Hi, my name is OrianaN63! My daughter has recently been diagnosed with CP

OrianaN63
OrianaN63 Online Community Member Posts: 2 Listener
edited March 2022 in Cerebral Palsy Network
My daughter was diagnosed with CP last year at the age of 4, and I am always looking for things that we can do to help her with every day tasks, and things that will help her as she grows. My SCOPE counsellor sent me the link to this forum which is proving really useful. If anyone has any tips I would love to hear them!

Comments

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @OrianaN63

    Welcome to the community, I hope you are well today.

    It's good to hear that somebody from Scope referred you to the community, I'm sure you will enjoy taking part here, it's a very warm and supportive place. 

    We have several categories that you are more than welcome to browse and get involved with, including this one about Cerebral Palsy which your discussion is in at the moment, and the virtual coffee lounge which is where we play games and talk about general subjects such as movies and TV.

    @Richard_Scope is a specialist information officer for CP, so I'm sure that if you have any queries or concerns relating to your daughter he will be happy to support you. We also have several other members with experience of CP, either as a parent of a child or having the condition themselves.

    If you have any questions about the community then don't hesitate to ask. 

    How is your daughter managing at the moment?
  • OrianaN63
    OrianaN63 Online Community Member Posts: 2 Listener
    She is great at the moment thank you. It was picked up relatively late (she was about to turn 5) and so she has quite a lot of experience of managing things unaided which masks her difficulties - it was only during a recent physio appointment that I realised the full extent of the difficulties she has with her left side, which was quite an eye opener for me. But in herself she is a happy and outgoing personality. Her CP is relatively mild and as far as she knows this is just the way things are.
  • Poppy_
    Poppy_ Online Community Member Posts: 192 Empowering
    Hi, how are you today? 
    I also have CP, my CP affects my legs, mainly, and the spasticity of my legs and back. When I was a child, I did a lot of swimming and horse riding, through the suggestion of my physiotherapist at the time, and I enjoyed it, as well as being good for my balance and core strength. I went to an RDA centre, which stands for Riding for the disabled association, and they have centres all over the UK. This may be worth looking into for your daughter, as it is an activity that helped my CP, as well as being fun and building my confidence in myself. I have attached the website for RDA here https://www.rda.org.uk/rda-groups/. 

    I hope this helps. 

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