pieces adapted from brand’s bestselling items to suit variety of needs. It’s a go-to shop for cheap knickers and designer dupes, but now Primark hopes to become the top destination for clothing designed for those with a range of disabilities. In a first for the budget high…
