If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Has anyone here regretted their selective dorsal rhizotomy?
Options
Udosdottir
Community member Posts: 40 Courageous
We learned today that for our daughter, a rectal dorsal rhizotomy would be an option. I started to read online, and found lot of positive experience reports, and now wonder whether anyone would not have the operation if they had the choice (again).
I would also be interested in people who had had it themselves who could tell me what they think about it. I mostly read from parents who are so happy that their children now can do this or that. - I would really appreciate an inside view.
I would also be interested in people who had had it themselves who could tell me what they think about it. I mostly read from parents who are so happy that their children now can do this or that. - I would really appreciate an inside view.
Thank you!
Tagged:
Comments
-
Hi @Udosdottir
Do you mean Swlwctive Dorsal Rhizotomy (SDR)? We have some information about Selective Dorsal Rhizotomy (SDR) surgery that might be useful and some members whose children have undergone the procedure @daniellelinleyxScope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Yes, that's what I mean. Thank's I'll have a look.
-
The "rectal" should have been "selective" - no idea how I got that wrong...
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.