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Hygiene for Hemiplegic Hand and Mobility Equipment
We all need to follow basic hygiene precautions, especially at this challenging time. We all know about not touching our faces, covering nose and mouth when coughing or sneezing with a tissue or into our elbow. However, we need to be thoughtful about not only hemiplegic hands but also equipment that we might use on a day…
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Coronavirus and my son with CP
Am worried about how Corona virus could affect my 13 year old boy who has Cerebral Palsy
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Hi I'm Caeden Thomson, I'm 6 with CP and I'm going to walk up BEN NEVIS!
Hi I am a 6 year old boy with Cerebral Palsy, My mum is typing, because she can type faster than me! :) lol! I was born 12 weeks premature and had a lot of problems. I was in and out of the hospital a lot. In my life, I have been really lucky to have had as much help and support I have had - that I now want to give back.…
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Why is CP in the list of higher vulnerability for Covid-19?
Hi, dad of girl with wobbly legs. Otherwise healthy. I'm trying to figure out why CP is in the high risk list from HMGov yesterday. Some people have suggested something to do with neuro damage or something. It doesn't immediately make sense to me. My understanding of CP is permanent brain damage from birth, a static…
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NICE Quality Standards for Adults with CP
Over the last 18 months, Scope has been working with the National Institute for Clinical Excellence (NICE) and other organisations with an interest in CP to agree on what good service should look like for Adults living with CP. Scope supports these newly agreed and published quality standards. The standards are: 1. To…
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Bulging Disc Nerve Pain
Hi Folks, Hope you doing okay. I have recently been diagnosed with a bulging disc that is impinging on my left nerve root, causing sciatica. I have been to loads of private physiotherapists as the NHS physiotherapist was very poor, i just wanted to get out of pain. All seem to give mixed advice, but i am awaiting a…
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March is Cerebral Palsy Awareness Month
March is an exciting month, spring is just around the corner with sunshine (hopefully) and BBQs, St. Patricks day and of course, it's Cerebral Palsy Awareness Month! To get us started I thought it would be a good idea to share some of the key facts about CP: Around 2-2.5 in every 1000 children in the UK are born with…
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Spastic diplegia CP and tiredness
Hello everyone, I am looking for some advice on diplegia CP and tiredness. My son has this form of CP and senco are saying that his form of CP is what causes tiredness. However he is always tired. Im guessing this is because of his cp and othet factors like his seating etc which is due to be assessed. Does anyone with…
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Suitable pushchair for granddaughter
Hi my granddaughter who is 4 months old has just been diagnosed with cerebral palsy and epilepsy, and have been told it's quite progressive, I'm wondering about the next stage of pushchair as she carnt sit up or hold her head up,she is currently in carry cot but us getting to long for it .health visitor said she will need…
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Recommendations for Orthopaedic Surgeons
My sister Tizzy has severe cp and learning difficulties. She is an adult and we live in the London Borough of Greenwich. I am looking for recommendations of an orthopaedic sergeon who specialises in cp or even just an adult cp consultant. I am really hoping someone can help. X
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Memory loss
Hi, I'm 36 and have very mild CP caused by a brain injury when I was born. I have always had a pretty poor memory but laughed it off and only recently wondered if it's linked It's really starting to bother me now as I'm not sure if it's getting worse. I don't recall most of my childhood and ask me what I did more than a…
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Looking for some help regarding a proper diagnosis.
I am a 44 year old female diagnosed with mild CP as a child in the 80’s. Oh the 80’s what a blessed time to be diagnosed... (note sarcasm). After initial diagnosis and tendon lengthening surgery, the consultant turned to my Mother and told her “ Take her home and forget about that she has CP, carry on as normal” Ahhh.…
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Meet ups
Hello my name is Ceri Davies I have Cerebal Pausy, tethered cord syndrompe and scoliosis. I was wondering whether you could help me to find some groups/organisations in Dudley or the wider West Midlands where adults with physical disabilities attend. I am 30 years of age. I would appreciate any assistance you can give me.…
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CP and an amputee
Hi my boyfriend lives in Guildford and has cerebral palsy he also has had a below knee amputation so getting around even more difficult ?? Any other people with CP and amputation as well. Regards
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Looking for services
My name is Anthony and I am 53 yrs old living with cerebral palsy and it is my passion to help others with disabilities in particular those who are non verbal so I can help them to live as independently and happy lives as possible so if you or anyone you know needs help or advice feel free to contact me anytime and if…
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Adult bib or feeding?
Hi guys I know I just posted but I had one more question: I am beginning to see my disability differently in terms of feeding. Last year I didn’t care what I would look like and sometimes I would roll around my college in dirty clothes from eating. I am beginning to realize that dirty clothes are not the most attractive…
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Hi, my name is just4joshy!
Hi am a mother to 13 year old Josh who has Cerebral Palsy and Autism.
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Experience of radiotherapy and CP
Hello to all. I am a **** yr old lady with lifelong Cp. I will shortly be starting radiotherapy for breast cancer. Has anyone any experience of this? I am worried about staying still long enough on the table for the treatment because of spasms. I also have a frozen shoulder on the affected side and I am unable to lift it…
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support groups
Hi, are there support groups for adults living with CP in Swindon, Wilts?
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Physio guides and best techniques for the time strapped
We are receiving about an hour a week of physio and about the same in play therapy for our 1 year old son who hasn't had a formal diagnosis for CP but is clearly severely disabled. All 4 limbs are stiff, he doesn't roll over, poor head control, he's able to lift his head up but not able to sit unsupported, his arm control…
