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My son has severe spastic quadriplegic cerebral palsy
I have a 20yr old son with severe spastic quadriplegic cp. I've joined group for advice and opinions on certain matters x
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Friendships and meeting people
Hi, I am a mentor to a wonderful 19 year old young man who has cerbral palsy. He has some mobility issues but can walk. He is intelligent, has a great sense of humour and is great company. He went through main stream school albeit with help. He is doing very well indeed but the main sticking point is that he has very few…
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Fibromyalgia could it be something else
Hey all, Ive got Fibromyalgia, Depression, Social Anxiety, JHS and three herniated discs. Now the Fibromyalgia is getting worse. The pain, my mobility and the numbness. Im back and forth with my GP. Who are usually helpful. My spinal consultant is also helpful, but Im starting to wonder a few things about my treatments. If…
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Respiratory and Cardiovascular disease and Cerebral Palsy
The information in the following article may be upsetting. Adults with cerebral palsy in England may have an increased risk of death due to cardiovascular or respiratory system diseases, a study suggests. The study, “Mortality due to cardiovascular disease, respiratory disease, and cancer in adults with cerebral palsy,”…
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I have mild cerebral palsy
Hello. Just a little about me. I'm 58 and have 'mild CP down one side of my body. Its caused me so many issues over the years. Balance is really bad. Sitting here writing this with a black eye following a fall on Thursday and now waiting for a knee replacement due to sevre artheritis. Its not all doom and gloom though. I…
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I have Cerebral palsy and also have the Intrathecal Baclofen Pump
Hi am sunflower I have Cerebral palsy and also have the Intrathecal Baclofen Pump inside my back to help with muscle spasms in my legs and arms If you like to ask me any thing please do about the pump sunflower x
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Cannabis Oil for CP
I have CP due to a Medical negligent home birth in 1965. This resulted in a high court case (Kelly V Bastible and others) I now see a neurologist every 3 months for botox injection into my neck for pain relief. I have also been chosen for inclusion onto cannabis oil trials. That being said does anyone use cannabis oil for…
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Emergency Spinal support solution needed
My 26,year old nephew's cp is profound and needs Spinal and leg braces, is feed by tube and is non verbal. Despite all this his intellect is keen and he is generally happy. But he has been really ill in hospital for two months, it started with a chest infection but there were other complications that developed in hospital.…
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Pain, muscle tightness, and loss of confidence
Hi all, Not sure if I am posting this in the right place, so apologies if not. I am hoping for some advice. I have cerebral palsy, and arthritis. I had a bit of a fall on Christmas Day, I wasn’t hurt, but have since been feeling very stiff, and very achy, and I feel like walking is harder. Has anyone experienced similar,…
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Does anyone have sleepless nights due to Quadriplegic Cerebral palsy?
Hi everyone, I am a parent of a 23 year old young lady who has Quadriplegic cerebral palsy, she has no speach but her face tells a thousand words. Last year the hospital decided to start feeding her via a jejunal port because she was in so much discomfort from the refluxing - she also has a gastric bag attached to her…
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Advice
Hello I am proccess of writing my own positive song about having CP and how nothing is going stop me following my dream and i will giving up. i hope to inspire other people into follow their dream
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Anyone with a 27 year old son with Cerebral Palsy?
Hello, just joined. Has anyone with a 27year old son with CP?
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Legs op tomorrow - any experiences?
My 11-y-o son Jordi has an op tomorrow to sever and straighten both femurs and shorten the tendons behind both knees. Wondering if anyone has had a similar op, or is the parent of a child who has? I was hoping Jordi was going to write about his experience on his blog at www.jordiblake.co.uk but he's gone and written about…
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Claire - what exercise equipment do you recommend?
What kind of exercise equipment do you recommend for someone with sciatica and general back chronic pain? We have been thinking of a vibrating foam roller for back stretch/massage, exercise bands, and maybe a roman exercise chair. Thoughts? Thank you so much! Doug
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Local days out for groups with CP
My son is 8 he has cp and from henly in arden, warwickshire way. I was wondering is there any days out local for groups with cp so he can mingle with people with the same disorder so he knows he's not alone. Many thanks
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Upper back/neck pain advice
I'm not sure if this is the right group or if this even counts as chronic pain but basically I have had pain in my upper back/neck to the right of my spine for as long as I can remember, it isn't constantly painful, but I do have to avoid doing certain things or walking for an extended amount of time. I'm a full time…
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How can we be taken seriously with chronic pain ?
Hello, I am a 58 years old and have several conditions which cause me chronic pain here they are - Ehlers Danlos Syndrome, Fibromyalgia, Meniers Disease, Asthma, Osteoarthritis, Hahimotos Thyroiditis, two Mortons Nueromas in the same foot plus being investigated for PoTS. I just wanted to ask how can we get help for pain?…
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Cerebral Palsy in adults
I was born, fifty eight years ago. It was a difficult birth, so I was told. Because of this, I have minimal CP, but I have tried to be included as a non disabled person. As a child, I tried to fit in with other peers, and became desperate for attention, so would do silly things for that attention. As I grew, I was advised…
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New Blog
Hi all, I have a new blog piece on being asked what's 'wrong' with me...please have a read and let me know what you think! Thanks, C. http://memyselfanddisability.wordpress.com/2019/01/21/please-stop-asking-whats-wrong-with-me/
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I have Fibromalgia and Chronic hip and back pain
I have fibromalgia and in chronic hip back pain numbness in my feet tinglingli in both hands i also have problems with balance and vision