Hi, my name is shelley9! I have CP and I'm looking for new friends

shelley9
shelley9 Online Community Member Posts: 20 Listener
edited April 2022 in Cerebral Palsy Network
Hi I’m new to this I have cerabal palsey and I’m looking for new friends 
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Comments

  • Tori_Scope
    Tori_Scope Scope Posts: 12,467 Championing
    Welcome to the community from me too @shelley9 :) I'm glad you've joined us! How's your week been so far?

    As teddybear12 has said, there are a couple of categories you might be interested in checking out, such as the coffee lounge, and the CP category

    The coffee lounge is the home of our casual conversation and games, and is a great place to chat with likeminded people. Do you have any particular hobbies or interests? 

    We have many members who live with CP, as you'll be able to see if you visit the CP category. I'm wondering whether you might like to attend our virtual CP Cafe, which we run with CP Sport? I'm sure @Richard_Scope would be able to answer any questions you might have about that. It looks like the next one is on the 9th May.
  • Richard_Scope
    Richard_Scope Posts: 3,763 Cerebral Palsy Network
    Hi @shelley9
    I have replied to your message  :)
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    Hi I’m having a really bad time with my cp today 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,467 Championing
    I'm sorry to hear that @shelley9. Would you like to tell us a little more about what's been going on today? 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Hi @shelly9. Thanks for reaching out to us. It sounds like you are having a particularly difficult time with your CP at the moment. Would you like to tell us more about what this looks like for you at the moment? We are here for you if you would like to share more with us  :)
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    Yes please  I’m legs go very tight and when this happens I can’t move my legs or do anything for my self and it really upsets me 
  • Richard_Scope
    Richard_Scope Posts: 3,763 Cerebral Palsy Network
    @shelley9, do you take any medication to help you manage the tightness?
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Thanks for your informative response @shelley9. I can hear it upsets you that when this happens you can't move your legs or do anything for yourself. Is there anything which usually helps you to get through this?

    I think being kind to yourself and giving yourself the rest you need will help but I appreciate this is easier said than done and you may have other ideas. Also, do you have everything you need?  :)
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    I’m on backlofen 4 times a day and I’ve got a medical review at 2pm with my gp on the phone 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Good luck with your medical review at 2pm with your GP on the phone @shelley9. How are you feeling about it?  :)
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    I will am nervous about it incase they have to send me in to hospital depending on the outcome 
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    Still waiting for my doctors to ring and do my medical review but it’s making me nervous as I’ve missed the phone call twice today 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    shelley9 said:
    Still waiting for my doctors to ring and do my medical review but it’s making me nervous as I’ve missed the phone call twice today 
    Hopefully they call soon and it all goes well for you :) Try your best to stay relaxed, and let us know how you get on
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    i will there going to ring soon 
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    Hi
  • Richard_Scope
    Richard_Scope Posts: 3,763 Cerebral Palsy Network
    Hi, @shelley9
    How are you today? Did the doctor call?
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    I am still the same  the doctors didn’t call so I’m going to get my Soupport worker to ring them today and find out what’s going on 
  • Richard_Scope
    Richard_Scope Posts: 3,763 Cerebral Palsy Network
    I'm really sorry to read that. It is really frustrating, isn't it? But it does give you time to make a list of all of the things that you would like to speak to the doctor about.
  • shelley9
    shelley9 Online Community Member Posts: 20 Listener
    I’m in a a e waiting to see a doctor to see what’s going on 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hi @shelley9 thanks for updating us, I'm sorry you've had to go to A and E, and I hope that you won't have too long a wait to see the doctor.

    Have you got a list of what you'd like to talk about with you? If not, could you make one while you wait?