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Should we look for additional support for our 1 y/o?
Hi all, My 12 month old son is likely to have CP, just waiting for a final sign off on the diagnosis. I've had a look around the site and forums quite a bit, there's been lots of great info which has really helped us process. I did want to ask a question though, or be told I'm over thinking it! We've started some NHS…
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Hi, my name is claire29! Any adults with CP who have had a knee replacement?
I was looking for some experience of any adults with CP who have had a knee replacement. It’s something I’m going to need, so wanted to know how anybody got on and how was the recovery. ?
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My son has cerebral palsy. Does anyone know if there are any wellies that would fit AFO's?
Hi, I have 4 year old twin boys, one twin has mild cerebral palsy, from lack of oxygen at birth, he walks with a AFO splint, just wondering if there are such wellies that would fit AFO’s? Looking forward to any replies xx
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Adult Shoes/boots to wear with AFOs?
Hi I’m Zara. I have Spastic Diplegia CP. I’m struggling to find winter shoes that will fit over my AFOs? Recommendations will be appreciated ?
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15 month old daughter with CP to both arms and legs
I have a 15 month old daughter, born at 30 weeks she has cerebral palsy to her arms and legs, I would like to connect with people who might understand what this is like
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"I'm now comfortable in my own skin". Proud to be black and disabled.
Jacqueline shares her experience of being black and disabled. Jacqueline is a member of our Cerebral Palsy Network. To mark Black History Month, she has shared with us her experience of being black and disabled. Some people say when you are born your character and personality are already set for life. In my case that’s…
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Neck and Shoulder Massage in London
Hello. Can you recommend a good masseuse for a 50-year old lady with cerebral palsy, living in Camden Town? The lovely friend I care for has intense pain at night and needs someone to help her iron out her painful muscles. We'd be so grateful if you know of someone in North West London who does home visits. Thank you if…
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Hi, my name is TessaFreddy! My son Freddy has just turned 5 and has moderate spastic diplegia
Hi, my son Freddy has just turned 5 and has moderate spastic diplegia. We have been living in New Zealand for a long time and are now moving back to the UK for more treatment options and to look after aging parents. I would love any advice on what options/therapies are available to help Freddys mobility and also would love…
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Hi! Waiting for my daughter to have a scan for CP
Hi I'm Haze90 ?
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I have ataxic diplegic CP. Has anyone else found their CP has worsened with age?
I'm 28 years old and have ataxic diplegic Cerebral Palsy. After the year we've all had, my CP and things that go with it seem to have caught up with me me more than they ever have; things that I didn't know could be part of my CP have also cropped up! To be completely honest, I've never really viewed myself as 'disabled'…
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Hi, my name is nanaspain! Caring for my grandaughter who has CP
My granddaughter who has just been diagnosed with cerebral palsy, will be coming into my care very soon so I’m hoping to be able to gain as much information and support as possible to be able to help her live life to her full potential.
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Type of sub-condition
I hope it’s ok to ask this, but I’m interested in the type of sub-condition you have, in regards to cerebral palsy, and how it effects you on a daily basis. I have Spastic diplegia And it effects me, moving around and I have limited energy at times, so it might take me longer to complete tasks and/or move around.
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Hi, my name is Alex2021! I have CP, and thought it'd be good to connect
I’m new and I just would like to say hey! I have CP myself, and thought it was a good community to connect with.
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My little boy just been diagnosed with CP. Any advice on how I can get the best support for him?
Hi everyone, I’m nee to the page and just getting used to what I need to do! My little boy who is 3 has just (Friday) been diagnosed with cerebral palsy and I’m just trying to get to grips with what I need to do to get the best support in place for him. Any advice would be massively appreciated:)
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Making the next steps
Hi I want to go into a career in some i.t role but I do have reservations because of my C.P and being judged but like most disabled people I'm fed up of being on a low wage and not enjoying the life I deserve. Working at Tesco presently and I'm not feeling the love from them anymore. Any advice on how to get into it.
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Going Green Together for World CP Day 2021
For World CP Day this year Scope is collaborating with Cerebral Palsy Adult Advice UK (CPAAUK) and Cerebral Palsy Midlands to turn iconic landmarks green to mark the day and support the #MillionsOfReasons campaign to raise awareness of cerebral palsy in England and Wales and across the world. Since launching in…
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Emotional Wellbeing and Cerebral Palsy Event 10th November 11:30 am
About this event Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at home. Led by our Adult Bobath neuro-physiotherapist and members of our Bobath team, you can ask us any burning questions, join the discussion and gain some…
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Twin 10 year old girls going through diagnosis. What should we expect at neurology appointment?
Hi everyone, just after some help and and advice. I am mum to 10 year old twin girls who are just being diagnosed with cerebral palsy . We haven’t been given the official diagnosis yet as they have been referred to neurology , mostly with it being such a late diagnosis but I have been told by the paediatrician he has no…
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What do you do to feel more positive about your disability?
Advice would be greatly appreciated. :)
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Hi, I'm Clare. It would be great to meet people and exchange advice / support
Hi my name is Claire. My daughter has cerebral palsy and possibly undiagnosed neuro diversity conditions. It would be great to meet people exchange advice and support.
