Cerebral Palsy
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CP diagnosis for 18 month old

MumtoHewieMumtoHewie Member Posts: 1 Listener
edited December 2020 in Cerebral Palsy
Coming to terms with CP diagnosis of my gorgeous ex prem 26 weeker who is now 18 months. The ‘wait and watch’ period seems to be over but there is still so much uncertainty. Anyone else been through/going through anything similar? 
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Replies

  • Ross_ScopeRoss_Scope Community Team Posts: 2,001 Pioneering
    Hi @MumtoHewie and welcome to the community.

    It must be difficult to come to terms with, but having the diagnosis is always an important step towards getting any help your child needs.. Is your GP or health consultant assisting you with this?

    Many of our users have CP, or have family members who do, so I'm sure they will offer their insight. Scope also offers free Parents Connect sessions, which will give you the chance to interact with people in similar situations and receive support.
    Online Community Coordinator

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  • Richard_ScopeRichard_Scope Community Team Posts: 2,488 Scope community team
    edited November 2020
    Hi @MumtoHewie
    How are you doing? Just after diagnosis is a tough time. You have gone through the sometimes difficult task of getting people and medical professionals to hear your concerns about your child and then with the diagnosis, it all seems to stop, It is completely normal for you to enter into a sort of grieving process, acknowledge those feelings if you feel them. It does not mean that you love your boy any less. 
    We have some information about Before and after diagnosis that I think will help. There are also many parents on the community that I'm sure will give you the benefit of their experiences. 
    I have quadriplegic CP and I'm more than happy to answer any of your questions or just listen (read) what you want to say.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • janer1967janer1967 Community champion Posts: 6,138 Disability Gamechanger
    Hi and welcome the diagnosis must be hard to come to terms with but in my opinion knowledge is key so please connect with other members who have the experience to support you
  • chiariedschiarieds Community champion Posts: 6,266 Disability Gamechanger
    Hi @MumtoHewie - & welcome to this friendly & supportive community. I hope you & your little boy are doing well. I'm sure you'll find the info Richard sent helpful. I'd just like to mention a programme within that link called 'Navigate' in case you miss it. Many parents have found this useful, & it might be something you'd be interested in. Here's a direct link: https://www.scope.org.uk/family-services/navigate/   which explains it.
    Please use this forum at any time as there's usually someone here to chat with. You might also like to try our virtual 'Coffee lounge.' :)

  • Tori_ScopeTori_Scope Community Team Posts: 2,747 Disability Gamechanger
    Welcome to the community from me as well @MumtoHewie :) Please let us know how you get on with looking through the resources above, and give us a shout if there's anything you need.
    Online Community Coordinator, she/her

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  • WestHam06WestHam06 Community champion, Scope Volunteer Posts: 1,027 Pioneering
    Hi @MumtoHewie
                                  How are you? How is your little boy? Welcome to the community and thank you for joining us. Coming to terms with a diagnosis is difficult and as @Richard_Scope has said it is important to acknowledge those feelings if you feel them. I hope you find the resources useful and please do let us know how you find these. I have Cerebral Palsy and would be more than happy to answer any questions you may have if I am able too. This is a warm and supportive community, we are here to support one another. Best wishes. Thank you.
  • emmarenshawemmarenshaw Community champion Posts: 698 Pioneering
    Hi @MumtoHewie I’m Emma, one of the Community Champions, welcome to the community. I know it must be a daunting time but just know we’re all here if you need us, whether it’s a chat or just listen. I have CP myself, as do many of our members so please feel free to ask us whatever you need to. Lots of love to you and your family.
  • Richard_ScopeRichard_Scope Community Team Posts: 2,488 Scope community team
    Hi @MumtoHewie
    How are you all doing?
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
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