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need some advice please regarding to my 16 yr old son who has cerebral palsy
Hi guys. I need some advice please regarding to my 16 yr old son who has cerebral palsy and is in employment as an brick layer as an apprenticeship. Thank you.
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Calcified Tendonitis
Hi I've recently been diagnosed with calcified tendonitis, it's exactly where they lengthened my tendons when I was 9 years old, anyone else with CP got/had this, I'm awaiting surgery but consultant doesn't quite know how to fix it xxx
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Work, Doctors, Pain and CP
Hi there, I don't post much, but often browse the community posts. I'm 26 and have spastic diplegia cerebral palsy. I've been getting very frustrated recently with managing to get through everyday tasks because of pain and fatigue. The pain and fatigue is nothing new to me, but I'm still relatively new to working (4 years…
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My Journey with SDR
Hi everyone! Today, we are going to talk about something that has really changed my life something that is really important and that I think will reach out to a lot of people on my Instagram … my SDR surgery. Read Katie's full blog about SDR here
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Claire - My chronic pain story and need your advice on exercise
Hey Claire, Thanks for your advice so far! I'm looking for some exercise advice. For the better part of 10 years, I’ve had chronic pain of the back & sciatica as you know from my previous post. It’s a pain in my ass… and also my back. Haha. Chairs without backs have been my mortal enemy. 10 minutes of bad posture leads to…
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Cerebral Palsy and learned dyspraxia
I have cp and I learned after graduating from university that I had learned dyspraxia. I was diagnosed with learned dyspraxia by an educational psychologist in the late nineties. I was recently told that if you have cp you are not considered dyspraxic as it is part of the condition. Has anyone else been told this by a…
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Autism masking signs of CP?
My son was diagnosed with Autism at the age of 2. He is now showing signs that he may have cerebral palsy he is almost 21 could a diagnosis of autism at any early age mask the fact that he may have cerebral palsy?
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Distal Femoral Extension Osteotomy & Patellar Tendon Advancement
Hello, I am new to the website and chat, I am trying to find out a bit more information on a procedure that my 13 year old son is going to have. He has Spastic Diplegic Cerebral Palsy and is due to have a Distal Femoral Extension Osteotomy with Patellar Tendon Advancement. Have any of your children had this procedure, how…
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System severity scale ??
I had a hospital appointment report sent back to me today with results. it says wide pain index is 7 System severity scale is 8 and Then for fibro its ... pain index is 7 then system severity scale for this is 9 Havent got a clue what this means has anyone any ideas what they mean ???
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Iddeas? Thoughts? How to help the CP community.
Hi there folks. My Mum passed away recently and left me a little but of money. Any ideas as to what I could do to enable me to help others in the CP community? Thx.
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brain stimulation, anyone else has tried it?
Hi my name is Shannon I'm am a mild cp suffer I'm just about to go through some treatment of brain stimulation I'm very nervous but just wondering if any one else has tried it. Shannon
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Expecting a diagnosis of CP
Hi everyone! My daughter is just over 3 months old and has had an intermittent convergent right eye since birth and less movements in her left limbs, often going stiff. We saw GP today who is doing a referral to a paediatrician. There hasn’t been mention of CP yet but my gut instinct tells me to expect a diagnosis of CP -…
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Recent CP diagnosis
Hi all. My son has recently been diagnosed with spastic, diplegic cerebral palsy. We have had an mri to confirm. I’m now at a bit of a loss what to do next. We are awaiting a follow up appointment with our pediatrician (no idea how long that will take) but don’t know if I should be trying to get him any assessments or…
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just looking for advice
hi i am the grandma to a beautiful little grandson who is 7weeks old and has been diagnosed with severe cerebral palsy and just looking for advice on anything that can help mummy and daddy
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Can you give me some help?
HiI am from China and have cerebral palsy. 17 years old this year. I was dropped out of school 4 years ago, I hope to get education, but the family, government and community can't give me support. What should I do?Because I can't speak English, I use Google Translate. I am sorry for any grammatical mistakes.Thank you
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Teaching a child living with CP to swim
I am a swim teacher and my latest addition the group has
been a boy with Celebral Palsy, he is three years old and cannot stand or walk
without support. I have never taught anyone with celebral palsy before so am in completely new territory. He has been in the pool with me twice now and on both occasions
just floated and…
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Fibromyagia
Hi for 4 months now I can't lift my arms as well as the chronic pain I can't seem to find any mention of this connected to fibromyagia as I've only recently been diagnosed and this pain has taken over my life. Im wondering has anyone else experienced this. I went from being a carer to 3 young adults to not even being able…
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hydrotherapy physio
About a year ago I had a operation and needed physio for it I had hydro and because infatuated with my first hydro physio she transfered to another hospital last September I found her on social media I'm still infatuated with her I'm 20 I have cerebral palsy I use a wheelchair and have had physio all my life
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Increase in care contribution
I am a carer/PA for a young man with CP. He lives in an independent living facility. Recently the LA have reviewed his contribution to care, the cost to him have increased have from £77 a week to £111 a week. I can't understand how they are allowed to increase this so much. His care needs have not changed. This has left…
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Rise in Parents Paying to Freeze Stem Cell Rich Umbilical Cord
Kyle and Carla Poppleton banked the cells with private company Smart Cells when their daughter, Paige, was born in London in March 2013. Mrs Poppleton, 32, who lives in Lincolnshire, told The Mail on Sunday in October: ‘It is the best investment we could ever have made for our daughter.’ At six months old, Paige was unable…
