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Hi, my name is Charliesmam and my 9 year old son has CP.
Charlie is 9yrs old and has cp. He walks unaided but the lack of physio, swimming and riding caused by covid this year has left him tighter than normal. We have a lot of behaviour issues too.
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Bridging the Gap: Translating Disabled Women's Sexual Health/care Stories using performance
Wednesday 14 & 21 October 2020, 4-6 pm on Zoom Women & Theatre and the University of Birmingham are running two exploratory online workshops in October as part of a new project to see how theatre can be used to translate research about experiences of sexual & reproductive health and healthcare (for women with CP).These…
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Question about adductor surgery
Hi, everyone! My name is Ally and I am based outside the UK. Five days ago, I had surgery for spastic diplegia (was very functional before, though, and could walk unassisted and even walk up and down stairs). It was pretty major and I had a femoral derotation osteotomy and an adductor myotomy to loosen the adductors. They…
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Hi im Oscar im 14 and I wrote a song about my CP
https://youtu.be/InULruQ9crs Please like, subscribe and share
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Living with cerebral palsy
I have cerebral palsy and struggle with certain things. I like to reach out to people with cerebral palsy and other disabilities to see if I can relate. Life with cerebral palsy is hard and I am sometimes treated differently to others which is not what I want. I have big dreams for the future and want to live a independent…
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We need a consultant for help with our 17 year old's CP
Hello, we are in West Sussex and are looking for a consultant to review my 17 year olds CP. we seem to have dropped through the gaps and have never had an NHS consultant as her diagnosis was private when she was 8. She is getting all sorts of new symptoms but we are only being offered pain management but I would like to…
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Support group?
Hello I live in Suffolk and I have cerebral palsy and associated conditions. I would quite like to meet other individuals in a similar situation and set up a support group for young people in the local area. If you are interested please let me know. I look forward to hearing from you
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Breaking news from 6 year old Caeden...
Here's 6 year old Caeden's latest Breaking News! ?? https://youtu.be/9MyXEX0ujRMGet subscribed so you don't miss out on the next videos...
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Holistic assessment of my wellbeing - CP
I live independently in Northamptonshire with CP, I am retired. I walk with a walker but slowing down and have just had an operation on my lower calf to remove a benign tumour. I would really like to see a CP specialist who could give me a holistic assessment of my wellbeing as my GP surgery tend to look at me through a CP…
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Why didn't the TENS unit work instead of opioids?
I tried out a TENS unit (transcutaneous electrical nerve stimulation) because of lower back pain and it didn’t work at all for me, I just thought it was annoying. Why didn't it help me? What reasons could there be? I really thought it would work so I could stop taking opioids.Anyone who have the same experience?
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My 2 year old with CP doesn’t understand he has arms
Hi everyone, I was wondering if anyone had a similar challenge with their child suffering from CP. My nearly 2 year old has been diagnosed earlier this year with spastic quadriplegia and has been given loads of support from the NHS but they mostly focus on his hips and legs, however I am mostly concerned he has yet to use…
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Wheelchair advice!
Good Evening Just before lockdown my little boy was prescribed a self propelled wheelchair. He doesn't need it indoors but he does get tired quite easily out and about and has outgrown his buggy hence the need. Anyway, 3 long months later, today we took delivery of his shiny new chair! Due to covid-19 they are doing video…
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Finding myself again
Hi everyone I’m Gavin, I’m 38 years old from South Wales. I was born with cerebral palsy and I also have a speech impediment. I have just posted my new blog about how lock down has helped me to find my confidence again! Please feel free to have a read and if you have any questions please just ask away ?…
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Face mask
Hi, I not sure whether you can help me. I have Cerebral palsy
and due to my involuntary movements I am unable to keep a normal face mask on,
I been told I need a full face mask just what nurses wear in hospitals. I want
to go out because I haven’t been out in months, I won’t go out without proper
protection for my needs. I…
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Changing Lives
Hello, my name is Emily Nicole Roberts and I'm 22 years old. After years of loathing my disability and cerebral palsy, I decided to use my life for positive means. I started a Youtube Channel last year in hopes to reach out to the thirteen year old Emily Nicole, that was so lost and felt completely unknown. I make videos…
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Sleep
My 3 year old son has a mild hemiplegia, he can not stay awake on the way home from pre school or if we go out in the afternoon he will fall asleep in the car. This then means he won't sleep at bed time and will be awake till 9 or 10 at night even if he only slept for a short time in the afternoon I don't know how to get…
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Scope and CP Sport
Our friends at CP Sport have come up with some great health and wellbeing advice with accessible exercises that even I can do! It's all about keeping or joints moving and helping our mental wellbeing too. You can sign up to their newsletter and free affiliate membership here Why not contact CP Sport or give Stay In…
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Any Advice Please
Hi, I’m 55 and have CP spasticity in my right leg. This has increased significantly while I await a hip replacement as mine has gone AWOL ?. My thigh is contracting and making things worse. I can’t put weight on my right leg. I walk with a frame. No involvement with NHS apart from being on list for hip replacement. Has…
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Hi, my name is LFox!
I'm new to this whole online community thing. I'm looking for advice/ experience from any adult with "mild CP" (sorry about rating it, I have no other language for it). I have right sided Hemiplegia and am in my late 30s. Since having my daughter 4 years ago, I feel I've been bent further out of shape, ie I'm more…
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My experience with Mild CP, and also need answers and similar stories.
Hi guys, I'm new to this forum and I've been searching for sites like these for many decades it seems. I'm an 18 year old female living with mild spastic cerebral palsy, I get seizures along with it, and not sure if cerebral palsy is a type of Epilepsy or how common it is. My seizures started recently, which wasn't caught…
