Cerebral Palsy
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Hi, my name is JessieCP!

JessieCPJessieCP Member Posts: 1 Listener
edited December 2020 in Cerebral Palsy
Hi there I'm an adult who only just found out about my childhood diagnosis of CP a lot of my life I wondered what was up with me now knowing this things are making a bit more sense but as my deceased mother took this all medical information to her grave & growing up in Africa not sure much of my childhood medical records remain & I'm only finding out now due to health going down and wanted to join group of people going through similar challenges  in adult life and find out what support is there in Northern Ireland 
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Replies

  • Cher_ScopeCher_Scope Posts: 3,324

    Scope community team

    edited December 2020
    Hi @JessieCP and welcome to our online community :)  Wow, that news must have come as both a bit of a shock and relief.  

    We have a chat group dedicated to all things Cerebral Palsy where our members share stories and tips on managing symptoms.  

    We also have an online chat cafe here on the online community for people aged 20 plus with CP.  Visit this webpage for more details.  

    Also, have you spoken with your GP about the diagnosis and what could help?  They would be able to direct you to more local support.

    I'm sure our more Cerebral palsy knowledgeable people will talk to you soon, but in the mean-time I wanted to say hello and wish you well :)  Take care. 
    Online Community Co-ordinator

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  • Ross_ScopeRoss_Scope Posts: 3,105

    Scope community team

    Hello @JessieCP and welcome to the community :) 

    This is a very supportive and helpful community so I'm sure you'll find what you are looking for here. Hope to see you around :) 
    Online Community Coordinator

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  • Richard_ScopeRichard_Scope Posts: 2,725

    Scope community team

    Hi @JessieCP
    Good to meet you.
    I live with CP and I'm more than happy to have any questions you may have. I have come across situations similar to yours quite a few times, especially where the CP is 'mild', some families still feel embarrassment in talking about disability.

    The Northern Ireland CP register are keen to hear from people with CP. What area do you live in? I can try to find more localised services for you.

    I f you need to talk thing through with somebody who understands please let me know and I'll be happy to help as much as I can.

    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • janer1967janer1967 Member Posts: 9,104 Disability Gamechanger
    Hi and welcome I hope you find all the information supportive . It must be hard for you finding out now about your medical condition
  • WestHam06WestHam06 Member, Scope Volunteer Posts: 1,258 Pioneering
    Hi @JessieCP
                            How are you? Welcome to the community and thank you for joining us. Hearing of your news must have been difficult. I have CP and would be more than happy to answer any questions you may have. This is a very friendly and supportive community. Thank you.
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