-
Hi, I'm LFC1! Worried about the long term future of son with CP.
My husband and I are in our 70s with a son with CP in his 30s living with us. We are worried about the future, our health and ability to care for him, what he will do if he outlives us, making a will. Any help please?
-
Mild cerebral palsy
Hi everyone, I was diagnosed with mild cerebral palsy when I was three but didn't find out till I was in my late 20s that I had it. Always knew though that something wasn't right with me. Fast forward to now I have had pain when walking now for a year and a half so I was referred for a ct scan. The results show that three…
-
L'Oréal made a handheld, motorized device that helps disabled people apply lipstick
[A disabled woman of colour applying lipstick using The Hapta lipstick applicator] The Hapta lipstick applicator uses technology developed in part by Liftware, a startup that created a utensil for people with limited hand and arm mobility. L’Oréal* The makeup giant L'Oréal announced a handheld, computerized lipstick…
-
Leg exercise recommendations for 5yo daughter?
My 5 year old daughter has just been diagnosed with cerebral palsy. It seems a mild form but want to do everything I can to stop it getting worse. Can anyone recommend and exercises for the legs suitable for children?
-
CP treatment in adults
I was wondering what treatments people have had for adult CP I have spastic CP in my legs it effects my right leg more than my left leg more so my calf and quads I experience pain daily and have trouble walking most days I’m having a neurology appointment soon I used to have leg splints as a child and night splints aswell…
-
New Year Or Just Another Day?
Many people struggle with depression, and for some, it peaks on New Year’s Eve. Those with existing depression are particularly vulnerable to the mental health challenges of this night & expectations of the new year. The start of the new year does not have to be stressful, sad, or lonely. A few changes and new traditions…
-
Full wrist fusion
Hello Dear friends I'm now and looking for advice and any tips you can give me on wrist fusion surgery also if you can claim any benefits all the help I can get would be very helpful.
-
Sheffield CP Football Sessions Adults and Juniors
Adults Kicking off in January 2023 at Sheffield Olympic Legacy Park S9 3TL, for adults aged 16 or older. The sessions are to be held on Saturdays between 10 and 11 am on: January 14th, 21st, 28th February 11th, 18th, 25th March 4th, 11th,18th, 25th April 1st, 15th, 22nd May 13th, 20th 27th The cost to attend is £1.50 per…
-
Counsellors with Cerebral Palsy
We offer short and long-term counselling for people with Cerebral Palsy with a counsellor (male or female) who has Cerebral Palsy. Support with NHS funded, self-pay & you can start very quickly with self-pay before switching to NHS funding when it comes in. Online Video/Telephone sessions & assistive sessions for people…
-
CP
Hello everyone I’m new here i have CP and have grown up living with it having gone through school , highschool and sixth form then into Adult life each time experiencing Bullying from people all saying mean things about the way I walk and the splints I used to wear . When I was 11 I stopped wearing splints and was never…
-
The National Cerebral Palsy Football league are recruiting committee members
The National Cerebral Palsy Football league are recruiting committee members. The National CP League is the only FA-sanctioned cerebral palsy-specific league, providing regular fixtures and cup competitions. The CP League provides the official pathway to the FA Disability Cup. We are proud to be an England Football…
-
Cerebral Palsy Football Coaches Workforce Project
CP Sport is looking to recruit adults aged 16+ with cerebral palsy to develop a workforce to support the growth of CP and Frame Football. As part of the project, volunteers will be supported by the National CP Football Development Officer and connected with their nearest local club/opportunity. For anyone interested aged…
-
A student with cerebral palsy had to pay for her own specialist equipment
A student with cerebral palsy had to pay for her own specialist equipment to allow her to attend university after her local authority refused. Izzie Stevens, from Fleet in Hampshire, paid more than £2,000 for a hoist and a bed so she could go to Reading University to study biomedicine. She was reimbursed after "months of…
-
Parliamentary Investigation into the Transition to Adulthood for Children with CP
I wanted to share the latest part of the All-Party Parliamentary Group (APPG) for Cerebral Palsy. This particular investigation covers the transition to adulthood and makes key recommendations. You can read the report here:https://connectpa.co.uk/.../The-transition-from-childhood... If you have any thoughts or comments…
-
Christmas Humbug
[Santa holding bundles of money. White text on a blue background that says "Christmas is not always the best time of year"] It feels like Christmas arrives earlier every year. As soon as the Halloween ghouls and harvest pumpkins shuffle off the shelves, retailers start decking their halls in earnest. Mariah Carey and Bing…
-
Communication Matters AAC Users Focus Group
Communication Matters AAC User Focus Group The group acts as a focus group for Communication Matters (CM) and is a vehicle to hear the views of Alternative and Augmented Communication (AAC) users on CM and its activities and actions. This group is also undertaking some work on behalf of CM led by AAC users, for example,…
-
Electric body suit helps people with CP or MS move more easily
The full body suit, comprising 58 electrodes that send mild electrical stimulation to 40 key muscle groups, the suit is designed to relax spastic muscles, thereby helping people move more easily or walk. A life-altering high-tech body suit helped a woman with multiple sclerosis walk with ease. Earlier this year, a YouTube…
-
I'd never had a close friend whose life experiences aligned so closely with my own
They say you can't miss what you never had. Until I realised there was a global cerebral palsy community and, specifically, before I met my friend Nic, I thought that was true. Nic has cerebral palsy (CP), just like me. She loves to read and write, just like me. She uses a power wheelchair and experiences anxiety, just…
-
Artist and author Janelle McMillan on her everyday battle to be understood
I live in two different worlds. One of respect, acceptance and understanding when I am behind safe walls at home, but the other is filled with misunderstanding, judgement, disrespect, ignorance and sometimes downright rudeness out there in our community. I am fighting a war every day to get people to see who I really am…
-
Hello
Hi my name is daisy Ray. Its taken many months for me to have the confidence to ask for help and advice about my son who has quadriplegic cerebral palsy, epilepsy and learning difficulties due to catastrophic negligence at his birth 38 years ago. I have been his main carer for most of his life until a few years ago I was…
