Cerebral Palsy
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I'm a mum of twins with CP. One has terrible bowel issues, has anyone got a similar problem?

GingerIvyMGingerIvyM Member Posts: 4 Listener
edited October 2020 in Cerebral Palsy
Mum of twins w cerebral palsy. One has terrible bowel issues. Anyone got similar probs. Spent last week washing sheets etc.
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Replies

  • janer1967janer1967 Community champion Posts: 7,239 Disability Gamechanger
    Hi and welcome glad you have joined 

    You may find some answers in our CP section it must be hard work for you is it an ongoing issue or something new 

    I will tag un out CP wxoert as he may be able to help 
    @Richard_Scope
  • Tori_ScopeTori_Scope Community Team Posts: 3,210 Disability Gamechanger
    edited October 2020
    Hello and welcome to the community @GingerIvyM :) It sounds like you've got a lot on your hands!

    Just to let you know, I've moved your post into the cerebral palsy category so that others who have been in a similar situation are more likely to see it. You might also like to take a scroll through the parents and carers category to connect with some of our other parents. 

    Thank you for tagging Richard, @janer1967!  

    Give us a shout if you need any help finding your way around the community.
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  • GingerIvyMGingerIvyM Member Posts: 4 Listener
    Thank you for your help moving my post. My 1st post so abs Newbie! BB's always had tummy trouble and Doc only ever suggests movicol. We use Epsom salts, linseed and chia in diet but sometimes it is just no help. 15 years of poop🤪
  • Tori_ScopeTori_Scope Community Team Posts: 3,210 Disability Gamechanger
    No problem at all @GingerIvyM :) You were right to make a welcome post, we just sometimes move them if there's a focus to them that fits better in one of our other categories. 

    Have you been to see a specialist doctor at all? 
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  • GingerIvyMGingerIvyM Member Posts: 4 Listener
    No Doc said try Movicol again.

  • Tori_ScopeTori_Scope Community Team Posts: 3,210 Disability Gamechanger
    Hmm, that's frustrating @GingerIvyM. Have you spoken to a gastroenterologist? It's not something I really know about I'm afraid! I'm going to tag your post as 'unanswered' so more people will see it.  
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  • Richard_ScopeRichard_Scope Community Team Posts: 2,580 Scope community team
    Hi @GingerIvyM
    Good to meet you and welcome to the community. Wow, twins, I bet you are busy!

    How mobile is the child with stomach issues? Is there pain or bloating? Are there other physical signs like rashes? Is there blood?

    You may have done already but the first thing I would do is keep a food diary over there period of two weeks. You should then be able to identify if your child has a food sensitivity. The major food allergens are:

    Celery
    Cereals containing gluten
    Crustaceans
    Eggs
    Fish
    Lupin
    Milk
    Molluscs
    Mustard
    Nuts
    Peanuts
    Sesame seeds
    Sulphur dioxide
    Soya

    Be very careful with linseed as well too much over a period of time will cause diarrhoea.

    Scope
    Specialist Information Officer - Cerebral Palsy

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  • emmarenshawemmarenshaw Community champion Posts: 704 Pioneering
  • Ross_ScopeRoss_Scope Community Team Posts: 2,373 Disability Gamechanger
    Welcome to the community @GingerIvyM, hopefully the above information  helps :)  

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  • GingerIvyMGingerIvyM Member Posts: 4 Listener
    I haven't seen a gastro doc yet as GP will only give Movicol and says try that 1st. For years this has been a fluctuating problem most likely due to CP. Doesn't give impression she's allergic but I will try the food elimination and do a food diary. Thanks for all helpful ideas. Coping with life, working from home and twins with special needs sometimes gets me down. Appreciate feeling part of community yet unsure how this forum thing works. Not very techy!
    Take care all
    GIM
  • Richard_ScopeRichard_Scope Community Team Posts: 2,580 Scope community team
    Has your GP referred to a Gastroenterologist or does the GP want to try again to see if the Movicol has any benefit? It can be tricky to pinpoint one specific cause for some gastro issues.
    Give to food diary a go, at least you might have some idea of what could be causing the discomfort.
    As for the working from home with kids; I hear you!, it has been a real challenge for me too and I don't think I have always covered myself in glory either. I suppose we are all adapting. Don't be too hard on yourself. 
    I'm really glad you are part of the community. If you need any help navigating the 'techy' bits, give us a shout.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Crumble_RhubarbCrumble_Rhubarb Member Posts: 25 Connected
    Hey, hope your fine. Obviously as others suggested medical professionals need to rule out/diagnose .
    But as you asked about peoples experiences I have IBS and it can affect people of all ages. I dont know if theres a relation between CP and IBS tbh but its possible to have many different conditions that coexist. 

    I also have experience as a parent going through the loops of allergy testing it took us over a year if not more of having symptoms, food diaries, going to A&E etc to eventually be seen  by a paediatric allergist as the problem just wasnt going away.

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