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Cerebral Palsy Integrated Pathway (CPIP) Project is looking for lived experience
Do you or someone you support have cerebral palsy? We would like people with lived experience of cerebral palsy to join our national network for the Cerebral Palsy Integrated Pathway (CPIP) to advise on this national patient pathway. You can find out more about CPIP at www.cpipuk.org We invite you to get involved in…
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What’s your experience of growing older as a Black British person with a lifelong disability?
Adult Recruitment Poster University Ref: FHMS 22-23 214 EGA V5 14/05/24 What’s your experience of growing older as a Black British person with a lifelong disability? Are you 30 years or older? Are you of Black or Black Mixed heritage? Do you have Down’s Syndrome, Autism, Cerebral Palsy, Usher Syndrome, Learning Disability,…
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Join Our Wellbeing Workshop by the Almond Tree Foundation 17 July 2024
Join us for our CP Network session on 17 July, 2024, for a wellbeing workshop by the Almond Tree Foundation. The Almond Tree Foundation provides wellbeing support and education for families living with disability or illness. They run free-to-access, online events which offer a safe space for discussion. The founders Julian…
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Splints
I have hemiplegic cerebral palsy and picking up my splint up tomorrow I'm just wondering if anyone can recommend trainers that it is likely to fit into?
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Cannabis?
hiya. I just wondered if any one had tried cannabis ( weed) for pain control... & if so, did it work? im struggling desperately with pain & conventional medication is not helping at all... really appreciate advice. thank you paddie
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Meet the man moving the goal posts for disabled football players
From BBC Super Movers Charlie Sketchley is a disability coordinator at Burton Albion Community Trust using his lived experience of cerebral palsy to inspire others to take part in sport. When he was young, Charlie enjoyed a variety of sports, but never thought disability football was something for him: “I remember plain as…
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Older Teens Make Similar Gains as Children After SEMLS
From www.newswise.com Single-event multilevel surgery (SEMLS) is the standard of care for helping children with cerebral palsy improve or preserve their ability to walk. Ideally, surgeons perform this complex operation when children are between 7 and 10 years old. Robert M. Kay, MD But what about older kids and teens? Can…
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Ataxic Cerebral Palsy
Does anyone on here have Ataxic CP and would you mind please sharing your experiences of it and in what ways it affects you? My CP affects my balance and coordination. I have low tone and the floppy muscles. I turned 40 late last year and early this year I had an unexplained injury which turned out i had torn a muscle in…
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Falling through the gaps? A closer look at NHS Continuing Healthcare
NHS Continuing Healthcare (CHC) is care funded by the NHS but provided outside of hospital for people with significant ongoing care needs. Ahead of our further work on the subject, Rachel Hutchings and Miranda Davies explain how eligibility for CHC is decided, what the data tells us about eligibility and access over time,…
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CP Network: Let’s talk about Volunteering on 12 June 2024
Join us for our CP Network session on June 12, where we will focus on Volunteers Week 2024. We are excited to announce that Rachel Haine, the Volunteering Development Coordinator at Scope, will join us to discuss volunteering and its benefits. Mark your calendars for Wednesday 12 June from 6pm to 7pm. Looking forward to…
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Hey everyone! New here and struggling with life.
Hey everyone I'm new here I have CP and depression and Anxiety, anger management issues. Having this disability really effects my mental health negatively. It's hard to cope really and who else here has panic/anxiety attacks everytime they leave the house? 👋 I went to pick up my prescriptions today and I get stared at…
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Right Sided Hemiplegia.. Pain in Left Knee
Hi. I have right sided hemiplegia and for the last 47 years have managed reasonably well with physical tasks. There are some limitations but with support, I’m ok. This past year I’ve noticed pain in my left hand and diagnosed with arthritis. I was told this is general wear and tear. Recently my left knee has started to…
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20 Best Cerebral Palsy Books of All Time
Discover the most recommended cerebral palsy books, and pick the right one for you. As seen on CNN, Forbes, and Inc, BookAuthority features the books experts recommend .20 Best Cerebral Palsy Books of All Time
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At a stage where we are wanting to learn more about CP and seek support
Hey everyone. This is my very first post here.. so please be gentle :) Our story. My wife and I noticed when my son was 3 or 4 months old that he wasnt using his right hand as much as his left. We figured that it maybe preference. But took him to the doctors... She said she wanted to give him a few months and see if there…
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Parent needing advice and guidance.
Hi all My little boy (13 months) recieved his CP diagnosis 2 months ago. It has been a lot to process over the last 2 months and we are always learning about him and his condition. The reason for my post is i would love to meet some parents who have experienced this and could help with any advice guidance tips etc because…
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The Challenges of Being a Parent with CP - Online Panel Event - 28 June 2024
The Challenges of Being a Parent with CP - Online Panel Event - 28 June 2024 Can people with cerebral palsy have children? Should they?! Having a child is one of the most important steps in any adult's life and one of the greatest physical challenges a woman will face. Having a child when you have a complex disability such…
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Adult Cerebral Palsy Reviews from The Bobath Centre
At Scope, we recognise the importance of annual reviews in helping adults living with cerebral palsy maintain their independence and the life they choose. We are proud to support Bobath in offering this service to the adult cerebral palsy community. Have you ever wanted to discuss your cerebral palsy with someone who…
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Watch "Cerebral Visual Impairment and CP" from CP Research Network
This webinar features Corinna Bauer, PhD, Karen Harpster, PhD, OTR/L, and Michele Shusterman, who are developing a study of visual impairment across the lifespan. They will discuss basic concepts about visual impairment and the state of treatment and research for visual impairment in the CP population from both clinical…
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Any chance of Cerebral Palsy being missed or misdiagnosed in childhood?
Hello everybody, first post here, thanks for letting me in :) I'm concerned about my son and wanted to ask those of you with first hand experience what you think. My lovely lad is 22 and is diagnosed with autism, learning disability, 2 different kinds of epilepsy (one confirmed, one suspected), sensory processing disorder,…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral PalsyLucy James Cerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
