Hi, my name is carolinecd! Daughter having pains and fatigue with Cerebral Palsy

carolinecd

Hi there, I’m a mom of a 20 year old beautiful lady with cerebral palsy…recently, she is complaining of pain and fatigue..sounds like potential fibromyalgia, but hard to figure out. Tried injections, muscle relaxants to no avail. MRI looks good..just looking for some direction and advice please

carolinecd

Thank you Ada, you are so kind to welcome us! I’m in Arizona so excuse the late post for the UK. 

chiarieds

Hi @carolinecd - welcome to this community from me also, & from across the pond! I think you may find this post helpful if you click on the link. It's about 'post-impairment syndrome' that affects some with CP: https://forum.scope.org.uk/discussion/56078/post-impairment-syndrome-and-cerebral-palsy/p1

I'll also tag @Richard_Scope as he knows so much about CP, not least in having CP himself.

carolinecd

Much appreciated Chiarieds. Will do. Thank you for your care:) 

Albus_Scope

Heya @carolinecd and a big welcome to the community from me too. 

I can see you're already getting some top advice, but I just wanted to pop in and say hi.

carolinecd

Thank you and wishing you a great day

Richard_Scope

Hi @carolinecd
Good to speak with you (virtually). 

As we age with CP we can experience an increase in fatigue and pain. This can sometimes be attributed to the amount of energy that we expend doing everyday tasks and the fact that our bodies do not move in the most efficient way, creating wear and tear on joints and tendons. This can lead to Post-Impairment Syndrome. Thanks to @chiarieds for posting the link. Exercise at whatever level your daughter can manage is so important for maintaining mobility and managing pain. Swimming and strength training have benefits, and so does diet. Diet is important in so far as it can help reduce the body's inflammatory response and reduce inflammation in the joints that cause aches and pains.