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CP and pain
Hi I’m knew to the discussions my names Naomi and I’m 34 mum to a 4 year old I was born with mild CP (cerebral palsy) affecting my co-ordination and balance . To a lot of people or those that don’t know me ,do not see any physical disability but I do have my struggles I just wondered if anyone can share any experience with…
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Hemiplegia: Being Half Disabled
Scarlett Murray talks about her experiences of living with hemiplegic CP in her most recent blog post. [A woman with brunette hair sitting with her knees tucked in towards her chest] Hemiplegia: paralysis of one side of the body. “Hemi” – Greek for half. My hemiplegia is a form of cerebral palsy. I have left-sided…
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Hi, my name is Mollie! I’m 26, I have quadriplegic Cerebral Palsy I have 24 hour care
I’m 26, I have quadriplegic Cerebral Palsy I have 24 hour care from carers . I feel isolated and I’m fed by a tube. I don’t know anyone who else is fed by a tube .
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Straight Talking group – my journey with Dundee University
Shared via our friends at CP Scotland. The University of Dundee has a long history of research into Augmentative and Alternative Communication (AAC) – ways to support communication for those who have difficulties using speech. AAC user Alan McGregor writes about he got involved with Dundee University and their Straight…
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The strength, mentally and physically, it takes every day to live a life with CP is immense
Laura Leeson lives with cerebral palsy and talks to The Irish Times about her experiences and thoughts for the future. I read somewhere, “there is no greater disability in society, than the inability to see a person as more”, but what about the inability to see yourself as more than the disability? I have personally…
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My 5 year old needs splints but unsure what they are and if they do any good
I recently went to an appointment with my son jake to see his specialist. He has spastic diplegia but thankfully can walk. He falls a lot because of his tightness. He is 6 next month and currently wears pierdios which he has been wearing for about 3 and a half years. When we seen jakes specialist she examined him and said…
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Online International Cerebral Palsy Research Symposium on Friday 19th May
A flyer detailing an online International Cerebral Palsy
Research Symposium on Friday 19th May between 11-12:45 on MS Teams. Join a FREE online symposium to hear the latest research on physical activity, sleep, mental health, SDR outcomes, transition and adulthood in people with cerebral palsy. Friday 19
May
Online
MS…
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Ataxic Cerebral palsy
Hi all, My name is Brenda and I'm 59. Recently after obtaining my old medical records. I have only very recently discovered that I was diagnosed in 1966 with having mild ataxic cerebral palsy. My parents (both deceased) told me I had mild cerebral ataxia which I now know was not the case. I had my last assessment at the…
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Cerebral palsy
Hi I live in. wales and have a Zimmer frame supplied to me by NHS England, because at the time I was in hospital with a broken leg. NHS Wales do not want to supply rubbers for the Zimmer frame because it has come from England NHS the Zimmer frame has not got a Welsh label on it I have now got rubbers on now but I have had…
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PA shortage leaves disabled people 'stuck at home'
Disabled people are being shut out of society because of a lack of personal assistants, it has been claimed. Disability Wales said many people with disabilities were being left without the support needed to live as independently as possible. Shahd Zorob, who has cerebral palsy, has had problems recruiting PAs and said the…
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Making Work, Work for You
Work: what are the barriers, and how can you overcome them? Work is essential to our sense of well-being and purpose, as well as being a necessity for achieving a better standard of living. Yet the world of work can often be very challenging for people with CP. Richard Luke is Scope’s Programme Lead for Cerebral Palsy. At…
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Feedback on Education Support and Services
Children and young people with cerebral palsy and their families are under-represented in current policy initiatives – both below offer a chance to contribute to the policy dialogues currently happening. Feedback on Education Support and Services: On behalf of the Department for Education, the Council for Disabled…
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PA’s and the social care crisis; the price we pay for independence
Article on We Are All Disabled I think we are all somewhat aware of the ongoing shortages in social care over the past year. More often than not we hear on the news about the drastic lack of staff in care homes and agencies. But what about the thousands of people like me who employ Personal Assistants? Our voices are not…
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The Effect of Progressive Functional Strength Training on Neuromuscular and Motor Function in Child
Research opportunity with the University of Exeter Research Ethics Committee Review OutcomeEthics Application ID: 529822Title: The Effect of Progressive Functional Strength Training on Neuromuscular and Motor Function in Children with Cerebral Palsy: Pilot Study(Version: 1.1)Proposed Project Duration: 3 Apr 2023 - 1 Apr…
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Cerebral Palsy and transitioning from child to adult care - Survey participants needed for MSc study
Hi! I'm Charlotte, an MSc Occupational Therapy student currently completing my dissertation on the transition from child to adult care for people with CP. I'm looking for participants aged 18-30 with Cerebral Palsy in the UK to answer an anonymous 15-minute survey about their experiences with OT and transitioning from…
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Man with cerebral palsy makes history climbing Everest
A man with cerebral palsy made history climbing Everest with the help of a ten-strong team and a horse to carry him some of the way. Five years later, Max Stainton-Parfitt is sharing his adventure in documentary My Everest, showing his mission to undertake the first trek of its kind as he worked through ‘incredible pain’…
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It's tomorrow! Do you want to know how sleep affects your mental health and well-being?
It's tomorrow! Do you want to know how sleep affects your mental health and well-being? This is your chance to meet Dr Gabriella Romano, a qualified and respected Clinical Psychologist passionate about sleep science! Sign up for FREE here: https://bit.ly/3UtiREm
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Hello from Vancouver Canada My name is James I'm 45 have CP
Hello, it's nice to meet everyone. I haven't been to the UK in many years but have fond memories as my grandparents lived in Windsor, Berkshire. I'd like to talk with people like myself as I haven't found anything like Scope in Canada
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Parents of Cwmbran girl diagnosed with cerebral palsy reveal impact Taekwon-Do has had
The parents of a girl diagnosed with cerebral palsy have revealed her determination to live life to the full despite the daily challenges she faces. Eirwen Ansell was found to be in the breech position when her mum Cath Ansell was admitted to Royal Gwent Hospital in Newport nine days over her due date. Cath was admitted to…
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Machine offers hope to Portsmouth teen with cerebral palsy
A teenager with cerebral palsy is hoping a machine will help him avoid major surgery to have his hips removed. Sam Deakin, 16, from Portsmouth, has already undergone four operations on his hips which means he is no longer able to walk with a frame. He has been trialling a training machine from Norway called the Innowalk.…
