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Anyone have any experience with Voiceitt or tablet clamps? Any advice on using voice control tech?
Hi guys, hoping everyone is having a lovely day. I am looking for advice and suggestions on helping a client I work with who has quite severe cerebral palsy. His speech is mild but mobility is severe, he can use his finger to press buttons but not with fine accuracy. I am hoping to get his home set up with smart devices…
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Activities in May and beyond with CP Sport
There are many opportunities for you to get involved this May and beyond across the country thanks to the support of our fundraisers and partners, so why not give sport a try? We have several Athletics 'Have A Go' Days coming up for all abilities and ages. Here is a reminder of what you might expect at one of these events,…
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Hi, my name is OrianaN63! My daughter has recently been diagnosed with CP
My daughter was diagnosed with CP last year at the age of 4, and I am always looking for things that we can do to help her with every day tasks, and things that will help her as she grows. My SCOPE counsellor sent me the link to this forum which is proving really useful. If anyone has any tips I would love to hear them!
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Hi, my name is sallystafford! My daughter who is 14 has ataxic CP
I am currently living in South Africa but me and my children are British. I have not lived in the UK as an adult and my children were born in SA. We are returning to the UK to live likely next year. My daughter who is 14 has ataxic CP, and while she is mobile and communicative, she does battle with work pace and processing…
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I have CP. I'd like assistance on finding work, and help with paperwork
I wonder if you can help, I was born 12 weeks premature. I have cerebral Palsy which affects all four of my limbs and my trunk control. The type of Cerebral palsy I have is called Mixed Dystonic and Spastic type. I am cognitively age appropriate. I live on my own with a live-in carer however, this has not worked out the…
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I am not an alien I'm a human with cerebral palsy.
Stephanie Esther Fam is a multi-disciplinary artist who lives with cerebral palsy. In this interview, she shares her thoughts on growing up with a disability and dealing with attitudes from wider society. https://youtu.be/YIZ0qGovsD4 Personally, I prefer direct questions about my disability because it gives me an…
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CP newbie!
Hi everyone. Probably an odd title sorry! I am in the process of adopting a baby boy who has a strong possibility of CP disgnosis. He is less than 1 year old. I am a single man, so looking for advice, or something to help me help him as we go through this journey. I have fab social workers, but nothing beats real time…
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Accessible Woodland Adventure Zone
The Woodland Adventure Zone is a new, fully accessible forest adventure, purpose-built within the grounds of Portland College. Set amongst acres of pine trees within Sherwood Forest, it is a truly unique setting for your outdoor adventure. With access for wheelchair users and people with disabilities, the Woodland…
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Cerebral Palsy and Fatigue Video
The Neurological Team at UCLH has released a very helpful video to help people understand the relationship between fatigue and cerebral palsy. https://youtu.be/Yhe0OOYZ_1I If you need more information about cerebral palsy and fatigue, we have fatigue advice pages for you.
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Made to feel more disabled
Our friends at Bobath have done excellent work in investing the effect of the pandemic on the CP Community Over the past year, we have been investigating the impact of Covid-19 on adults and families of children with cerebral palsy. Our findings highlighted that the pandemic caused a large number of daily life changes that…
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SDR dangers?
I'm a very concerned dad who has a 3 year old son with cerebral palsy. Is there any way of knowing how many of these SDR operations have gone badly wrong?
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APPG Report into the barriers for adults with Cerebral Palsy on achieving full life participation
We are delighted to share with you that the All-Party Parliamentary Group (APPG) on Cerebral Palsy, which Scope sponsored together with Adult CP Hub, has today published the final report into the barriers for adults with Cerebral Palsy on achieving full life participation in healthcare and the workplace. Commenting on the…
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Pains, Trains and Cerebral Palsy
As part of Cerebral Palsy Awareness Month, our guest this week is Cerebal Palsy Campaigner, Richard Luke, who shares yet more public transport horror stories, employment, disabled sex and relationships. Available now! https://labledpodcast.co.uk/
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Have you tried these 5 accessibility apps?
If you have accessibility requirements, it can be useful to plan ahead for new journeys to make sure that the trip goes as smoothly as possible. One great way that you can do this is by using mobile apps. Mobile apps can help make our everyday lives much easier – from finding accessible shops and restaurants to requesting…
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Exploring the effects of growing older with cerebral palsy and use of healthcare services
ALTHEA StudyLiving Healthy Lives: Exploring the effects of growing older with cerebral palsy and use of healthcare services across the life course Online Survey for Adults with CP Are you an adult who identifies as having Cerebral Palsy (CP)? Please share your experiences with us. This will help us to improve our…
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Minefield
Hi everyone, I hope you are well. I appreciate this is a charity website and not a medical advice service. I apologise if this does not fall under your remit and will as previously advised, seek medical advice. My problem being, I was born at home, after a difficult birth. I was breech and facing upside down. Unbeknown to…
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Hi, my name is Right_sidekick0! I have CP. Is it possible to have fibromyalgia?
Hi, I hope everyone is OK and looking forward to the summer! I have cerebral palsy, not diagnosed until 2017. I have been feeling less and less energised. Pain, spasms, aches which affects my sleep. Is it possible to have fibromyalgia? If so, how do I get a diagnosis? Many thanks.
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6 Easy Ways to Celebrate Cerebral Palsy Awareness Month
March is Cerebral Palsy Awareness Month — the chance to celebrate the 17 million people that are living with cerebral palsy (CP). There are many ways you can celebrate cerebral palsy awareness month, and here are a few of my favourites. 1. Wear green for Cerebral Palsy Awareness Month. Wearing green — the cerebral palsy…
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Why Cerebral Palsy Awareness Is Vital This Month (and Every Month)
March is an especially important month for those of us who live with and are affected by cerebral palsy. It is a month in which we share all the intricate parts of us that come together to make us individualistic and unique. It is a month in which we strive to inform others about our disability. We are striving for…
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I Have Cerebral Palsy and I Deserve Acceptance
Alyssa Brown Yes, my disability is physical, but there are things you don’t see. There are days that I don’t want to leave my bed for reasons that do and don’t have to do with it, but I do because I have dogs that count on me every morning. I’ve lost many opportunities with jobs because my physical appearance scares…
