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New here
Hello i came across this site when I was looking for information on CP. My fiance has mild CP that effects his lower limbs. When I first met him he told me he "used to have" CP, he was in major denial about it and just soldiered on. After I did a bit of looking into it, I realised it's a life long condition cause by his…
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Baclofen Do you have experience of alternatives please?
Hi If anyone can refer me to a previous discussion please do or suggest where to try, that would be great. (The original aims of this charity covered my Uncle's position). Thanks I noticed my uncle repeatedly return to his old self on admission to hospital, despite needing hospitalisation. I found the hospital back then…
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Moved: wrist fusion
This discussion has been moved.
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Cerebral palsy and the Covid-19 Vaccines
Is anyone else concerned about administering the Covid vaccine in case of side effects? My daughter had convulsions as a baby after the routine jabs. She has quadriplegia cerebral palsy.
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Online events this week 18 Jan with CP Midlands
Cerebral Palsy Midlands 2021 Up and coming online activity plans – Week 3 Monday 18th January 12pm Gents Catch up on Zoom https://us02web.zoom.us/j/82264349794 2pm Ladies Catch up on Zoom – show research from Dr Sonali and The University of Birmingham regarding Women’s Health. https://us02web.zoom.us/j/86406542430…
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Multidisciplinary Teams for Adults
Looking at NICE guidance it states that over 18 yr old's should be able to access a Specialist CP Multidisciplinary Team. "Statement 1 Adults with cerebral palsy are referred to a specialist multidisciplinary team if their ability to carry out usual daily activities deteriorates or is expected to deteriorate." How do I…
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Hi, my name is OnMyLastNerve! I'm unable to visit my husband in hospital due to Coronavirus
I am a carer to my husband born with CP. He is currently being held captive (!) in hospital following a bout of Sepsis, and I am terrified! I know he is in the best place but oh Lordy do I feel useless, I can’t visit currently as they have had positive COVID tests on his ward in the last 7 days. He is clear currently but…
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Hi everyone am new to this group
Hi to all am new to this group and would like to introduce myself my name is leslie and right now in Newport.would like to get more in touch here.
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This Week's Online Activities with CP Midlands
Hello everyone, Cerebral Palsy Midlands 2021 Up and coming online activity plans – Week 2 Monday 11th January 1pm Ladies Catch up on Zoom https://us02web.zoom.us/j/82766035711 2pm Gents Catch up on Zoom https://us02web.zoom.us/j/87193775685 Tuesday 12th January 11am – Join Sally this week on Zoom for Seated Tai Chi…
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Hi all. My daughter with CP is shielding, and the information on vaccines is vague to non-existent.
Hi all, Just a general and mundane question considering the times, however! I have a daughter with CP who is 11, I assume that she is miles off being able to receive a covid vaccine. Information is vague to non-existent, for this situation. I understand some exceptions exist but detail into that is difficult to locate. The…
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My son has just turned 3 and has CP
My son has just turned 3 and has cerebral palsy. Mainly affecting the legs. He was always a good sleeper until a few months ago and now it’s so hard to get him to sleep in the first place and then he’s awake again at 2/3am. I am also heavily pregnant and it is very tiring. I have recently cut out his day time naps but not…
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Hi, my name is Fatt5! My daughter with CP is struggling mentally with wearing an orthotic splint
Hi I am Fatima, my little girl is called Jemima and she has cerebral palsy. Jemima is 6 years old and wears an orthotic splint on her right leg. More recently, she has been really struggling with this mentally and questioning why she has to have this. Just wanted to find some people I could get to know and talk to about…
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Pregabalin for spinal lumbar stenosis
Has anyone used Pregabalin or amitriptyline for spinal lumbar stenosis I’ve read the side effects and I am worried about trying them as gabapentin didn’t work. Thanks
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Struggling on a daily basis and my depression is getting worse
i suffer from chronic pain. I have two slipped disc in my neck and i have a should injury which cannot be fixed. I have had both injuries for around six years now. They were hoping to fix the shoulder injury a couple of years ago but two days before the operation it was cancelled as they were worried about losing me on the…
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Dyspraxia and Cerebral Palsy
I have dyspraxia and mild Celebral parsy . And Hypotension as well as Mental health . I would like to find out some more information on Dyspraxia and Celebral parsy .if anyone can help please .
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Hi was just wondering what job to take up
Hi was just wondering what job to take up
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Hi, my name is ankel2306! Do you have any advice on starting college?
I have mild cerebral palsy and am looking for some advice about starting college next year and being independent. Im 18 and i use a wheelchair. I am a triplet and I live in Scotland.
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Suggestions please! My adult son hardly sleeps at night at all.
I hope someone can help me. I am so tired through lack of sleep. My adult son with cerebral palsy wakes about 2 or 3 times in the night wanting to use the urine bottle. I've tried everything...giving him some non-addictive pills from the doctor before he goes to sleep, making sure he restricts any late evening drinks,…
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Get involved- Self-Reported Physical Activity Levels in Adults with Cerebral Palsy: An insight.
Hi, my name is Charlotte Kreiner and I am a Masters student on the Pre-registration Physiotherapy course at the University of Brighton. For my dissertation, I am looking for adults (18 years and over) with mild to moderate cerebral palsy (GMFCS levels 1 to 4) to participate in a brief online survey to help provide an…
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Hi, my name is Daisy_olive_mummy! Any advice on being accepted for self-funded SDR?
Hi. Daisy has just been accepted for self funded SDR. She’s level 4... any advice greatly received x
