Hi, my name is shelley9! I have CP and I'm looking for new friends — Scope | Disability forum
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Hi, my name is shelley9! I have CP and I'm looking for new friends

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shelley9
shelley9 Community member Posts: 20 Listener
edited April 2022 in Cerebral palsy
Hi I’m new to this I have cerabal palsey and I’m looking for new friends 
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  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    Welcome to the community from me too @shelley9 :) I'm glad you've joined us! How's your week been so far?

    As teddybear12 has said, there are a couple of categories you might be interested in checking out, such as the coffee lounge, and the CP category. 

    The coffee lounge is the home of our casual conversation and games, and is a great place to chat with likeminded people. Do you have any particular hobbies or interests? 

    We have many members who live with CP, as you'll be able to see if you visit the CP category. I'm wondering whether you might like to attend our virtual CP Cafe, which we run with CP Sport? I'm sure @Richard_Scope would be able to answer any questions you might have about that. It looks like the next one is on the 9th May.
    National Campaigns Officer, she/her

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  • Richard_Scope
    Richard_Scope Posts: 3,650 Scope online community team
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    Hi @shelley9
    I have replied to your message  :)
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    Hi I’m having a really bad time with my cp today 
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  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    I'm sorry to hear that @shelley9. Would you like to tell us a little more about what's been going on today? 
    National Campaigns Officer, she/her

    Check out our Playground Accessibility Map
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Hi @shelly9. Thanks for reaching out to us. It sounds like you are having a particularly difficult time with your CP at the moment. Would you like to tell us more about what this looks like for you at the moment? We are here for you if you would like to share more with us  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    Yes please  I’m legs go very tight and when this happens I can’t move my legs or do anything for my self and it really upsets me 
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  • Richard_Scope
    Richard_Scope Posts: 3,650 Scope online community team
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    @shelley9, do you take any medication to help you manage the tightness?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Thanks for your informative response @shelley9. I can hear it upsets you that when this happens you can't move your legs or do anything for yourself. Is there anything which usually helps you to get through this?

    I think being kind to yourself and giving yourself the rest you need will help but I appreciate this is easier said than done and you may have other ideas. Also, do you have everything you need?  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    I’m on backlofen 4 times a day and I’ve got a medical review at 2pm with my gp on the phone 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Good luck with your medical review at 2pm with your GP on the phone @shelley9. How are you feeling about it?  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    I will am nervous about it incase they have to send me in to hospital depending on the outcome 
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    Still waiting for my doctors to ring and do my medical review but it’s making me nervous as I’ve missed the phone call twice today 
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  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
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    shelley9 said:
    Still waiting for my doctors to ring and do my medical review but it’s making me nervous as I’ve missed the phone call twice today 
    Hopefully they call soon and it all goes well for you :) Try your best to stay relaxed, and let us know how you get on
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    i will there going to ring soon 
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    Hi
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  • Richard_Scope
    Richard_Scope Posts: 3,650 Scope online community team
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    Hi, @shelley9
    How are you today? Did the doctor call?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    I am still the same  the doctors didn’t call so I’m going to get my Soupport worker to ring them today and find out what’s going on 
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  • Richard_Scope
    Richard_Scope Posts: 3,650 Scope online community team
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    I'm really sorry to read that. It is really frustrating, isn't it? But it does give you time to make a list of all of the things that you would like to speak to the doctor about.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • shelley9
    shelley9 Community member Posts: 20 Listener
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    I’m in a a e waiting to see a doctor to see what’s going on 
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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hi @shelley9 thanks for updating us, I'm sorry you've had to go to A and E, and I hope that you won't have too long a wait to see the doctor.

    Have you got a list of what you'd like to talk about with you? If not, could you make one while you wait?
    Online Community Coordinator
    Scope

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