If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Hi, my name is MISSIEEE!
I’m 52 and obtained my records from greatormond st hospital as I had a operation there when I was 2 for spinabifida, my mother never took me to follow up appointment (terrible) and my milestones weren’t good either, could walk only couple steps. Thru our my neglected child hood I knew something wasn’t right with myself, spent years thinking I’m mad. Been alcoholic for 12 years n I stopped almost 7 months hence y I can investigate myself properly as me n my mother stopped talking when I was 14.In a nut shell the balls rinally rolling had appointment to see a neurologist who disagrees with my doctor but herself and her boss seen to think I maybe cerebral palsy from birth. Have eeg tomorrow then mri with full spine on 12th dec. what does all this mean at my age n if it does come back as I am does that mean I’m not mad or psychotic aftterall? I’m so confused right now. Have the letter if that’s of any use. Ty for taking the time to read this
Replies
@Richard_Scope
Hello @MISSIEEE and welcome to our online community. How are you today?

Thank you for sharing your story with us. I'm sorry to hear about your relationship with your mum and the issues you have faced growing up. You should be very proud of being 7 months sober, that's a great achievement! Well done you
It's good to hear you are having your medical symptoms investigated and I hope the tests you are having done can provide some answers as this must be something that has played on your mind over the years.
Until you have your test results, maybe browsing the discussions in our Cerebral palsy chat will help through reading others stories and their tips for coping with symptoms.
Good luck and please let us know how you get on.
Want to tell us about your experience on the community? Talk to our chatbot and let us know.
Good to meet you. Do the medical records from Great Ormond St actually state a diagnosis of Spina Bifida? Cerebral Palsy and Spina Bifida are two very different conditions, but it is possible to have both conditions at the same time.
MRI will not always show damage indicative of Cerebral Palsy but it's a very good starting point on your journey to learn more about you.
Well done on stopping the drinking, I know how hard that can be.
Specialist Information Officer - Cerebral Palsy
Want to tell us about your experience on the community? Talk to our chatbot and let us know.
Good luck stay positive and please keep us ul to date with hiw you get on if you dont mind that is :-)
<moderator removed images as contained personal identifiable information>
How did your EEG go? I hope it went well and you are feeling good today.
I've removed the pictures you uploaded as they contained your name and some personal details which might have compromised your privacy. I hope you understand, our aim is to keep you safe online
Please let us know if we can help you in any other way and roll on that MRI so you can hopefully get some answers.
Want to tell us about your experience on the community? Talk to our chatbot and let us know.
Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
Want to tell us about your experience on the community? Talk to our chatbot and let us know.
Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Want to tell us about your experience on the community? Talk to our chatbot and let us know.
Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
Are you able to do anything tonight to distract yourself? Perhaps you could chat to a friend, watch some TV, listen to some music, or read a good book? Of course, you're also more than welcome to get stuck in with chatting to people on here!
Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
Want to tell us about your experience on the community? Talk to our chatbot and let us know.