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Knee Replacement
Hello. I'm 58 and have cerebral palsy affecting the right side of my body. Thanks to this I need to have a left knee replacement. The hospital where I'm due to have the op know about the cp but I'm just nervous about whether i'll be able to use crutches because of the cp and how this will affect my mobilty. Anyone else gad…
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Wish Fest Cornwall
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Advice about my care situation
I have just joined. I am seeking advice on what to do about my care situation. I am an independent 29 year old woman with CP who reeds 24 hour live in support.. I have an active lifestyle, I am in the process of setting up my own business and I am getting married in July. I basically like to live like any other young woman…
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Just saying hello
I was searching the internet to understand who else is out there with similar circumstances to mine and trying to learn more... and found threads here that relate! So just saying hello. I'm Larissa, I'm 46, I live in the US (California) and I was just dx with CP and autism at age 46... and I've got several other medical…
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What should I do?
Am a single mum and my daughter has cp. Am employed but I find myself struggling raise my daughter since the salary I get i feel isn't enough, i dont even get time to take her for therapy. Am so confused
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Fibromyalga
Please help me if you can. I have fibromyalgia. I was diognised with it nearly 20yrs ago I am in so much pain every single day pain all over my body I have pain in my ankles they swell up and I get stabbing pains in my heels, and shooting pains through the top of my feet from my ankle Doctor just says it's fibro. But it's…
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Newly diagnosed with mild cerebral palsy
Hi, I'm just wondering if anyone could give me some information and advice really. I was diagnosed with mild CP about 3 weeks ago, bit surprising as I am 42! I went to see the neurologist because I have had a problem with headaches/migraines and have had for the last 7 years. I have a permanent headache, it never goes…
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Using Exercise to Overcome Anxiety and Bullies
When Mariana Sfakianakis uploads a 'transformation' photo of herself to social media it has nothing to do with gaining or losing weight. Instead, the 25-year-old from Sydney is showing a little girl who grew up in and out of hospitals, holding crutches and relying on wheelchairs who has blossomed into a strong and fiercely…
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Scoliosis
Son (21, athetoid) just been referred to spinal unit due to fairly rapidly developing scoliosis (and apparent "misalignment" of 2 vertebrae). Probably been gradually worsening over last few years but very noticeable on Xray ...which was actually first spinal one, though hips been done for years. Anyone got any experience…
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Blocking footpaths
I have just been out with my dog along a footpath which was blocked at the far end by a Dark Blue Ford. I have Cerebral Palsy and find it hard to get around cars without assistance. I wish people would think!
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Estimating care needs
Hi all . I am trying to put together a very ball park figure of how much my sons care needs will be for the rest of his life . He has quad dystonia of CP and will need care with eating , dressing , toileting etc , most things in every waking hour . I assume he’ll need a live-in PA when he is older. He is able to talk and…
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Cronic pain
Im new to your forum, never asked for help on line before... but im in so much pain its brought me to tears....crying like a baby... Ive just turned 49 ((Monday infact)) been suffering with severe pain all my adult life....tried to hold down a job but couldn't stand or sit for very long or id be in agony and often feeling…
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Are there any support groups /forums out there for teens with cp?
Hi I am a mum of a 13 year old girl with mild cp diplegia and scoliosis . She is currently spending lots of time off school due to pain in her back. Her friends at school have shunned her and it’s killing me to watch her be so lonely . Is there any support groups /forums out there for teens with cp? She is spending more…
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CP: Im interested in how things have changed for others and would like to share experiences & ideas
Hello. Thought Id join this group because my CP has become a problem with age. Im interested in how things have changed for others and would like to share experiences and ideas
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Baclofen can be Better than Deep Brain Stimulation (DBS) for Adults with CP Study Suggests
Treatment with baclofen administered directly into the spinal fluid is less invasive and more effective than deep brain stimulation to improve the quality of life of adults with cerebral palsy (CP), a retrospective and comparative study shows. These findings were reported by Korean researchers in a study titled…
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I want write blog
My name Jay, I have cerebral palsy, I want to write a blog about having cerebral palsy and talk about my experiences and how I have dealt with me. I would appreciate anyone advice on what think of my idea
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Any evidence to the benefits of Physiotherapy for children/babies with Cerebral Palsy?
Hi I was wondering if anyone knows of any research out there which provides some evidence to the benefits of Physiotherapy for children/babies with Cerebral Palsy? Thanks Rachel
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Can anyone give me advice?
Hi I’m new to this. I’m single mum to Alexandra (you will see her in my profile pic) who is 16 years old and has spastic diplegia cerebral palsy. She walks in a walker indoors and uses wheelchair outside. I wonder if anyone can give me some advice. She had an appointment with her neurologist a few weeks ago and she copied…
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Just found out my 11 months old son has Cerebral palsy
Hi I just found out tosay my 11 month old boy has cerebral pasly that effects both legs and left arm not sure what to expect
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Does CP get tougher as you get older?
Hello everyone. I'm a long time lurker but have finally decided to break my silence. I have a mild cp that mainly affects my right leg, however I also have problems with my hand-eye co-ordination and balance. Throughout my life my cp has mainly just felt like a very dull ache and I just got on with it, barely noticing it…
