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Man's first job inspires a career in the theatre
A 28-year-old man with cerebral palsy who has been employed for the first time said it had given him the confidence to follow his dream of working in theatre. BBC News Biggleswade man's first paid job, inspires new career in the theatre Sara Scope Cerebral Palsy Specialist
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Join us for the next CP Network meeting this Wednesday, 15 January, from 6 to 7 PM
I hope you can join us this Wednesdayš! Julian Fraser and Claire Shutes from the Almond Tree Foundation ran 3 wellbeing workshops for the CP Network in November 2024. Session 1: Wellbeing is part of our nature and always available. Session 2: The role of thought and how life works from the inside out. Session 3: What doesā¦
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Wobbling Through 2024: The Positive Stories
The new year comes with new reflection and solitude. I want to highlight some positives within the cerebral palsy community in 2024. Having worked in my role for 2 months, it is easy to get fixated on the challenges and barriers people with CP face. The individual and institutional apathy we see daily. This is a reminderā¦
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I Tried Meditation for My DepressionāHere's What I Learned
Article from Verywellmind.com by John Loeppky Disclaimer Meditation can help some people mitigate their depression symptoms. According to experts, using meditation as a form of treatment should be in collaboration with your care team and should not be considered a one-stop-shop solution to mental health conditions. I donātā¦
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Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someoneās life. It can lead to feelings ofā¦
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Community paediatrics rejecting baby with CP
I am a foster mum. Baby R is with me, 3 months old with emerging spastic cerebral palsy following birth trauma.., community peads team rejected him saying he needs acute care, ( as possibly I am Seeing vacant episodes and spasms). in the last 3 weeks we have visited 4 nhs hospitals and had 1-4nights in 2 of themā¦ acuteā¦
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Reflections on managing change as a disabled person.
When I reflect on 2024, I recognise itās been a year where significant changes have been a constant in my life. Some of these events have been stressful and itās been a rollercoaster of emotional highs and lows. Itās important to acknowledge we all have different stress thresholds. Some people can manage change. Othersā¦
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Zoom socials, activities and interests
Hello. Does the CP network do zoom meet ups for socialising and sharing interests and potentially doing an activity together eg meditation, discussions, hobbies etc. Find it really hard to find accessible hobbies and can feel quite isolated. I know that there were similar groups in the lock down.
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Government announces UK Neuro Forum
Andrew Gwynne MP, Parliamentary Under-Secretary of State at the Department of Health and Social Care, has announced a new UK-wide Neuro Forum will be set up to find ways to improve care and support for people affected by neurological conditions. This landmark announcement follows years of campaigning, calling on theā¦
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CP & surgery
Hello, I'm new to the forum. My husband (37) has Spastic Diplegic CP and is independent. He's been talking to surgeons about possible ankle surgery (fusion etc) to straighten up his ankle. Does anyone have any experience/advice around this? Can anyone recommend any good surgeons in the South East of England who haveā¦
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Muscular Dystrophy; The struggle to plan an accessible Christmas party.
Cerys Davage a journalist at Newyddion S4C reports on her experiences of trying to find an accessible venue at Christmas. Disability: My struggle to plan an accessible Christmas party - BBC News
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Apologies! š
Hi Everyone at the Cerebral Palsy Network, I'm very sorry, I've to re-post this, but a Friend accidentally gave Me the wrong info but this is the right info, I still wish I'd partied more, š š„³ š studied less, š made, kept intouch š±with Friends at B.C. & much to the despair of My Parents spent My College years living likeā¦
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Jean Martin Championing cycling as a lifelong mobility aid
The CP Network's very own Jean Martin has been named one of the 100 Women in Cycling 2024 Jean has been involved with Scope since its creation and has been cycling for almost as long! Jean has been cycling for nearly seven decades, starting with a tricycle chosen for her as a child with cerebral palsy to develop herā¦
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Former Paralympian realises lifelong dream to sing
Simon Thake BBC News, East Midlands A former Paralympian has set her sights on a new chapter in her life - music. Zoe Edge, from Derbyshire, was born with severeĀ athetoid cerebral palsy,Ā external, but she does not see her disability as a limitation. She won a silver medal in boccia at the 1996 Paralympic Games and has goneā¦
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End of an era for Cerebral Palsy Cymru
Glenys Evans, founder of Cerebral Palsy Cymru retired in November 2024. Thirty five years ago, Glenys was one of a group of parents who started a specialist therapy centre in Whitchurch, Cardiff for children with cerebral palsy. She has been involved in the centre, now based in Llanishen for all of those 35 years. Sadlyā¦
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RICH: RIght and CHoices for expectant mothers living with CP
In January 2024 Scope and the University of Nottingham collaborated to find out about the reproductive choices and experiences of women with cerebral palsy during pregnancy, childbirth and the postnatal period. These are the FINAL resources we developed as part of the NIHR RICH project around the provision and experiencesā¦
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Man overcome by new accent ahead of wedding
This is the moment a young man from Birmingham was gifted a new West Midlands accent. Jack Reeve, 22, who has cerebral palsy, had been using a communication device with a robotic voice. But ahead of his wedding to fiancee Bethan in 2026, and with the help of special technology, he received a Dudley accent from an anonymousā¦
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Compensation
Hi all, I was diagnosed with cerebral palsy 2 years ago (I'm 44). Although I knew I had issues with my mobility all my life, it was only diagnosed 2 years ago. I have read that compensation claims should be made in early life however I wasn't diagnosed. Do you think I would stand any chance if I spoke to a solicitor. Thankā¦
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Voice: Sharing Stories Through Poetry: Exploring Creative Research with Disabled People
Newcastle University is exploring how poetry can be used as a creative way to share experiences and perspectives in healthcare research for people with disabilities or chronic illnesses. Participants will learn about how poetry can be used in research, take part in a simple poetry activity to share their experiences andā¦
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CP Network Wellbeing Series Feedback
Hi everyone. Myself, @SaraC_Scope and @Lucy_Scope would like to thank everybody who attended the Scope CP Network Wellbeing series hosted by our friends at The Almond Tree Organisation. We would appreciate it if you could leave feedback about the events
