Has anyone here regretted their selective dorsal rhizotomy?

Udosdottir
Online Community Member Posts: 40 Contributor
We learned today that for our daughter, a rectal dorsal rhizotomy would be an option. I started to read online, and found lot of positive experience reports, and now wonder whether anyone would not have the operation if they had the choice (again).
I would also be interested in people who had had it themselves who could tell me what they think about it. I mostly read from parents who are so happy that their children now can do this or that. - I would really appreciate an inside view.
I would also be interested in people who had had it themselves who could tell me what they think about it. I mostly read from parents who are so happy that their children now can do this or that. - I would really appreciate an inside view.
Thank you!
0
Comments
-
Hi @Udosdottir
Do you mean Swlwctive Dorsal Rhizotomy (SDR)? We have some information about Selective Dorsal Rhizotomy (SDR) surgery that might be useful and some members whose children have undergone the procedure @daniellelinleyx0 -
Yes, that's what I mean. Thank's I'll have a look.
0 -
The "rectal" should have been "selective" - no idea how I got that wrong...
1
Categories
- All Categories
- 15K Start here and say hello!
- 7.1K Coffee lounge
- 83 Games den
- 1.7K People power
- 109 Announcements and information
- 23.7K Talk about life
- 5.6K Everyday life
- 329 Current affairs
- 2.4K Families and carers
- 859 Education and skills
- 1.9K Work
- 508 Money and bills
- 3.5K Housing and independent living
- 1K Transport and travel
- 872 Relationships
- 254 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 859 Rare, invisible, and undiagnosed conditions
- 916 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 38.6K Talk about your benefits
- 5.9K Employment and Support Allowance (ESA)
- 19.3K PIP, DLA, ADP and AA
- 7.9K Universal Credit (UC)
- 5.5K Benefits and income