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Experience of Tizanidine vs Baclofen
Background: When i was a child i used to take delicious sugary like raspberry but no raspberries in it bacolfen. Transitioned to boring tablets and then off everything but recently increasing stiffness. Did a brief search and obviously increasing physical activity is a must (got appointment next week), but does any have…
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Cardiff CP Network-In Person Event. Cardiff Central Library.
Good afternoon all. I have some news I'd like to share, especially with people living in Cardiff and surrounding areas. On behalf of Scope, I have organised the first Cardiff CP Network meeting. It will be held on Monday 15th September 2025 at Cardiff Central Library. Please see the attached posters for more information…
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UK's first disabled strongman launches mission
From BBC News Alexandra Bassingham BBC News, West of England Claire Carter BBC Radio Somerset The UK's first disabled strongman is fundraising to secure the future of a national event for strongmen and strongwomen. Gary Clarke, 48, from Chard, Somerset, is a key organiser for the British Disabled Strongman Competition,…
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Anniversary of Stoke Mandeville Games-Paralympic Movement. Disability Pride 2025
The Paralympic movement at Stoke Mandeville is celebrating its 77th anniversary today. The first Stoke Mandeville Games were held on July 29, 1948. These games, organized by Ludwig Guttman are recognized as the precursor to the modern Paralympic Games. The anniversary will be marked by various events, including…
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Hi, my name is Rosies_Dad! Just received a CP diagnosis for my daughter, any book recommendations?
Yesterday I took my twin daughters to Hospital for a routine physio appt and was blind sided with a Cerebral Palsy diagnosis for Rosie it now makes sense why she can’t walk. My wife is away with the Army so wasn’t there is person. We are now waiting to go back for more physio and hopefully some sort of walker. Can anyone…
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The world of inaccessible footwear
This month, for our CP Network theme was fashion. We discussed the difficulty of footwear and cerebral palsy. Samantha Sekirsky joined us. She is studying a master’s in Strategic Fashion Marketing. If you wear Ankle Foot Orthotics (AFOs), Knee Ankle Foot Orthotics (KAFOs), or are generally unsteady on your feet! You know…
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Turning a Mini Passion into a Big Dream
This month, we’re celebrating amazing people in CP Network Meet Sam, 28, from Manchester. Sam runs an art business called sh3dart and has been supported by The King’s Trust Enterprise Programme. He’s even been featured in the London Daily News and on the King’s Trust Blog. Lucy: Hi Sam! Thanks for joining us. Can you tell…
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Hello :)
Hello everyone, I wanted to introduce myself as I joined this community today. I am 33 years old and I have Spastic Cerebral Palsy. I found out about having CP when I was 24 years old. It affects my right side of my body, mostly pain, spasms and stiffness in my ankle, calf, lower back and hips. I am also Dyslexic. For the…
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Join us at CPotential for Intensive Therapy during the Summer Holidays:
Join us at CPotential for Intensive Therapy during the Summer Holidays: Weeks 1 and 2 – Monday 28th July to Friday 8th August Weeks 3 and 4 – Monday 11th August to Friday 22nd August. Summer intensives are generally 10-day blocks, starting Monday 28th July or Monday 11th August. However, if you are hoping to book a shorter…
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School Staff training
I'm a senco at a mainstream school. We have an 11 yr old in a wheelchair with cerebral palsy. New staff with no experience/training. Any idea where we can get staff training for moving and handling young adults and/or wheelchair training? He does not need a hoist - South west UK
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Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
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‘They get more confrontational’: A painter’s self-portraits capture life, and art, with cerebral pal
By Leah Dolan, From CNN Lucy Jones painted her first **** self-portrait at 50. She was in New York with her husband Peter Leach, she said, when he “took a picture of my backside. I thought, ‘Well I don’t look too bad from the back, so maybe I’ll paint it!’” Jones is sitting on a wooden chair the middle of a white-washed…
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Disability Pride 2025
What does Disability Pride mean to me? Sara Edwards CP Specialist When I first heard the term Disability Pride, I was confused by its meaning. In June we celebrate the LGBTQIA+ community and hold Pride events. I assumed Disability Pride was an extension of this, celebrating the LGBTQIA+ disabled community. In 2024 I was…
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Please sign our open letter to the Secretary of State for Health and Social Care,
Tell the government: we need action now, not words Thank you for your continuing interest in the work of The Neurological Alliance.Earlier in July, we published the results of the 2024 My Neuro Survey, our national survey of people affected by neurological conditions, including adults, children and carers. The message is…
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Participants needed!
Are you physically disabled? If so, please consider taking time to be a participant for this research project. Attached is a QR code which will ask you some questions and if you are eligible and happy to be interviewed that would be appreciated to contribute to physically disabled daily lives.
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Take the CQC's Short Survey to Help Improve health and Social Care
Use this form to tell us about: an experience of care - it can be good or bad a concern about a service you work for Give feedback on care - Care Quality Commission Your feedback helps make care better We use what people tell us to understand the quality of care they get from services like care homes, care agencies,…
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UPs response to the 10 year Health Plan
As many of you will have seen, the Government’s 10-Year Health and Disability Plan was recently published. While there are some positive developments, the plan does not meaningfully acknowledge the needs or lived experiences of adults with cerebral palsy—a gap that we believe needs urgent attention. As a member of the…
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Disability Pride '25
As we celebrate Disability Pride—a celebration that is as much about recognising our strengths as it is about acknowledging a shared journey. I want to discuss what Disability Pride means, why it matters, and how each of us can contribute to a more inclusive society. What Is Disability Pride? Disability Pride is more than…
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Ageing and cerebral palsy
Hello I’ve just joined this community and I’m hoping to discuss ageing and Cerebral Palsy. As an adult I feel support and information for people with Cerebral Palsy as they get older is lacking. I’ve noticed a lot of changes such as more memory loss, increased pain, being unable to do tasks as well as I’ve got older.…
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World Wellbeing Week
On the last day of World Wellbeing Week, here is a simple and effective technique to help manage negative thinking. We live in a world filled with uncertainties and it's all too common to be overwhelmed by stress and anxiety. This state of being can often lead to negative views of feeling worthless or unloved. Emotions…
